I'm trying not to worry too much, but that's been going about as well as you might expect.
Tomorrow I've got an intake appointment set up for endoscopy, because they apparently decided to pass me over to a different team. No communication or anything, I just didn't hear anything about the next regular appointment--and then I got this new patient appointment letter for a week after my usual appointment schedule has been running.
That was confusing as hell, but Mr. C called to see if there had been some kind of mixup. Nope, evidently somebody just decided to send me to another team there after around 2 years with absolutely no communication about it. And I am apparently supposed to do a full new intake, with forms and blood tests and all.
There was also a procedure set for the 19th, or two weeks longer than they have been leaving between procedures lately. Thankfully, I am still eating fine right now, and here's hoping that will hold out for another week. At least they are evidently not planning to immediately stop doing treatments entirely, since they did give me that appointment date already.
But yeah, I have no idea wtf is even happening here until hopefully finding out something tomorrow, and it's making me nervous. I am actually at the point where I pretty much trust the team I've been working with so far here, after horrible and generally traumatic experiences dealing with the NHS before. And this is kind of a life-threatening issue they've been treating.
I do of course worry that they're basically just trying to dump me as a patient, since it hasn't been completely solved after 2+ years of them treating it (largely thanks to the delays and assorted fuckups when the damaged esophagus was still more easily fixable). I am also concerned that whatever new people I end up with won't actually try to keep me able to swallow as non-traumatically as possible, and I'll basically end up back in an NHS-level mess. The team I've been dealing with did actually seem to gaf if I could eat--and tried to keep me out of severe pain while they were reaming my throat out on a schedule informed by it staying open or not!--but yeah who knows.
We'll have to see what they have to say tomorrow. And I'm glad I do have some kind of backup, going in to who the hell knows what.