A moment of rest ✨

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A moment of rest ✨
I’m just Ken
imagine u lived in elder scrolls and your khajiit friend was like "ah, come and look upon khajiit's son, a fine warrior that one will be one day, yes?" and he just shows u this
The Dark Shards
In the many universes, only the Watchers know the origins of the dark shards, and they aren’t telling. Each shard’s story is different, and each shard affects the universe it lands in differently. Some tear the fabric of reality. Some create reflections of the past or future. Some pierce two universes, bleeding them together. Some create great power, or great calamities. Some bring great gifts… until they don’t. Survivors of the fallen universes can all tell you one thing the shards have in common: In the end, all of the universes affected will eventually crumble and fall to pieces. Eventually, there is nothing, not even darkness.
https://www.deviantart.com/the-lookouts
The club is now open for members! Bring your coolest or cutest alien design and join a motley crew on a mission to save the universe(s)!
On May 28th, my sister, Edna, turned 31.
Her mental age is about three years old. She loves Winnie the Pooh, Beauty & the Beast, and Sesame Street. Even though the below picture is unconvincing.
Edna and “Cookie.” I think she was trying to play it cool.
My name is Jeanie. I’m Edna’s younger sister. I’m also her guardian and caregiver.
That’s me on the left. (Hey, you never know. After a year of writing a blog about online dating - Jeanie Does the Internet - I’ve come to learn that there are A LOT of fools on the internet.)
ANYWAY, I’m not “doing the internet” anymore. I’m taking care of Edna full-time, after completing my MFA in Writing for Screen & Television at USC.
May 16, 2014. I wanted a picture. Edna wanted breakfast.
In case you’re wondering where our parents are, they’re dead. Our mom died of breast cancer when she was just 33.
Us with mom before she died. (Obviously.)
As for our dad, he peaced-out around the time my mom got sick. His loss - we’re awesome.
Here we are being awesome at the beach. Pushing a wheelchair in the sand? Not so awesome.
In case you’re wondering “What’s wrong?” with my sister - as a stranger once asked me on the street - NOTHING. Yes, Edna has a rare form of epilepsy - Lennox-Gastaut syndrome - but I don’t know if that’s anymore “wrong” than people who don’t have manners.
Basically, Edna was born “normal,” and started having seizures as a baby. They eventually got so bad that they cut off the oxygen to her brain, causing her to be mentally disabled. Or impaired. Or intellectually disabled. Or whatever you want to call it - except “retarded,” because in 2010, President Obama signed Rosa’s Law into effect, replacing that word with “intellectually impaired.”
Which is cool and all, but services for the disabled and the people who care for them are SEVERELY LACKING. Also, there’s a bunch of people working in taxpayer-funded positions who are supposed to help families like us, but don’t. (Big surprise, I know.) They just fill out paperwork (whenever they feel like it) with asinine statements like this:
YUP. I transport my sister down the stairs in her wheelchair, because that is not only safe, but TOTALLY PRACTICAL. Why doesn’t everyone in a wheelchair just take the stairs, for God’s sake? Stop being so lazy, PEOPLE WITHOUT WORKING LEGS!
But, as it says above, Edna’s legs do work. Whether or not she wants them to, is another story.
Edna refusing to go inside.
These are the stairs that I have to carry her up - by myself - on a daily basis. That is, until one of my legs break and both of us are just sitting at the bottom of the stairs, helpless.
For six months, I have begged - BEGGED - the State of California to help my sister, which they are required by law - The Lanterman Act specifically - to do so. But they’ve told me “these things take time” and that I “need to amend my expectations.” (That was said to me when I refused to place Edna at AN ALL-MALE CARE FACILITY. Because yes, that was an “option” that was offered to me.)
Prior to Edna moving in with me in my one-bedroom apartment, she was living with her amazing caregiver, Gaby, back in Tucson, where we went to high school and I did my undergrad. Edna’s reppin’ the Wildcats below.
But back in November, Gaby also died from breast cancer. (FUCK YOU, BREAST CANCER!) This picture was taken a month before she died. She never even told me she was sick because she didn’t want me to worry.
By the way, we were raised by our grandma. Edna and her were very close.
She’s dead, too. Surprise.
She died when I was 20 and Edna was 21. That’s when I became Edna’s legal guardian and Gaby stepped into the picture to help me out with Edna.
So, six months ago, after Gaby died, I moved Edna to California, where I tried to get the folks over at The Frank D. Lanterman Regional Center to help me. I’ve told them I’m worried about our safety - that one of us could get hurt on the stairs - I’ve told them I can’t afford to pay the private babysitters $15/hour because the ones social services sent me who make $9/hour were unreliable (they didn’t show up on time or at all so I could get to school and work), untrustworthy (one of them let Edna go to the bathroom in the kitchen and then took her into the bathroom because “that what I thought I was supposed to do.”)
But the people over at the FLRC don’t return my calls, they don’t file the paperwork on time - and the first caseworker that was assigned to us actually LAUGHED AT my sister when he came to our home to evaluate her. When I reported him to his supervisor, she told me, “That’s just [insert name of said jackass].”
He was one of the two caseworkers that contributed to the report I mentioned above, which also included this:
So let me get this straight - I have to feed, bathe, dress and help Edna in the bathroom and you can’t deduce whether or not she is able to vote? What in the fuck?!
Now I realize I seem angry. And you can bet your balls I am. I’m also sad. Sad for those who don’t have family to stick up from them and who waste away God knows where, monitored by no one. Or monitored by people who physically and sexually assault them.
I’m also sad for the caregivers who are SO EXHAUSTED - trying to take care of their loved ones - while also trying to take care of themselves and battling a system that is supposed to help, but does nothing of the sort. And I know a lot of people give up. They let their dreams, their marriages, their friendships slide. All while trying not to resent the very person you’re doing it all for.
Edna wanted to sit next to me the other day while I was writing. Clearly, she’s not impressed.
Here’s the thing: I REFUSE TO GIVE UP. I’M NOT GIVING UP ON HER OR MYSELF. I’m going to pursue my dreams while taking care of her, AND while ensuring that the people paid to do their jobs ACTUALLY do them.
That’s where you come in. I need you to help me get my story out there. Because I know I’m not alone in this. I want to connect with families who are in similar situations and also show people who have no idea what it’s like to care for someone with a disability (or even a loved one who is sick) that it can be rewarding. Super fucking hard. Exhausting. Painful. Isolating. But, rewarding.
I’m going to get help for my sister - and others. My hope is that by sharing our story, I can bring awareness to the lack of services and help for the disabled.
Thank you,
Jeanie
Facebook: facebook.com/eisforedna
Twitter: @EisforEdna
This made me cry
SIGNAL BOOST
STOP SCROLLING. THIS PERSON ISN’T ASKING FOR MONEY AND THIS POST WON’T MAKE YOU SAD.
This is a really uplifting and inspirational story of a family sticking by each other and making things work despite a whole lot of shit
They just want to find other people in the same position they are, for a sense of community and to feel like they aren’t alone.
I know out of all of you, some of you have followers who are living with and taking care of intellectually or emotionally disabled family members, and this lovely and unbreakable pair of sisters need to find them.
SIGNAL BOOOOOOOOOST
Repost! This story needs told!
Mister Jamison
Igor Sid
Sid’s ArtStation All of his stuff is amazing.
If you are having an anxiety attack or just an overwhelming day please do this.
i hope this helps all of you. ❤️
This really helps
so who’s losing a hand this trilogy
i mean we already lost a han so we’re ¾ of the way there
#so who’s losing a d this trilogy
5/15 mermaid design challenge i made for myself (also happens to be during #mermay)
so far: goldfish, lionfish, leafy sea dragon, bioluminescent deepsea fish, and red octopus
i will post here when another 5 are done, meanwhile you can see each one & WIPs on my twitter if you want
chaos reigns
i made the mod too
Greek Mythology | The Muses
Calliope - Epic Poetry, Urania - Astronomy, Polyhymnia - Hymns, Thalia - Comedy, Clio - History, Erato - Love Poetry, Euterpe - Lyric Poetry, Melpomene - Tragedy, Terpsichore - Dance
The Goddesses | The Lovers | The Constellations
(prints)
SOMEBODY SHARED THIS WITH ME & OUCH IM LAUGHING SO HARD BUT AT THE SAME TIME IM HURT
lok du - https://drawcrowd.com/lokdu - https://www.facebook.com/lok.du - http://www.lofcg.com/index.html
“True story: His Name is Robert Downey Jr.” by Dana Reinhardt
I’m willing to go out on a limb here and guess that most stories of kindness do not begin with drug addicted celebrity bad boys.
Mine does.
His name is Robert Downey Jr.
You’ve probably heard of him. You may or may not be a fan, but I am, and I was in the early 90’s when this story takes place.
It was at a garden party for the ACLU of Southern California. My stepmother was the executive director, which is why I was in attendance without having to pay the $150 fee. It’s not that I don’t support the ACLU, it’s that I was barely twenty and had no money to speak of.
I was escorting my grandmother. There isn’t enough room in this essay to explain to you everything she was, I would need volumes, so for the sake of brevity I will tell you that she was beautiful even in her eighties, vain as the day is long, and whip smart, though her particular sort of intelligence did not encompass recognizing young celebrities.
I pointed out Robert Downey Jr. to her when he arrived, in a gorgeous cream-colored linen suit, with Sarah Jessica Parker on his arm. My grandmother shrugged, far more interested in piling her paper plate with various unidentifiable cheeses cut into cubes. He wasn’t Carey Grant or Gregory Peck. What did she care?
The afternoon’s main honoree was Ron Kovic, whose story of his time in the Vietnam War that had left him confined to a wheelchair had recently been immortalized in the Oliver Stone film Born on the Fourth of July.
I mention the wheelchair because it played an unwitting role in what happened next.
We made our way to our folding chairs in the garden with our paper plates and cubed cheeses and we watched my stepmother give one of her eloquent speeches and a plea for donations, and there must have been a few other people who spoke but I can’t remember who, and then Ron Kovic took the podium, and he was mesmerizing, and when it was all over we stood up to leave, and my grandmother tripped.
We’d been sitting in the front row (nepotism has its privileges) and when she tripped she fell smack into the wheelchair ramp that provided Ron Kovic with access to the stage. I didn’t know that wheelchair ramps have sharp edges, but they do, at least this one did, and it sliced her shin right open.
The volume of blood was staggering.
I’d like to be able to tell you that I raced into action; that I quickly took control of the situation, tending to my grandmother and calling for the ambulance that was so obviously needed, but I didn’t. I sat down and put my head between my knees because I thought I was going to faint. Did I mention the blood?
Luckily, somebody did take control of the situation, and that person was Robert Downey Jr.
He ordered someone to call an ambulance. Another to bring a glass of water. Another to fetch a blanket. He took off his gorgeous linen jacket and he rolled up his sleeves and he grabbed hold of my grandmother’s leg, and then he took that jacket that I’d assumed he’d taken off only to it keep out of the way, and he tied it around her wound. I watched the cream colored linen turn scarlet with her blood.
He told her not to worry. He told her it would be alright. He knew, instinctively, how to speak to her, how to distract her, how to play to her vanity. He held onto her calf and he whistled. He told her how stunning her legs were.
She said to him, to my humiliation: “My granddaughter tells me you’re a famous actor but I’ve never heard of you.”
He stayed with her until the ambulance came and then he walked alongside the stretcher holding her hand and telling her she was breaking his heart by leaving the party so early, just as they were getting to know each other. He waved to her as they closed the doors. “Don’t forget to call me, Silvia,” he said. “We’ll do lunch.”
He was a movie star, after all.
Believe it or not, I hurried into the ambulance without saying a word. I was too embarrassed and too shy to thank him.
We all have things we wish we’d said. Moments we’d like to return to and do differently. Rarely do we get that chance to make up for those times that words failed us. But I did. Many years later.
I should mention here that when Robert Downey Jr. was in prison for being a drug addict (which strikes me as absurd and cruel, but that’s the topic for a different essay), I thought of writing to him. Of reminding him of that day when he was humanity personified. When he was the best of what we each can be. When he was the kindest of strangers.
But I didn’t.
Some fifteen years after that garden party, ten years after my grandmother had died and five since he’d been released from prison, I saw him in a restaurant.
I grew up in Los Angeles where celebrity sightings are commonplace and where I was raised to respect people’s privacy and never bother someone while they’re out having a meal, but on this day I decided to abandon the code of the native Angeleno, and my own shyness, and I approached his table.
I said to him, “I don’t have any idea if you remember this…” and I told him the story.
He remembered.
“I just wanted to thank you,” I said. “And I wanted to tell you that it was simply the kindest act I’ve ever witnessed.”
He stood up and he took both of my hands in his and he looked into my eyes and he said, “You have absolutely no idea how much I needed to hear that today.”
Did I fucking ask to start crying tonight. No. No I did not.
Reblog for those who are unaware of this story ♡
so it was Mermay, apparently! here’s a Jellyboy