Running With EDS

Health & Fitness blog dedicated to spoonies everywhere! I hope this blog helps motivate you to be the best version of yourself you can possibly be. #SpooniesUnite

[micdotcom]

Meet Sara Geurts, the 25-year-old woman with a rare skin condition who’s killing the modeling game

Around the age of 10, Sara Geurts started to notice how her stretchy skin didn’t look like anyone else’s. At first, she wasn’t insecure about it, because, as she told Mic in an interview, she considered it to be “so cool because no other kid could do the things that I could with my skin and joints.”

Soon, Guerts would be diagnosed with Ehlers-Danlos syndrome, a connective tissue disorder that can affect the way collagen is processed. Collagen helps maintain the structure of the human body, in the skin, joints and also in the tissues that support internal organs.

Now 25 years old, Geurts has decided that this disorder isn’t going to stop her from living her life to the fullest. She’s been modeling and photographing herself since she was 22 or 23 as a way to take a stand against the “perfection” the fashion industry tries to promote. Read more. (7/17/2017 10:20 AM)

[runningwitheds]

Interval Running!

One of things I had to give up when diagnosed was running. I ran competitively in high school and just for fun in college. My knees, hips and thighs were really impacted by the high intensity of my workouts. So this week I've adopted interval running and let me tell you this is the best moderation I've tried so far. My method: Scale 1 (slow pace, think cool down) 5 (moderate pace, think arms pumping but not yet running) 10 (your fastest, this can be a sprint or a jog. Go at your own speed) WARM UP at a 1 for 5 mins WALK one telephone pole (TP) length at a 5 RUN two TP's at a 10 And I do this for 20 mins or until I reach 1 1/2 miles. The rest time between running really allowed my body to recover and work a little harder to keep my heart up so that ultimately helping me manage POTS as well. If you do this let me know if it helps you! Remember go at your own pace and moderate it as needed. My body is not your body & vice versa. I hope it works for some if you :)

[runningwitheds]

doctor: so can you tell me about about your general health?

me, getting out my lists of diagnosis's, symptoms and medication: Alright this might take a while

[purplepingupenguins]

Chronic fatigue can fight me… right after this nap…

[alicentflorent]

reblog this post if you're under 25 and suffering from a chronic illness

I want to see how many of us there are

[self-healing]

forgive yourself for the stagnancy that was produced from your depression

[runningwitheds]

My body: Not happy :(

Me: Uh oh, what's wrong? Is there anything I can do to -

My body: NOT HAPPY NOT HAPPY NOTHAPPYNOTHAPPYNOTHAPPY

[eds-stripes-deactivated20231127]

[youngchronicpain]

that fun moment when you lie down after standing for awhile and your spine feels like it is shattered into thousands of pieces

[whatshouldwecallchronicillness]

The look I give people when they disturb my resting time...

[disabilityhealth]

you never realize how often you move your jaw until you’re having a TMJ flareup 

[spoonie-humour]

Being chronically ill and concerned about your weight is wild like… oh u wanna exercise? U can’t. Faint. Pain. Oh so eat healthy then? Nope. Need to eat one hundred salts. Meal replacements? Not enough water.

Like listen body I’m tryna LOOK AFTER U?

[cenkrett]

That chronic illness feel: “Sure, I feel like death, but do I feel enough like death to take another sick day? Is this pain and discomfort sufficiently horrible to justify the problems that staying home would cause? It’s not like I’d feel better at home, so maybe I’ll just stay here and be quietly miserable and pretend to be productive.”

[bria-nichole]

I keep having mini anxiety attacks for no reason whatsoever??? Like I’ve had one or two a day since Thursday. I’ll literally just be sitting down and I can feel it starting. I have a hard time breathing and then my head goes all fuzzy and it feels like I’m going to die but I’m obviously not and I have to pull myself out of it by moving my limbs and moving around and then it goes away but like why??? Why body?? We just chillen watching basketball smh I hate this

[ouchdoesntbegintocoverit]

Dysauto-aliens

I believe all of us Dysautonomia people are actually aliens. We come from a planet with less gravity, so our brains are adjusted to a weaker pull on our circulation. Somehow we made it to this ridiculous planet with its ridiculous gravity and our awesome alien selves have suffered ever since.

[runningwitheds]

I dig it

[nevaehtyler]

This incredibly pure and important 

[userboxer]