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@spooniepenpals
Name: Summer Age: 13 Gender (and pronouns): She/Her Location: United States Illnesses you have: Crps/Rsd, Amps, potential pots Some of your likes, hobbies, etc: listening to music, reading, sewing, baking What you’re looking for in a pen pal: someone that I can relate to and that shares/relates to my fatigue/pain Your contact info (email, tumblr, etc): Tumblr - summerreose
Name: Hunter Age: 22 Gender (and pronouns): her/she Location: Texas Illnesses you have: EDS III, POTS, Depression, Chronic Fatigue, Anxiety, Chronic pain, chronic migraines Some of your likes, hobbies, etc: reading, working out when my joints aren’t yelling at me, cooking when I have the energy, DOGS, coffee What you’re looking for in a pen pal: letters would be so cool, texting, or emails Your contact info (email, tumblr, etc): tumblr is loonyspoony.tumblr.com and email is: [email protected]
Name: Abby
Age: 16 going on 17 (yes this is an intentional Sound of Music reference.)
Illnesses: Postural orthostatic tachycardia syndrome (POTS), chronic migraines, severe anxiety and moderate depression.
Hobbies: Reading, singing, and cooking/baking. I’m also semi-fluent in ASL, and I’m an avid Netflix binge-watcher.
Contact info: [email protected] (would be willing to text/IM if we get along well).
Spoonie Friend
Name: Kalene
Age: 21
Gender (and pronouns): Female, Her/She
Location: Southern USA
Illnesses you have: P.O.T.S., C-PTSD, Major Depressive Disorder, Panic Disorder, Insomnia
Some of your likes, hobbies, etc: I’m a small town girl from Louisiana. I’m a Sr. in college studying family and child studies and minoring in English. Or at least I was until I got too sick. I love my school though and I plan to return when I can. In the mean time I like reading, binge watching Netflix, coloring, and writing.
What you’re looking for in a pen pal: A friend to be a messaging or texting buddy. I have a lot of idle time due to my illness, and it would be nice to have someone to keep me company who understands being sick.
Your contact info (email, tumblr, etc): @kalene777 I will give email/phone number in PM.
Name: Sara
Age: 15
Gender: Female She/Her pronouns
Location: Florida
Illnesses: I consider myself undiagnosed since my symptoms are very extreme. I so far have been told I have IBS and Abdominal Migraine Disorder, but my doctors are starting to say they are very unsure. In a nutshell, I have REALLY bad stomach pain, along with back pain, fatigue and more. I have anxiety, depression, and an eating disorder, along with the symptom that controls my life, perfectionism.
Likes/Hobbies: Psychology, outer space, fashion, acting/directing/writing, music/singing, tv shows and movies, reading, making youtube videos, makeup, art in general, aesthetic, cats, Melanie Martinez, SO MUCH IM SORRY
What I’m looking for in a pen pal: Someone who can understand my humor, is funny and nice, can talk to me about mine and their problems. (Anybody)
Contact Info: Instagram: @crybabi Twitter: @sara_alqanas Snapchat: xxitzsaraxx Email: [email protected] Tumblr: aesaddict
Undiagnosed Chronic Illness Warrior searching for Spoonie Friends
Name: Hayley Age: 29 Gender (and pronouns): She/Her Location: UK Illnesses you have: Undiagnosed, Bladder Problems, Gynae Issues, Bowel Issues, Mild Arthritis, IBS, Muscle Weakness, Fatigue, Anxiety, Depression Some of your likes, hobbies, etc:Thrifting, netflix, crafting, upcycling, you tube, Kat Blaque, Steph Sanjati, ALB, Just Latasha, KaylieSaurusRex, HotforFood, minimalism, zero waste, ASMR, gigs, days out, cultural events, lgbtqa, social justice,feminism, films, theatre, burlesque, markets, playing pool, swimming etc etc. What you’re looking for in a pen pal:Some one with similar interests who I can relate to. I am in a very frustrating position right now and really want to find people who understand my struggle. Your contact info (email, tumblr, etc email is:[email protected], tumblr is bohoyoudidnt.tumblr.com or thechronicminimalist.tumblr also if you are intrested in checking out my instagram its thechronicminimalist and I also have a blog thechronicminimalist.wordpress and am also just starting out on you tube under the same name.
Look forward to hearing from you soon :)
Name: Jay Age: 17 Gender (and pronouns): nb trans guy, he/they Location: Florida Illnesses you have: Ehlers-Danlos syndrome, autonomic dysfunction, gastroparesis, autoimmune mast cell activation disorder, peripheral neuropathy, schizotypal PD. I use a wheelchair most of the time and forearm crutches and leg braces the rest because the neuropathy messes up my legs. Some of your likes, hobbies, etc: working out, sleeping, math, science, astronomy, drawing, reading What you’re looking for in a pen pal: just someone to talk to who understands being a spoonie/disabled. Your contact info (email, tumblr, etc): main blog: @anarcho-cripple, transition blog: @vitamintdeficiency
Name: Emily Age: 20 (21 in a few weeks) Gender (and pronouns): I am a cis female and I use she her pronouns Location: Blackpool, England, UK Illnesses you have: Ehlers Danlos Syndrome type three, some kind of IBS-y thing, asthma, PoTs. Some of your likes, hobbies, etc: I am an avid Marval fan, Doctor Who, Sherlock, The Mortal Instruments. I am a carer for physically disabled people and I have just finished my first year of my Human Bioscience degree. What you’re looking for in a pen pal: Someone who I can ramble on to! Your contact info (email, tumblr, etc): Tumblr: chronicallyillandchronicallycute.tumblr.com Drop me a message and we’ll exchange addresses! I don’t mind writing first- as I said, I just finished uni so I have time on my hands.
Name: Eli Age: 20 Gender (and pronouns): Agender, he/him Location: USA, eastern coast Illnesses you have: Autism (although I don’t see that as an illness, I feel it’s relevant), depression and PTSD, chronic fatigue, migraines, possible dissociative (DID? diagnosis pending) and/or psychotic disorder. Some of your likes, hobbies, etc: Science, sci-fi and fiction, books, writing… Also cooking, diy stuff, and making costumes. What you’re looking for in a pen pal: Someone who understands what the term “low spoons” means, which probably means all y'all on here. Preferably someone who also has some form of chronic fatigue, be it standalone or as a symptom of another condition. Ah, and someone who won’t be freaked out by talking about dissociative/psychotic aspects–hearing voices, for example. Your contact info (email, tumblr, etc): Email: [email protected] or chronautist.tumblr.com. Depending on how we get along, I’d love to talk over IM or text as well.
Name: Selvie Age: 20-going-on-21 Gender (and pronouns): they/them Location: USA Illnesses you have: chronic depression and PTSD Some of your likes, hobbies, etc: I enjoy writing, as I aspire to be an author, and reading as well as anime and video games. I am a cosplayer and attend conventions every year. Harry Potter is love Harry Potter is life. I collect dolls, ranging from Barbie, Monster High, right down to ball-jointed dolls. I do a minimal amount of self taught photography with my Monster High dolls as subjects. What you’re looking for in a pen pal: Someone between the ages of 18-28, though older is fine. I’d love to have someone that I can write letters with back and forth and eventually send each other packages of gifts, as I enjoy sending them and receiving them! I’d love to have someone that I can just kick back and write to, skype with, etc. Your contact info (email, tumblr, etc): Tumblr: thelustygiraffe Email: [email protected]
Name: Amy. Age: 25 Gender (and pronouns): Female (she/her) Location: Leicester, UK. Illnesses you have: Scoliosis, Marfans Syndrome, Hypermobility, Reduced lung function, Some of your likes, hobbies, etc: I like to make things, but mainly sewing and knitting, I have pet rats who I love more than most humans, and I enjoy baking and binge-watching crime shows and nordic noir tv with a blanket and whatever I’ve baked recently. What you’re looking for in a pen pal: Just conversation would be great, about anything. My boyfriend has cancer and I’m his carer, along with my medical problems, meaning I rarely leave the house. It’s very isolating and people to speak with would be great. Your contact info (email, tumblr, etc): iwant-tobelieve.tumblr.com
Jes
- Name: Jes - Age: 26 - Gender: Female - Location: SC, USA - Illnesses you have: Cystic Fibrosis, Asthma, Bipolar Disorder, Depression - Some of your likes, hobbies, etc: I like to draw, paint, play video games, hang out with my dogs and my old cat, sleep and watch The Game Show Network like an old person (or so my bf calls me, lol) - What you’re looking for in a pen pal: Someone to talk to about life, diseases, doctors visits, silly questions they ask you, pets, anything really! I would love to be able to send little gifts or handmade things with notes in the mail, but if online is all you prefer that is fine too! I like sending little things that show that I’m thinking of someone and if there is something you love like cats or dragonflies I will more than likely send you things that relate to those things you love. It’s just one of those things that I really enjoy doing for those in my life. I hope to make a friend since I don’t have very many, and it would also be nice to have someone to relate to the doctors visits, the days where it’s harder to get out of bed, etc. Tumblr: @Jes-LO | @Adeemyx Instagram: @Adeemyx Steam: Adeemyx
Name: Toria
Age: 21
Gender (and pronouns): They/them pronouns
Location: UK (Midlands)
Illnesses you have: Limb length discrepancy, scoliosis, muscle/bone development problems, IBS, and currently waiting for tests to determine what is making me dizzy and very fatigued and in pain all the time.
Some of your likes, hobbies, etc: reading, acting (theatre mainly), climbing/walking (when I can manage)
What you’re looking for in a pen pal: anyone to talk to, to relate to. So we can understand each other in this lonely spoonie world. It can be very unsettling to feel like you’re the only one.
Your contact info (email, tumblr, etc): [email protected] countyourluckyspoons.tumblr.com
Name: Erica
Age: 16
Gender (and pronouns): nonbinary (she/him/alien/ I don’t care)
Location: Southern California
Illnesses you have: Granulomatosis with polyangiitis (GPA), Hyperpituitarism
Some of your likes, hobbies, etc: I like Steven Universe, cooking, ???
What you’re looking for in a pen pal: just someone to chat with, you don’t have to have the same disease as me (mostly bc it’s a rare disease) I just want someone to talk to so I don’t feel like the only one with a chronic illness. Just need a friend I can relate to!
Your contact info (email, tumblr, etc): [email protected] /tumblr: thedeadcrossing
Expanding my penpals!
Name: Just call me Cat :) Age: 22 Gender: Female Location: California Illnesses I have: I have Crohn’s Disease & UC, IBS, Anxiety, Depression, Endometriosis, Chronic Pelvic Pain, High Functioning Autism, RA in every joint of my body. ADHD Some of my likes,hobbies: I am a photographer, antique photo collector, Bollywood film lover and horse owner. What you’re looking for in a penpal: over 18 please! I love hand writing letters back and forth to people about my life and new things happening everyday (keeping it positive ) looking to expand my penpals :)
Name: Isaac Age: 21 Gender (and pronouns): agender, they/them Location: Illinois, USA Illnesses you have:
Ehlers-Danlos Syndrome Hypermobility/Type 3
Autism, ADHD
AVPD, OCPD, BPD, Psychosis
Complex PTSD
Anxiety, OCD, Panic Disorder
Some of your likes, hobbies, etc:
soft animals especially bunnies
harry potter
sewing weighted blankets
architecture/mapping/building things/architectural drafting
What you’re looking for in a pen pal:
snail mail / packages / email / tumblr
really would love to talk to anyone who has EDS since i’m pretty new to it
it probably will take me several days to reply because spoons and executive dysfunction
Your contact info (email, tumblr, etc):
isaacfloof.tumblr.com
and then if you contact there i can give more details and stuff!
Name: Ollie Age: 18 Gender (and pronouns): Femme nonbinary (xy/xyr or they/them) Location: VT, USA Illnesses you have: IBS, depression, anxiety, panic disorder, autism, possible bpd and/or ppd, possible psychotic/schizophrenic disorder, possible tic disorder, (currently) undiagnosed chronic pain and fatigue, Some of your likes, hobbies, etc: I like girls, music, knitting, witchcraft, reading (currently really loving Pride and Prejudice), watching TV, going to my local dog park. What you’re looking for in a pen pal: A friend, someone who (at least sort of) understands what I’m going through. Snail mail, texting, someone to send packages to Your contact info (email, tumblr, etc): ollie-the-alien.tumblr.com (I’d prefer not to give out my email right off the bat for safety reasons)