ez

── ⋆⋅☆⋅⋆ ── 🧷🥀🥄♾️🎧🖤 they/any INFJ-T queer spoonie height: 5’5 tone tags appreciated:) 🧷🥀🥄♾️🎧🖤 ── ⋆⋅☆⋅⋆ ──

[t0rt1-4ng3l]

Intro post💗

𝓗𝓮𝓵𝓵𝓸 𝓪𝓷𝓭 𝔀𝓮𝓵𝓬𝓸𝓶𝓮! 

✩━━━━━━✧━━━━━━✩

ez / ezzie they/any eastern time zone INFJ-T nonbinary monoflexible greyrose:)5’5 i’m italian, portuguese, french, spanish and scottish diagnosed with: hyperlexia, POTS, sensory processing disorder, dyspraxia, ADHD-C, ASD, anxiety, and emetephobia looking into: ARFID, schizopec and HEDS i’m semiverbal and an aac user i may seem blunt at times, but i always mean well. im almost always available.  dms open.  asks very open, i’m bored all the time lol i don’t allow: racism, sexism, transphobia, homophobia, ableism, sexualization, xenophobia, bullying, hate, judgement or harassment of any kind. just don’t be a bigot basically.  no dni but the block button is my best friend. so as long as you are a respectful good(ish) person then we’re good. favorites: color: grey, green, dark red, purple genre: rock, punk, indie, metal, nu metal, bedroom pop movies: but i’m a cheerleader, mean girls, tangled, the lorax, sawwwwwwwwwwwwww shows: GREYS ANATOMYYYYYYYYyyyyyyYyyYyyYyy animals: penguins, foxes, sharks, frogs food: potatoes heheh drink: water fun facts: i need glasses but i don’t wear them and i don’t even know where they are. my first special interest started when i was 1.5 years old and lasted until i was 9. i'm moderate-high support needs level 2 autism, but wasn't diagnosed until age 14. i could read before i could talk. i have an iq of 157. im a leo sun, aries moon and libra rising (which is weird becuase im a very hardcore introvert lol. ) i love space, science, animals, the ocean, music, watching tv, art, poetry, eating ice cubes, my bed, my stuffed animal fig and my rabbit nimbus. no he is not named after harry potter i’ve actually never seen harry potter he’s named after cumulonimbus cloud becuase he has white fur and blue eyes. ive also never seen star wars (yes i know so uncultured of me) but i actually did try to watch it recently and i could get past the first ten minutes because of the flashing lights from the laser gun thingys gave me a meltdown. i hate: bigots, a lot of foods, yorkie dogs becuase they scare the fufufuufck out of me for some reason, people who fake disorders,numbers becuase my brain likes to flip flop them all around,yelling and making people mad. i’m scared of: yorkie dogs, being left, bodily functions that involve food coming out of you before they even got to get digested, cranes (not the bird like the construction vehicle), porta potty’s, ipad baby’s, and other things i will not mention becuase they are slightly too uhm intense.

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☾❖☾❖☾❖☾❖☾❖☾❖

✧･ﾟ: ✧:

[spoonie-movement]

What's a spoonie, anyway? I get asked this question a lot. I learned about the concept of Spoon Theory from chronically ill creators on social media. The term was originally coined by Christine Miserandino to describe her experience of living with chronic illness. She gathered spoons and used them as a metaphor for units of energy a person will have on a given day to do activities like get dressed, go to work, cook a meal, do laundry, run errands, etc. She said an average person in good health can expect to get through the day without running out of spoons if each activity just takes one spoon of energy. If someone runs out of spoons they have no choice but to rest until they restore some spoons. Someone with a chronic illness will likely start their day with fewer spoons, and basic daily tasks may take more spoons than they will for the average person. Spoon Theory and the nickname ‘spoonie’ have become popular with many people living with chronic illness and invisible disabilities. Some prefer to use the analogy of having a battery that is constantly low, doesn’t recharge well, or drains quickly. When I saw people identifying as spoonies online, I realised that was me too, and at first it felt uncomfortable. It felt like if I accepted that term, it would become my identity, and I would have to accept a life sentence of energy impairment. But eventually I realised it’s just a paradigm to help me understand and describe my experience. And with dynamic disabilities such as mine, each day, week or year can be different. I began to understand what drains my energy, and what preserves or restores my energy. Once I had more of a handle around energy budgeting, I eventually found that I had a greater capacity to do more of what I loved. Do you relate to Spoon Theory or consider yourself a spoonie? If you prefer other ways to describe your experience I’d love to know!

[autisticdreamdrop]

Nibble with our AAC

device / tablet ⌨️

[autisticdreamdrop]

it looks worse irl :(( we need to get a new screen.. we have to see if there's anyone in our city that fixes screens..

[clownrecess]

Benjamin with my AAC device!

(please dont reupload or use any of my photos)

[autisticdreamdrop]

Cheese (they/it/bun), one of our emotional support companions with our new tablet on our AAC app!!

[aactailmon]

AAC Awareness month Challenge Day 2: Decorations

These are old photos but my device still looks the same. I like to decorate it with stickers the most, but I also want some pins for the lanyard too.

[All challenge prompts]

[t0rt1-4ng3l]

someone say to me "so lucky am cisautistic" am confused.... am nonbinary not cisgender and autism is not lucky at all

[trans-autism]

Us with our AAC device Creamsicle out in public this morning! Her first outing

continuing the trend of people showing off their machines out in public,,, -Jk

[callahan----callahan-again]

everyone say fuck yeah for public toilets with motion sensors to flush. everyone say fuck yeah for motion activated sinks, soap dispensers, paper towel dispensers, and air dryers. everyone say fuck yeah for doors you can open with your foot. everyone say fuck yeah for ramps. for wheelchair accessible areas. for parking spots for disabled folks. for the spikes you can put on wheelchair handles. for fun colored crutches. for sparkly hearing aids. for every single live in assistant!! for noise canceling headphones with stickers on them and aac devices with tons of voices and the buttons that open doors and fidget toys and chewing neckalces and every single daily/typical or fun disability aid!!! everyone give every single public disability aid a fuck yeah!!!! everyone give every single customizable disability aid a fuck yeah!!!!

[goblin-bean]

I'm starting to get really fucking sick of this whole 'autism doesn't have a look' crowd for Barbie's new autistic doll. Like yeah autism is an invisible disability for SOME. My sunflower lanyard, communication cards, fidget, headphones, AAC on my phone and constant stimming in public mean people clock it fkn immediately especially when I'm on my own. I have a look. My clothing, my assistive devices, my stimming, the way I walk and talk.

And the thing is everyone who seems to have a major problem with autistic Barbie are people who don't use or need these items. They go on and on about autism not having a look and all Barbie's can be autistic, and it should just be an accessory pack. Which utterly ignores the fact MSN/HSN autistics CAN have a look and completely removes the idea that sure people can pretend dolls are autistic but having one that IS in universe autistic is so fucking different.

It really just feels like whataboutmeism that's really fkn gross and once again like people are talking over the people who this Barbie represents.

[postmanic]

happy y'all wanna hear about my AAC :3

This is Rotom, my AAC device!

(image ID here)

He's getting keyguards soon which I am really excited for since I accidentally press the wrong button a lot. I use a 6x7 TouchChat grid that I made myself!

Rotom goes with me everywhere I go. He has a shoulder strap which makes it really convenient to use when I go out in public, since Rotom is always attached to me lol.

Rotom is currently my primary AAC method! When I was a kid I only used low tech (PECS board, drawing, writing), so I'm still getting used to using a high tech device but I like it a lot. One problem I have is battery life, so I'm thinking I should get a portable charger for him.

I use AAC daily and am a part-time user. I talk with my mouth when I feel like it and am comfortable and able to, I just get frustrated with mouth words easily because of my speech disorder + stutter and my words aren't always clear. Using AAC helps people understand me better if they are having trouble understanding what I'm trying to say with my mouth. Often I also just wake up not able to talk at all so I use AAC a lot in the mornings.

AAC has also been really super awesome for when I am overwhelmed. I used to just not be able to communicate at all for hours and hours when I got overwhelmed (I cannot speak when I am overwhelmed), now for the most part I have a way to communicate even when I am overwhelmed!! I do have catatonic shutdowns where I cannot move to use the AAC tablet though, so we've been considering an etran board or another eye tracking option for shutdowns.

Overall Rotom REALLY helps me and I really like it a lot!

[fisharpeggio]

Disability pride month or not, I want to tell all of my disabled friends from across the interface:

Buy that mobility aid.

Get the brace.

Continue to stand up to your doctors because you deserve to be listened to and WE WILL see a day where we don't have to do that anymore.

High support needs disabled people are both an asset and a priority.

POC disabled people are important to us.

Decorate your health aids/organisers (bedazzle that mobility aid, put a sticker on your AAC device, attach a keychain to your crash cart, etc.)

You CAN bring your aids out in public: you are not an embarrassment.

DO NOT APOLOGISE FOR YOUR BEING YOURSELF.

Not everything will apply to you, but it's important to acknowledge that so you have space for when something does (take this as you will).

Clock your friends', relatives', lover(s') AND your own (internalised) ableism.

Your hyperfixations are just as valid and interesting as everyone else's.

Disability. Accommodations.

You are to be treasured, not traded for.

And lastly: FUCK ICE and those pigs who detained an autistic woman for not complying FAST ENOUGH with them, because needing to have time to process and catch up is apparently a criminal offence. I know it feels like this never ends, but nothing is forever. We can make progress and KEEP it. There's work to be done, but we're doing it—just because I say that doesn't mean we stop now and pray: we keep going.

Please, abled folks, keep us in the conversation as we're the only minority that you can and likely will inevitably join. Help us make waves so YOU can have a better future, too.

[t0rt1-4ng3l]

does anyone else have a ridiculous amount of gender envy towards gerard

[this-is-ableism]

Heard someone just a few minutes ago say that if you have a chronic illness, you aren't automatically disabled because you can still do all the things an abled person could typically. I don't have a chronic illness and I BARELY have a physical disability (nerve damage), but I feel like saying that "just because something is always debilitating to do doesn't mean you're disabled" has some sort of... undertones. I can, at an angle, see where this person may be coming from, but it also feels like a bad take to functionally say "you can't say you're disabled if you can act abled".

this is ableism.

[t0rt1-4ng3l]

you guys can name me. need name. current name is connected to my dead middle name if that's a thing and dont like it anymore so uhm yea comment a name and might pick it. and am super indesisve and won't pick on my own so need your guys help also dont make it girl name otherwise it won't be picked. okay bye

[t0rt1-4ng3l]

at what point coukd consider self nonspeaking or functionally nonspeaking/nonverbal? am semispeaking and haven't spoke in 2 weeks. usuakky words slowly coming back by now and i haven't been able to say anything at all i can't even hum or anything my mouth is just not working no matter how hard i try my words are disorganized in my head and scramble up and stutter and slur together just become phonic soup. i can whisper mouth my vocal stims that are noises like psshh pssh pssh noise and make lot noises to communicate but when try to turn them into words it won't work at all. speech already never was able to communicate my needs solely relied on scripting and echolalia and my mouth words are incredible expensive and would disapear for days completely but usuakky they start coming back a but by now. feel like have way more energy though feel more natural. i wish i could use aac full time i want real aac device but im just stuck with no way to communicate at all all time. mama think witholfing aac will make more likely to talk but alternative to aac isn't speaking, it's being no able to communicate needs or wants or feelings or preferences or opinions or connect with family. dont want to be silent all the time. want a voice. speaking makes me have more meltdowns anyway even when is available. ugh thus is hard wish was fully verbal and not disabled.

?

after 6 months

after a year

after 5 years

5-10 years

other (comment)

only can be nonspeaking if never ever talk before

in 2-4 years

over 10 years

Voting ended onFeb 2