#actually semispeaking

[dreamdropdollop]

old communication cards we made

want to make and redo our communication cards. did this 2 card sets with Dream, but we want to make other communication cards. we're working on it. have the art ability, a laminator and our mum has a printer so we could work on these. we're redoing them with Cheese or something we're working on Cheese for the cards.

want to use more nonverbal communication in case our devices to communicate dies or something. low tech communication boards and cards. we have a couple pairs of communication cards, and we want to use them! we have been working in our book so we need to go back working communication cards.. we might work on questions for the cards aswell.. like asking for water or something.. wdk yet

[nemo-bros]

want to talk about my aac use a little bit

I'm semiverbal/semispeaking so part of the time I am able to use mouth words but it is still really difficult

(not just to get the words out of my mouth but also to get them out the right way, right order, right pronounce, not to squished together or to slow, etc... i also have lots of pauses and gestures that interrupt my speech which cuts sentences short or just disrupts the flow... there almost never a time when I fully communicate the idea in my head the way I want without using aac)

i use aac part of the time. i do have aac apps, but only have access to a phone and not other device like tablet

this means the screen is not really big enough and I cannot access the app in a way that is easy enough to be useful for me

i also have text to speech on my phone because I am able to write (especially if I have spell check)

but if I am stimming to much to type or the words in my brain are still not in the right order then text to speech can be difficult

this all leads me to my point which is that i use a lot of low tech and no tech aac

mostly core boards, small flipbooks, printed keyboards/letterboards, communication cards, gestures, noises, and echolalia

lots of the time i also just stay wordless, sometimes the aac is too hard or I cant answer the question or the person I need to tell will not accept aac as communication

lots of people think of these resources as only for kids, only for extremely severe/profound disabilities, less valid, non communicative, and lots of other things.

i hope these ideas will be less someday and other people will respect my aac use as valid when I want to share what I have to say

[cpunkwitch]

Anyway uh

Is anyone able to recommend some good (preferably free) AAC apps for Android/that might be in the Google Play store?

The old one we had only had one voice and we couldn't change it, we could only change the text we chose but the words still came out English with the same voice every time and it bothered us to the point we deleted it

We'd like to be able to speak French with our AAC as well as English, at least.

If there are any good AAC apps we could try it would help so much

Honestly would save so much of our social battery and spoons

[nebby-aac-blog]

words can use that not nonverbal nonspeaking alter or semiverbal semispeaking alter :

quiet alter

alter does not talk

alter does not speak

silent alter

silenced alter

wordless alter

mute alter

voiceless alter

there a lots different words can use that not for people who all time not able mouth talk or all time find hard mouth talk.

I semiverbal and I have DID am system. I see lots people use wrong words so I give other words can use. not like when people talk over nonverbal nonspeaking and semiverbal semispeaking people.

[mogai-reblog]

Wdym by this? /gq

mean exactly what said

semiverbal not temporary thing. cant "go semiverbal". Either semiverbal or not.

nonverbal not temporary thing. cant "go nonverbal". Either nonverbal or not

[clownpuppysposts]

What is the difference between speech difficulties from Autism and speech difficulties from Dyspraxia?

(Yes I could google this but I probably wouldn't understand the answer)

[devouredead]

Thinking about childhood today

Thinking about when I started school. And kids would talk to me. And I just... would not speak. Just did not have words. They said I was cold or rude. Eventually called me a ghost. Treated me as a non-person. Would not talk to adults, either. Not teachers, not doctors.

Thinking about how that continued on forever. They ask me a question, I could show them an answer, if they asked what book or what animal or anything, I'd show them but that's 'rude.'

Thinking about how I could not speak to my parents, only pushed out words to them when they threatened me. And how that continued on forever.

I struggle to speak without very specific scripts. I can write. Not with more social knowledge but at least words come, I have so many words in my brain. I use AAC pretty well. But I never had words for my parents or my grandparents, for my cousins or aunts or uncles. They grew old and away or passed away and I never had 'conversations' with them that weren't 'hi how are you okay bye' (a script) or echoes that they half-way understood. My father used to frequently tell me he didn't know who I was because I didn't speak to him. Of course, he didn't want scripts and was annoyed by echoes. He wouldn't look at the art I made or read my writing or watch movies or shows or share music with me. He refused every other way I had to communicate. My dad would not read the (literal) writing on the wall so... in the end he was right. He never did know who I was. My siblings and I echo (echolalia) back and forth to each other and that is our language, but as speech therapists will account for, echo isn't considered 'independently speaking' which I guess is their way of saying 'not speaking the right way,' which is to say, 'so that the outside understands.' Which is a shame because I love so many things I have many echoes for many occasions! They are just not original phrases or thoughts, just adopted reactions because as it's been made painfully clear to me, I will never have my own. As if I am the impression of all that touches me but nothing else. If people see me echo or script, they assume I talk with no difficulty. But I can't, and when they inevitably experience that, they get angry and think I'm rude/cold/hateful. And they take it out on me and are congratulated for it because I'm so hateful for not speaking. I get tired. Tired of living for abuse. Even other people with speech difficulties, because guess what? They don't magically understand, either, and I don't have a way to explain because of the assumptions of how being semiverbal works, at least for me. The assumption is always, somehow, that you speak typically except for episodes of speech loss-which is bizarre to me, because I (and the majority of other developmentally delayed and intellectually disabled autistics I've known in the flesh) who have been semiverbal definitely do not communicate like that. But then, I guess that makes sense that people don't know that, because we're not really among the autistic people who typically 'get out much.' Why is speaking so hard? Why can't I understand it? Why can't I do it right? How come I know where to put italics but can't make the people bark sound? I've had decades to be at least as good as a middle schooler so why can't I do it? Even if I try to talk to friends when they repeat back to me I realize that I haven't said enough to be understood or to make sense.

Why am I so bad at this? It's rhetorical. Of course I know it's my autism. It just affects me so bad that I can't make new friends or ask necessary questions or to protect myself. I just stare at people I'd love to talk to and reach out to but we can be two feet apart and oceans away at the same time.

Cuz we'll never talk, and that's just the truth.

My experience of semi-verbal/semi-speaking is all the time, not episodic speech loss.

While I have empathy for those with episodic speech loss and nonspeaking people, our experiences are not the same. Please stop assuming all semi-speaking people suffer episodic speech loss but otherwise have normal speech. You're erasing people like me, thanks.

-

I'm very much for everyone staying in their respective lanes! All our experiences should be respected and should have their space. For that reason...

Verbal/typically speaking people

People who experience speech loss episodes/selective mutism/anxiety related speech loss/speech difficulty is not a permanent state of being

Nonverbal/nonspeaking people

DNI with this post please! It's not for you-

[dreamdropdollop]

communication with AAC (AKA augmentative and alternative communication, it's any form of nonverbal communication) because of my semiverbalness... it's is important, but when you only have depressing things to day.. i don't know if i should communicate them in the first place.. i'm so negative... - Comet

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