#chronicalillness

[katandhercgbojac]

When your chronic illness is acting up and literally every bone in your body hurts and you’re throwing up from the pain but no one believes you or cares so you’re stuck somewhere you don’t want to be for hours. I’m in so much pain right now. I’m sorry for complaining but you guys are the only ones who listen when I say stuff like this.

[numbepilepticlife]

Do your parents and family ever brush off your medical concerns?

Like my legs and arms are feeling increasingly numb, I can’t walk right and I’m using a wheelchair, but yes grandma, I’m sure all I need is a bit of sunshine and definitely not to see a doctor.

[numbepilepticlife]

Stop focusing on your seizures

Stop focusing on your seizures and stop complaining- live a little!

The well meaning and ever frustrating words of a stranger. Fuck you Karen I’m not in the mood and here’s why.

Currently my seizures are my life. Almost as if a major medical condition would somehow impact your life and consume it. I am not some preppy bitch who looks on the non-existant bright side of life- I seize the majority of my day, it’s scary, it’s dangerous, and I worry.

I don’t have time to ‘live a little’ because I’m living with constant worry that I might have a seizure right now. I’m stacking pillows and cushions around sharp corners, I’m constantly being watched by my exhausted mother, I’m going to doctors and arguing with them and I’m trying to not break down and cry with the realisation that this may kill me one day.

It screws with my head and consumes my thoughts. I doubt myself and think I’m just making it up because doctors didn’t believe me. Then I’m brought out of my spiraling thoughts to a bleeding head and my crying mother, to realise that who the fuck would smash their head if they had a choice.

I focus on it because it’s my life now. I think about how my friends are at uni or getting full time jobs, and I’m at home drooling on my bed while I can’t breathe because I’m seizing.

I wish I didn’t think about it all the time, but if I’m not seizing I feel the last one I had on my skull and bones.

Fuck you Karen, this is how I live.

[livingwithanillness2019]

Me and my favourite nurse who looks after weekly ❤️

[wolobak]

OK !! I don't look sick ... . . . . . . . . . . #chronicallyill #chronicalillness #hypopara #hypoparabh #hypoparathyroidism #hypopara2017 #moodaf #shittymood

[cystic5roses]