#dysautonomia problems

[1spoonatatime]

You know you have dysautonomia when you’re freezing inside and wear fingerless gloves, but you take a walk outside when it’s 40 degrees Fahrenheit and you have to cool off when you get home because you got hot. Having a body that properly controls your temperature? Not me.

[potsiespoons]

[Drawing is a three panel comic. In the first panel, a stick figure guy is playing a video game when someone calls, "CHANDLER!" In the second panel, a stick figure girl is holding a dish of food above her head. She says, "Come--taste and see that the Lord is good!" In the third panel she has lowered the dish and says, "Also please tell me if these potatoes need more salt because I can't tell."] Things I'm not allowed to do anymore: Taste things to see if they need more salt. 🤷🏻‍♀️

[chronicallypawsome]

[ehlers-danloscircus]

Dysautonomia things

When you thought you salted your food enough but that first bite proves you horribly underestimated

[thischroniclife]

When I’m nearly at the station and I think I’m in the clear...

And then my body’s like...

“But we’re so close to getting home! You can sit down on the train!”

And that’s how I ended up being given an ECG in a train station first aid office.

[whimsyswastry]

Personal post to revisit when I need a reminder why going to NYC to see a Broadway show is a bad idea:

Financial:

We just bought a car.

The tickets are a minimum of $200, but I’d want better seats.

Ticket price doesn’t include the round trip train tickets or gas.

Nor does it include the hotel room we’d need.

Or the food!

Health:

Speaking of food, my restrictions make it very difficult to buy restaurant meals or packaged snacks without triggering a flare or hypertensive crisis.

Muscle spasms start after 40 minutes of travel. I’d need to be doped to the gills to make it the 5-hour, one way trip. And that’s if we don’t meet traffic.

Anxiety (fear of spasms, or crisis, or any recurring or new symptom, really) any time I’m outside the house essentially makes enjoying anything impossible.

Recovery time would be literal weeks.

Logistical:

We’ve never been to New York before.

Getting lost?

Where to park?

How much of the city is handicap accessible?

Does the theater have handicap parking?

If we took to the train, we’d have to leave the new car overnight.

Daisy doesn’t let anyone take care of her that isn’t us. At the vet, she digs in the cage until she rips her nails out. When we’ve tried dog sitters, she’ll let them feed her, but won’t let them hook her up to her leash or put on a harness.

Practical:

Partner isn’t a fan of musicals.

Seeing a show for a specific actor is never a good idea because what if they’re sick? Or call out? Or have an emergency? You did all this for nothing.

Daisy’s separation anxiety would make my anxiety worse.

The medication I’d need to make the trip would make me extremely sleepy and possibly even need to sleep.

Partner goes to bed at 7:30, which is the time the show starts.

Unless we see a matinee, but then Partner would need to take time off, making it even more difficult to pay for.

[figinthesky]

I have 2 Walmart brand pizzas this week and now my tummy is super bloated and painful. She's angry with me

[icy-hot-slut]

I’ve discovered the genius of putting my heating pad under my blankets while I get ready for bed so I don’t have to try and curl my entire body under it while I’m struggling to produce any of my own body heat