#fibro life

[a-blessing-of-ravens]

Uneven pavement is ableist.

That's it. That's the entire post

[spookietrex]

Woke up at a 9/10 today and nothing is helping. My stupid brain started playing "Sucker For Pain" ironically and I don't know whether to laugh or cry.

[mosscaller]

[poppy5991]

Fibromyalgia is so bizarre because there is a ton of active stuff I can do without a flare up:

Rock climbing, tennis, walking around a city all day

But then it rains and the temperature slightly changes, and my body just goes…you’re done. You’re done. Lie on the floor and suffer. We can’t handle this.

Me and my friend with lupus when the weather makes us flare simultaneously:

[another-suffering-artist]

SPOONIE THINGS NO ONE TALKS ABOUT PART 8

How difficult planning is.

I mean seriously, when family is holding a special event and they ask a week ahead of time to RSVP, you just feel this sinking feeling knowing that you're either going to feel like crap and have to cancel last minute, start feeling bad half way through, or in the unlikely event that you're able to make it through the party, the next day will be merciless.

There's no planning around your illness. You either push past the pain on a bad day to make it through the plans, or suffer heavily for it later.

[faeriesaurus]

so i'm looking for a medical alert bracelet and.....

[fuji09]

Today has been a bad pain day and I really hope when I wake up tomorrow morning the pain will be at least tolerable.

[shesmorethanfibro]

May 12th, National Fibromyalgia Awareness Day. 🦋⠀

I was 13 when my journey with fibromyalgia began. This year it will make it 8 years since. I remember hearing from doctors, “you’re young, you shouldn’t be in pain” well, that didn’t stop it from happening anyway right? Fibromyalgia affects more than 3 million people in the US alone per year. I was cheerleading with fibromyalgia. I was going to dances with fibromyalgia. I was going to school with fibromyalgia, going to the mall, laughing, smiling, all in pain and feeling so much every single day. And there are days where I can’t even get out of bed. Or I cry when i walk a little too much. Or i get a sharp pain that has me hunching over in the middle of a store. Or when my insomnia and my chronic fatigue are both bad at the same time and i hallucinate. Just because people with fibromyalgia smile, doesn’t mean that we are not in pain. That doesn’t mean that we don’t deserve to have a cure. ⠀

I had different ideas for this post. A little positive. But I don’t have that in me. Because I am just so mad at the world. I’ve been having a really hard time with this recently. Even after 8 years for me, acceptance is hard to find. Because we do not deserve this. I don’t want to be in pain anymore. I don’t want to feel exhausted all the time. I don’t want to also have insomnia. I don’t want to deal with the symptoms my body likes to randomly throw at me like fibro fog or sensitivity to weather, whatever weird shoulder arm thing my body has decided to hit me with, numbness, skin sensitivity, light, noise sensitivity, flares, and so much more. I want to be able to one day say that I used to have fibromyalgia. I know we all do.

From a monologue I wrote for one of my acting classes, “And I feel like I’m never gonna be truly okay, because I am going to always be waiting to wake up from that nightmare. And I never will. I don’t deserve you. You do not deserve me. You don’t deserve to take my dreams, and my hope, my days, my laughter, my happiness, my life. But if you want to there’s not much I can really do about it to either succumb and let you…or try to survive through you and in spite of you. But that doesn’t mean it doesn’t hurt. But with that being said, I just want you to know… I am here. I am here fighting to have and keep those things everyday in spite of you. Good days and bad. You may win the battles, but I will win the war, I promise you that. And I will never give you the satisfaction to say otherwise. You may beat me down, but you will not break me. Because that is what I deserve.”

I find it so hard to even see myself dealing with one more day with fibromyalgia. But I’ve made 8 years. And no matter how hard it gets, I can say that I’m surviving it. And that’s something fibro will never take from us. That we are survivors, we are WARRIORS. And by raising awareness, we can get actual helping medication, we can get a cure. Because we deserve that. So I’m asking you guys to stand up, and wear purple, share, like, comment, whatever because we with fibromyalgia and chronic illnesses do not deserve this. And maybe if we all raise awareness for it that we won’t have to deal with this forever. Cause I know for a fact us warriors are SO strong. But that doesn’t mean that strong people don’t get tired. So let’s all please raise awareness so that we can come up from this nightmare one day. Thank you. 💜