Hi, my name is Elizabeth and I am advocating for additional genetic information protections for BRCA mutation carriers and others holding genetic mutations that could be discriminated against by insurance companies.
Here is the link for the petition: https://www.change.org/Protecting_genetic_information
I encourage you to sign and share it.
I have a strong family history of breast cancer so I decided when I was 35 to get genetic testing. I found out that I hold the BRCA2 mutation and was never informed by anyone that I would no longer be able to get life insurance, disability insurance, or long-term care insurance because of this pre-existing condition. Insurance carriers are allowed to discriminate and the federal GINA law does not provide protections against this. It has come to my attention that Florida is the first state pioneering these protections. I have included the link from facing our risk of cancer and powered (FORCE) which details in layman's terms the legislation.
https://www.facingourrisk.org/advocacy/advocacy-issues-detail.php?id=52#p7TP3c1_1
I am looking to advocate for similar legislation in Maryland and the rest of the country. I am going through the preventative surgeries to reduce my risk but that is still no guarantee that I will be able to get such coverage. I would be more than happy to talk with you about my personal experience and story if you would like. Please sign and share this petition. Thank you for your consideration and your time.
