#lupie

[thelupuslady]

*SMAK*💜

[spooniestrong]

📷: @lupusincolor on fb

(Requesting id)

[galactic-catastrophy]

This is my first time publicly posting my hair loss.

[sherlock-study]

been doing some academic stuff on the side

I’ve been really interested in rheumatology ever since I got sick, and it’s really nice being able to give back to this field through research. didn’t want to seem like I'm boasting on my other social media channels (where people actually know who I am), so instead I'm telling you guys. 

Currently I have a couple of projects going on:

Been working with the global rheumatology alliance to translate a covid vaccine survey into Traditional Chinese. It’s almost ready to go live! Yay!

Since the rheumatologists at my school’s hospital aren’t too involved with research, I've teamed up with a couple of hepatologists (and my OWN rheumatologist! How cool is that?) to study the effects of HCV viral clearance and autoimmunity using archived serum from a previous project. So far the results seem to be quite promising, it seems to be the first of its kind, and we’ll be submitting abstracts to AASLD and a couple of Taiwanese GI/rheum conferences. Not even joking I would HAPPILY quarantine for 14 days if that means I get to go and present my research this November in Anaheim, CA. 

Will likely also be submitting a patient perspectives poster for ACR Convergence 2021. The event will be virtual, this isn’t anything scientific, but it’s a poster nonetheless. The more pubs the merrier I guess.

surreal to think that I am now co-writing an academic research paper with the dude who diagnosed me with lupus.

[lilaclupie]

About Myself...

Hello, thanks for visiting :3

I'm a 27 year old Sagittarius from New York, and I have Systemic Lupus Erythematosus (SLE) or Lupus for short. I was diagnosed last year, and since then I've been learning how to cope and live with this disease. I keep finding myself wanting to write about my journey, whether to vent or to just help myself work through the hardships. So here I am! I'm an open book so feel free to message or ask me anything, even if just to vent or say hello.

~A little about Lupus~

Lupus is an autoimmune disease where your immune system is overactive and attacks your own body. It can be wildly different for each individual. For me the main symptoms are extreme fatigue, joint pain, skin sensitivity and brain fog. Thankfully it hasn't affected my organs as of yet. If you'd like to know more, feel free to ask me anything or just visit lupus.org 💟

[femology]

I had a tough time this week and it was over other health issues that I am battling it with myself. I didn’t go to anyone on this issue because I felt like I put myself in harm. Anyone feel like they be in the battle alone? Well guess what.. you’re not. Always pray about whatever you’re going through. I always remember that if I can get through this Lupus, I can fight and get over anything. 😪😌 I love you lupies!!

[accapella-songfield-uwu]

Lupus and Spoonies

Hey y’all, just thought I’d throw this out there. Come valentine’s day this february, this will mark my 4th year as a survivor and lupus warrior. Had a scare recently but I’m okay uwu

Lupus, in any of its various forms, is scary as hell to deal with and to have to go through for ANYONE, young and old alike.

Please take the time to look at what Lupus is and how you can help fund research to find a cure for this insanely dangerous disease.

[myramusic]

Good morning everyone, How are you? Have a wonderful start into the new week ❤️❤️❤️ Don’t forget to check by: www.myramusic.net www.facebook.com/montrak xoxo #Myra #selfie #goodmorning #goodnight #coffee #quote #instaquote #life #lupus #lupie #spoonie #love #music #composer #monday #morning #winter #cold #strength #instahub #instagood #instadaily