#nhs gp

[m0zone]

apparently the reason i cant book a gp appointment on the nhs app rn is actually because my gp has decided they are taking

NO MORE

appointments made online. Like they fr just shut down their online system theyre just not doing it anymore???? My gp was already like at LEAST a decade behind every other medical setting i know of but now theyve just decided to fully commit to the bit ig ??

I hope it is just like temporary issues with the server or something but it does make it clear that they removed the option to book online intentionally which pmo regardless, especially considering they didnt warn patients beforehand

(still cant request a repeat prescription bc of this btw)(fml)

[periodperiod]

Strategic and Spiteful Withholding of Tranexamic Acid Medication

Miscarriage level heavy bleeding

Extra pills requested, needed - ordinary supplies denied instead

[myaiinteraction]

Another insight in to the hospital I visit

[myalgiclife]

ME Action Network UK's Capain for Very Severe ME/CFS Services

I slightly edited one of the charity's template emails to MPs to make it a bit more spammable and am posting it below in case it helps anyone.

Please note: I hate the term CFS with a passion but have added it in for my own reasons- others are obviously welcome to do as they think best!

Hi there, I'd really appreciate if you could use the email template below to lobby your MP on people with Very Severe ME/CFS. If you have a smartphone, it should take no more than a few minutes! Many thanks to those that have time. X

Subject: Request for Support Regarding Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

Body: Dear [MP's name],

My name is _____ and I am one of your constituents. My postcode is [insert postcode]. I am writing to draw your attention to this critical matter (. / and on behalf of my (whatever) who has had ME/CFS for _ years (/many years). / and I have had ME/ CFS for _ years].

Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), is a complex, debilitating, and chronic disease affecting over 700,000 people in the UK. ME causes profound neurological, immunological and metabolic dysfunction. In the UK there is no NHS service for the very sickest people with ME/CFS.

It is estimated that up to 175,000 people are suffering at home or in hospital, bedbound, tube fed and paralysed, with no specialist service to call on. The DHSC ME/CFS Delivery Plan promised to start the process of commissioning a service for the very severely ill ME/CFS sufferer in England.

The start of this process has now been pushed back until April 2027 at the earliest while the very frail are left with no service, no specialists and nowhere to go.

[If possible add personal or local information that will help illustrate the issues you are concerned about. Make it as personal as you are comfortable with. Sufferers sharing this with friends and fam might consider pre-writing a couple of sentences about themselves and their experiences that their associates can choose to include or perhaps delete this section to avoid people getting stuck on this bit.]

I am not able/ too ill to come to your surgery to discuss this matter in person so I ask that you view the short video attached here (https://youtu.be/YoCT_K66Ul0?is=h9ffQa7BqjJwduVZ ) and respond to me by email (/other.)

(My ( ‘s) situation/The video linked above) illustrates how urgent the case for healthcare is for the very sickest people with ME/CFS who have the least help. The decision to set up this service lies with the Secretary of State for Health and Social Care. Please lobby him and represent how urgent the situation is for those of us who are too ill to campaign on our own behalf.

(If you live in England you can ask your MP to contact your local IntegratedCare Board:)

Setting up a specialised service for the very severely ill with ME/CFS will take years. You can help relieve suffering now by lobbying our Integrated Care Board (ICB) and ask for the immediate setting up of a virtual ward system and inclusion in their Joint Forward Plan: https://www.england.nhs.uk/contact-us/about-nhs-services/contact-your-local-integrated-care-board-icb/

A virtual ward allows patients to receive acute, hospital-level care in their own homes, care homes, or hospices rather than a hospital bed. It uses technology—such as apps, wearables, and monitoring devices—combined with regular, multidisciplinary team visits (nurses, doctors, therapists) to monitor conditions, prescribe medication, and provide treatments like oxygen and fluids.

Thank you for your attention,

[Your Name]

[Your Contact Information - contact phone number, address with postcode]

[love-from-belle]

If you're going in for surgery, remember to tell your medical team about any natural supplements you are taking!

I'm a medical student and I just had a lecture which spent a good few minutes discussing how people don't consider this when being asked what medication they are taking!

Supplements count!!!

List everything!!!

Any disclosure could save your life!!!

and yes I've tagged this to hell and back what of it

I don't think this counts as medical advice (I consider it to be sharing basic information) but in case it does: I am a medical student only. I am not going to be a qualified doctor for another 4 years at least. It's 2026 writing this. Even if I was a doctor (or am when you are reading this) I would not be your doctor. I cannot and will not give medical advice. I would appreciate it if you did not seek medical advice from me. Any asks requesting medical advice will always be answered with a variation of the following: Please talk to your own GP or consultant about any health concerns you have. Many thanks.

[amyjustcos]

Going to the GP for insomnia tell me how tf their only advice is “have you tried going to bed earlier”?! Have I tried going to bed earlier?! Fuck you! Have you tried doing your job? Have you tried listening to your patient? Have you tried putting away that stupid bs patronising voice? I go to bed at 10:30 and that’s perfectly fucking reasonable. I get to sleep at two thirty, and I still would whatever time I went to bed, it’s just whether I toss and turn like a rotisserie chicken for five hours or six. But even if that was how it worked what then? What time is a reasonable time to fall asleep at? 10:30 like I’d like? Let’s do the math on that one. 2:30 to 10:30 is four hours. FOUR HOURS?! Fuck you! You want me to go to bed at SIX FUCKING THIRTY? What the FUCK have I done at SIX THIRTY. IVE BARELY EATEN MY DINNER AT SIX THIRTY. “Looks like you’re getting about ten hours sleep” yeah because I’ve CANCELLED ALL MY COMMITMENTS THAT HAPPEN BEFORE 1PM. You think that’s reasonable?! I’m no longer in full time college because of this! I’ve missed appointments because of this! “What have you tried” yeah let’s go through this for the MILLIONTH POINTLESS FUCKING TIME what have I TRIED?! What have I TRIED?! What HAVENT I tried?! I’ve tried EVERYTHING outside of prescription medication so doctor doctor prescribe me some fucking melatonin but you WONT because only CAHMS can do that apparently. Prescribe me something else but you WONT because the nhs doesn’t do SHIT when you need them to, what the fuck am I paying taxes for?! To not be prescribed something when I’m sobbing my fucking eyes out to the apathetic cheapskate GP that’s just trying to save the nhs some fucking money? Because the dickheads in power are slowly cutting their funding to try and make it shit so nobody complains when the uk inevitably goes private? fuck you.

Sorry I’m just a bit worked up about this and past my wits end if you couldn’t tell but who the hell is reading this far into my vent anyway

[chridys-space]

I recently changed my title at Manxcare (the Isle of Man version of the NHS with even less funding, is classified as a private entity, and has a habit of flying people to Liverpool for treatment as they don't have much here). The process was interesting and a little funny, but it was mostly exasperating and surprisingly long-winded.

It took several tries to even get it started as the doctors and receptionists at my GP kept saying that they didn't know how to do it and that I should ask the other. Eventually, I got a receptionist who went into the back office and asked, got an answer, and gave me the form to fill out then and there.

Now, I haven't decided on a new name yet, so I don't have a deed poll, but I'm not changing my name, just my title - from Mr to Miss.

I received a voice message two days later, where my brand new antidepressants and the mental breakdown I'd been having meant I'd completely forgotten about the title change request. The message was vaguely ominous and wonderfully vague as it said (paraphrasing) "Hi, it's the Manxcare Primary Care Team, can you call us back at xxxx. I am usually available from 9am to 2pm."

This is... not helpful as a voice message. For anyone out there who doesn't know voice message common practice, here's a quick lesson: you should leave your name, reason for calling, and if possible, your contact number and availability, so that the receiver can know who to ask for and why.

So I called them the next day. The person on the other end had no idea what I was talking about, and had no idea who could have called, so she said she'd find out and call back.

She did not call me back.

A day or two later, the original caller called again. She is The One Who Handles These Things, all requests for name and title updates go through her. Over the course of the conversation, she asked if I was sure I wanted to do this at least 2 or 3 times, waffled about how people might think it's a mistake in the future to see "Miss <masculine name>", and complained about how they have 3 different systems that she has to use and update. She was otherwise lovely to talk to.

A couple of days later, my GP called to confirm the update and asked if I was sure again. The day after that, primary care called again as there was a typo and my address was nearly changed as well. All in all, it took a little over a week to get my title updated but it was done, there would be no further problems right?

Right?

Wrong. Today I had a follow-up about my new meds and discovered that in order to change my title, they had to change my gender marker and that required them to create a whole new profile for me. This new profile does not have my medical history or notes, so the doctor today had no idea why I was there when I walked into her office.

It's so backwards I simply have no words for how dumb it is. All I can hope is that it's revealed several gaping holes in their systems that they can fix, but I doubt they will. It's unreal just how unprepared they are for trans patients, which I already knew, but it's disappointing having that opinion reaffirmed like this.

[jenny-jingle-berry]

Thank god for Luigi because i think his existence makes the bourgeoise less comfortable privatising the nhs

Like there going to try do it but this should hold it off for a little while at least