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More tests incoming but my personal "it's probably POTS" opinion has been upgraded to a professional "I have to confirm with some testing before I formally diagnose you with POTS". I am honestly so grateful that this doctor brought it up instantly. I have had a lot of gaslighting from primaries and such, but this is my first specialist. I am lucky to have found them (via recommendation from others with POTS) so I don't have to fight for any more years without validation.

New med too, which is supposed to help a lot. Let's hope bc I can't take some of the normal ones for POTS due to interactions.

I was terrified because of previous experiences and because of how many POTSies fight for years to get answers even after they learn about POTS. I can breathe now, and start to brace myself for the hit that being officially diagnosed with a chronic physical illness is gonna take on me, assuming (and hoping) the checks for abnormalities come back normal.

#possibly pots #pots awareness #potsawareness #potsie #pots syndrome #pots #medical zebra #zebra #actually chronically ill #chronically ill #chronic illness #mibingo

Officially uncomfortably close to my cardiologist/POTS specialist appointment. I'm really anxious and remembering how scary it was last time to the point where just before getting in the car, when I found out my fiancé was not coming, I refused and cancelled it. I'm trying not to think about the fact that I may have been diagnosed 8 months ago if not for that. I am also trying not to think about what to do next if this begins a process of gaslighting instead of answers.

I am, of course, perfectly aware it might not be POTS. But it *is* something, and I'm not really ready to have to fight for that to be accepted.

Wish me luck when it comes. Hopefully he can go with this time as planned so I don't back out bc I know I can't do this without him.

I'm honestly so close to giving up before I even try out of fear of spending years being told it's nothing. It's why I waited this long to try and address the symptoms at all (besides by doing what helps at home).

Everyone think non-gaslighty thoughts in my honor plz.

#possibly pots #pots awareness #potsawareness #potsie #pots #pots syndrome #postural orthostatic tachycardia syndrome #chronically ill #medical zebra

I will probably be getting a visit from the POTS fairy tomorrow to let me know I angered her.

I had to get stuff done today, and I can already tell I wayyy overdid it because everything is weak and sore, and I'm dizzy and having trouble reading and typing.

All on the heaviest day of my period too. Maybe not the best decision ever but it was time sensitive bc if I waited til tomorrow it would have been significantly worse bc of snow so I took the spoons while I had them because autistic brain said "the coffee maker is supposed to be cleaned every 3 months and it has now been 3 months so here are free coffee maker cleaning spoons 🥄 and as a free gift from me to you if you do it perfectly and meticulously the way I like it, I will make it cost zero spoons so you will be net positive spoons".

Time for a TENS break for my back and snuggle time with my stuffed tiger

🐅 🐯 🫂🥰😵‍💫😵

#note that I am not yet diagnosed with pots #so it could be something else #but whatever it is #it's mad at me #possibly pots #pots awareness #potsawareness #potsie #pots syndrome #pots #medical zebra #actually chronically ill #chronic illness #chronically ill #mibingo

Ughhh I got a happy new notebook (that says "Find Joy in the Journey", it's v cute and I think that phrase is accurate for medical stuff), and had to write all of my potential PoTS symptoms in it and now I feel like a failure of a human being.

It just really sucks looking at all the different things that add up to "my body thinks standing should be illegal and is choosing to protest, vive la résistance".

#potsie #possibly pots #possible pots #pots #pots syndrome #potsawareness #pots awareness #postural orthostatic tachycardia syndrome #symptom tracker #symptom notebook #symptoms #exhausted #chronically ill #chronic illness #zebra #medical zebra #diagnosis journey #mibingo #mibingo vent

I hate that going for a short walk made it so that standing up for any period of time absolute hell

#mozzie just living #Possibly POTS #Possibly Hyper mobile EDS #who knows

some of the things I've noticed

brain fog

lightheadedness especially after standing up or standing for a while

blood pooling in my legs

heartrate increase after standing

difficulty catching my breath after standing

Presyncope

just general dizziness

#dysautonomia #Possibly pots #possibly chronically ill #pots syndrome #chronic illness

I got my holter monitor on a bit ago it's definitely something! (My bones hurt and my hand decided to be really painful today so everytime there's friction against it I feel pain.)

#holter monitor #possibly pots #end my suffering #i am so fucking tired #sleep deprived af #i probably need help #lmaooo

HELP- I was at school just chilling yesterday and my heart was just- at 180 bpm for 5 minutes straight, while SITTING, and my heart palpitations are being so annoying right now wtf 😭 and I can't sleep because I'm excited to get my holter monitor on today, which means I get to miss half a day of school! And I might not sleep well tmrw night because of it, so my mom's letting me stay home!!!!! :D

#chronic illness #pots syndrome #maybe pots #possibly pots #going feral #i can't think #brain go brrrr

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