seen from China
seen from Kazakhstan
seen from Netherlands

seen from Kazakhstan
seen from Italy
seen from United States
seen from China

seen from United Kingdom
seen from China

seen from France
seen from Taiwan
seen from Türkiye

seen from Australia
seen from United States

seen from United States

seen from Germany

seen from Australia

seen from China
seen from Germany
seen from United States
HAPPY BIRTHDAY @starlightprincess98!!!!
I had 3 doctors appointments in the last week AND a call/long conversation with my case manager/care plan manager, and she’s doing her damnest to get me back into palliative care. (For those who don’t know, palliative care is basically hospice for those who aren’t expected to die in the next 6 months.)
Looks like the specialists are finally starting to agree with me… I’m done with trying to find a cure, I’m exhausted from years of surgeries trying to fix the root problem/cause.
I just want to treat the symptoms and try to improve my quality of life as much as I can and focus on comfort and reliving suffering, rather than fighting so hard to fix everything and be cured. I just want to stop suffering so much.
This partially feels like “giving up,” and makes me sad… but the other part of me feels so much relief in finally giving up the fight. I just want to live the rest of my existence in as little pain as possible, and try to prevent more health crises-es and emergencies.
It’s been a lot of years of this… I’m ready to focus on being comfortable and getting my life back a bit. I’m finally coming to terms with that hard conversation a doctor had with me 8ish months ago about “accepting that I will always be disabled” and “coming to terms with a new normal.” At the time, I was so mad at him suggesting that… but now I’m realizing it may be more peaceful for me to go that route. I’m tired of constantly fighting it and spending so much time researching experimental surgeries and treatments to find a miracle cure. I just wanna focus on living.
Sing Me A Story (of the bravest of them all)
Prologue
Pairing: Buggy x Original Female Character
Summary: Josie Harper doesn’t know what her family's connection to the One Piece world is exactly. That's not going to stop her from trying to figure it out and how to use it to get back home.
She just had to survive what it throws at her first. And keep from falling under the allure of the future Pirate King and his crew.
---------------------------------
Josie gaped at the familiar Jolly Roger in horror, only managing to tear her eyes away when a nearby ‘clink!’ made her startle.
The same clownish Jolly Roger grinned up at her from a small metal ball near her feet.
Contents: Isekai, Freeform Greek Mythology, Reincarnation, Recreational Drug Use, Ghosts, DubCon, Pining, Enemies to Lovers, Eventual Smut
Chapters: Prologue, One, Two, Three
(Vascular Compression Syndrome Introduction on Vimeo)
An *outstanding* explainer video about vascular compression syndromes incl. MALS, SMAS, May Thurner, Thoracic Outlet Syndrome and more.
Check out the Chronic Annoyance Gang community on Discord - hang out with 1 other members and enjoy free voice and text chat.
Hey y’all!
I wanted to start a little support group for us spoonies— the Chronic Annoyance Gang.
Come join me to vent about all things chronically annoying 🤣
[malnutrition, food, medical diet, weight discussion]
My entire body hurts so bad today and I am so exhausted despite having like 10 hours of sleep. My body and nervous system are so overwhelmed from malnutrition on top of my usual complex chronic illness stuff and it is seriously difficult to come out of it. The intense fight or flight response that I’ve been in for months feels never ending and nothing has really been able to calm me down. I was always aware of physical effects of malnutrition, but my level or anxiety is higher than I’ve ever experienced and my dissociation threshold feels nonexistent. And the worst part is knowing that food will help, but if I overdo it I’ll end up in the hospital again with significantly worse symptoms.
I’ve unintentionally lost so much weight over the past few months because I haven’t been able to eat normally and I don’t tolerate my Soylent meal replacement shakes anymore. It’s quite scary watching my body change like it is and that definitely confounds my anxiety. I’m really glad my pcp was able to get me a prescription for a meal replacement shake because I really don’t want a feeding tube and am doing everything that I can to avoid one. I just really miss food and making meals, which is making my medical diet more difficult. (It helps knowing I absolutely can not tolerate the pizza I really want, but it’s just hard restricting myself so much).
And it’s so fucking difficult to actually hydrate myself and stay hydrated even *with* IV hydration. I am really so miserable and in so much pain and so nauseous.
Mutual aid post!!!!
Stories on their pages! Please share!!!