[anidealme]

tag nav.

also, yes. i've been diagnosed w a fuck ton of stuff :) it would be awesome if research in the usa got funded again. maybe they could find a way to help me in a way that matters. oh well.

[fidelcostco]

WAIT HOLD ON I cannot fucking believe when I was like four years old my parents were cajoling me to walk with the family and trying to get me to keep up even though I kept insisting that I was "tired" until they took me to a doctor and found out my LUNGS DIDN'T WORK. how insane that we live in a world where reasonably loving parents think their FOUR YEAR OLD is trying to be LAZY. like they were mortified to be clear. adults are just so trained to ignore children's complaints as untrustworthy, kids just need discipline, they can't possibly speak for themselves. what the fuuuuck.

[fidelcostco]

YOU ARE NOT IMMUNE BTW you should always be trying to take children seriously, especially very little ones but definitely all of them. the most disempowered class basically legally defined as property and most people are like "yeah that's good actually I hate when they Loiter lol they're stupid and loud and i actually think children should stop existing. restrict their personhood more actually"

[borealing]

news about pcos today

‘Unprecedented’ global effort gives new name to polycystic ovary syndrome – and new hope to millions of women

Decades-long campaign powered by patient perspectives results in switch from PCOS – a name that caused confusion and undue suffering – to PM

a health policy paper has been published saying the name is officially updated to polyendocrine metabolic ovarian syndrome (PMOS)

polyendocrine= multiple endocrine factors

metabolic = affecting/affected by metabolism

ovarian = from the ovaries

essentially, instead of using the symptomatic term (many people with PMOS do not develop cysts) the new term widens the diagnostic area and makes it easier to diagnose, treat, and do research on people with PMOS (even atypical types, such as no cysts).

it may seem like a waste of time to change a name instead of focusing on research, but for a lot of medical professionals a name can be associated with a hard set collection of symptoms, so the name needs to change to acknowledge that the disorder is not well understood and has a broader, subtler, and often missed set of symptoms. for example ADD is considered an antiquated/unused term, and now comes under the ADHD umbrella. in healthcare names and terminology changes all the time, and this is a positive change. your local healthcare professional may not know about this unless theyre really up on the news though!

in case you want to read about the name change process that was published in the Lancet (one of the most impactful and well respected medical journals):

Polyendocrine metabolic ovarian syndrome, the new name for polycystic ovary syndrome: a multistep global consensus process

Polyendocrine metabolic ovarian syndrome (PMOS), previously named polycystic ovary syndrome (PCOS), affects one in eight women. However, the

[ephemeralityfatality]

this name change is great because in my brain it's now Pissing Me Off Syndrome (and it sure is! constantly!)

[iluvsatc]

[atelier-tamamoland]

they should invent a getting more sleep that makes you less tired

[floating-goblin-deactivated2021]

the unholy trinity of piss-poor caretakers, tag yourself:

tomboy, meaning "this child is clearly queer but let's hope it goes away"

sensitive, meaning "clearly neurodivergent and often distressed but let's keep going until they grow numb"

mature, meaning "traumatized but let's ignore that"

[sepiascissors]

quiet, meaning "has been yelled at or ignored a few too many times and now considers all attempts at communicating with others to be pointless"

self-sufficient, meaning "next to zero trust in parental figures' ability in various aspects of parenting"

lazy, meaning "depressed, but expected to preform tasks or actions without positive support or knowledge of how to do things"

[junglejim4322]

You should be able to say “don’t touch me” to anyone ever in any context and not have it be considered in the realm of surprising or insulting imho if we ever needed to normalize something it’s this

[probuccalfat]

so i can drink 2-3 litres of water a day, eat, and i still get headaches? implode the earth. i don’t fucking care for this shit anymore

[draconym]

The eye doctor is the most fun doctor you can go to. They never steal your blood. They never make you get naked and put on a paper dress. They're just like, "Can you see these letters? It's fine if you can't, we can fix that." And they don't even spell anything.

[wykart]

what do you mean my disability disables my abilities? what the fuck

[toadpolliwog]

[toastbutteregg]

[tpwrtrmnky]

humans should be able to do a special Ultra Sleep after major life accomplishments where you're just out for like 32 hours or something and then you wake up fully refreshed in every way

[bizarrelovesquare]

unironically love the phrase “but I’m being so brave about it” because truly, like, what other choice do we have in this wretched existence? what a beautiful way to remind yourself to keep going, even if only out of spite

[catcrumb]

[xalatath]

SMOKED SALMON IS THE ONLY THING THAT NUMBS THE PAIN

[log6]

I'm not gonna lie the secret to success for a great many people is absolutely stimulant abuse

[luulapants]

Wait hold on what was that

[placeholdername-1]

[i-am-a-fish]

don't be mean to yourself that's you

[i-am-a-fish]

you live there