JVL
Love Begins
let's talk about Bridgerton tea, my ask is open
noise dept.
Today's Document
almost home
todays bird
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Keni
TVSTRANGERTHINGS
roma★
Mike Driver
he wasn't even looking at me and he found me
@theartofmadeline
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❣ Chile in a Photography ❣
Not today Justin
if i look back, i am lost
trying on a metaphor
Kaledo Art
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@chronicallychilling
ABOUT
Name: Hostility System
Host(s): Lucas & Lily (co-host)
Headcount: 10
Pronouns: They / Them
Body age: 27
PHYSICAL
Diabetes Type 1 LADA since 2015
Hypothyroidism
Chronic Pain Syndrome + Chronic Fatigue + Chronic Headaches
PSYCHOLOGICAL
Autism | ADHD | PTSD | Psychosis | OCD | DID
OTHER BLOGS
main blog | neurodivergency blog
More blogs can be found on main!
i love ‘unpalatable’ disabled people. pessimistic disabled people, bitter and angry disabled people, disabled people who are suicidal, disabled people who are ashamed, disabled people who harm themselves, disabled people who’ve been labelled as disruptive or hard to be around or impossible to accommodate. you are loved even if the world is often cruel to you. you deserve warmth and wonder.
disabled ppl we need to start lying to nosy people okay? you tell me i'm too young to need a cane and i will tell you point blank that maybe you should tell that to the guy who ran me over. you don't get an explanation of my health issues you get lies and depending on how much of an asshole i want to be that lie will be anything from a humble car crash to a 1 billion lions attack. mind yr business.
sources say there are muscles in the back of my neck. and they want to kill me
if accessibility can break a system then the system needs to be broken
happy disability pride month
"symptoms you should NEVER ignore!" ok but what the fuck are you supposed to do when the DOCTOR(S) ignore them?
When you tell someone about being mistreated because of your disability, there is a common response that goes something along the lines of, "But did you explain to them properly why you can't do x thing?" "Did you make sure they understood why you need x accomodation?" "Maybe they just didn't understand?"
For example: "Did you properly explain that the reason you don't do hugs is because of your autism?" or "Maybe they don't really understand how bad fibro fatigue is and that's why they got upset at you for concelling plans."
I hate these kind of responses. They give me the same vibe as being asked, "Yeah, but what were you wearing when you got catcalled?" They put the responsability for the problem onto the person who was discriminated against, instead of the one doing the discriminating. Disabled people should not be expected to go through grueling explanations or justify their needs before those needs are respected.
"It could be worse". I hate that phrase. But we disabled and chronically ill people hear it so often.
Our illness/disability isn't measured by just our diagnosis - it's measured by how long we've had it, how alone we feel, our ability to function in society, our ability to feel accepted, the neglect we've had, the loss we've dealt with, etc.
So when people say, "it could be worse", that couldn't be farther from our truth. Our experiences are so much more than being sick.
Stop telling us it could be worse; start asking what it’s really like.
And even if it could be worse, like with chronic illnesses and disabilities that are progressive, we're aware it could be worse and live with the fear of it getting worse and what that will be like while having to try to manage how it is now. Even if it's not progressive, it impacts every aspect of our lives and being invalidated, especially by people who don't know or understand what it's like to be us and don't even bother asking, just makes us feel worse and more alone and more life we're just being whiny little babies who should just be able to deal with it. Meanwhile, they'd fucking lose their shit if they had to deal with even a fraction of what we do for even a brief amount of time, but we're forced to deal with it constantly and are expected to still be productive by their standards and not let it show how much it affects us. In case it wasn't clear, I hate that phrase too.
I'm a disability advocate (I think you should be disabled)
really though a lot of people put themselves through a lot of pain or inconvenience because they have decided they aren't Bad Enough to need help with something and it sucks. so I truly do want to encourage identifying as disabled. you can get a cane if you think you'd only use it on the really bad days or if the deciding factor is that it's your favorite color or if you think maybe it would make one single task a little easier. you can use a screen reader if it's more convenient to hear text spoken to you rather than reading it. you can get cut-proof gloves, or a chopping gizmo, or pre-cut ingredients if it would make you feel safer when cooking because you're a little clumsy. you can use a wheelchair if it would just make you less tired.
as someone who struggled (and struggles) with feeling Bad Enough to justify the tools I need: it's okay if you don't think you need them. A want is enough. A passing "oh, that would be useful" is enough, especially if it keeps happening. you're allowed to want things to be easier and you are allowed to make them easier. I love you.
Idk what person with chronic illness needs to hear this, but you can do things to make your responsibilities nicer for yourself. You can get an ice cream after a blood draw. You can sit down for tv time after an injection. You can pick out the bandaids that have cartoon characters on them instead of the plain ones. Being an adult doesn’t stop you from benefiting from encouragement. Go for whatever fits with your routine/abilities/budget and makes life a little better. A spoonful of sugar helps the medicine go down etc etc
this is not to say you shouldn't make characters with strabismus- you should! i want to see people with my disabilities! but i think a little research can go a long way. i'd love to see it given more depth in writing than just being an indicator of intelligence (which it isn't and never has been!)
[ID: graphic titled "THIS IS A VISUAL IMPAIRMENT CALLED 'STRABISMUS'!!"
below, are four drawings of a very fluffy creature with different presentations of strabismus. they're each labelled "hypotropia (eye points downward)," "exotropia (eye points outward)," "hypertropia (eye points upward," and "esotropia (eye points inward)."
the last has an arrow, with text reading "i looked like this when i was born!"
bottom text: it's not a quirky character design, it's a real disability!
it does not mean someone is clumsy, "stupid," or autistic
(ableist depictions of autistic and/or otherwise intellectually disabled people often have strabismus. why do you think this is?)
strabismus can occur from birth, later in life due to separate visual impairments, or because of physical trauma or strokes. it can cause permanent vision issues.
i'm partially blind in one eye!
when you design a character, think about if the traits you give them exist on real people! they often do!
what do you want your art to say about disabled people?
/end ID]
Plain Text: the graphic is titled "This is a visual impairment called strabismus"
"But what if people will pretend to need this accessibility option so they can be lazy! People who don't need it will use it!!" I don't actually care
I dont care if 9/10 of the people who use the wheelchair ramp arent actually in wheelchairs. As long as the 1 person who needs it has access to it.
I dont care if 9/10 people who use the automatic push button on the library door can actually push the door open themselves. As long as the 1 person who the door is too heavy for gets to use it.
I dont care if 9/10 people who buy the can tab opener, or the little guitar clamp that holds the chords for you, or the hand grip that helps you hold chop sticks, don't need any of it and just get it to "be lazy". As long as the one disabled person who needs it gets access to it.
I do not care. Oh my GOD I do not care. As long as there's a disabled person on this planet who the accessibility device will benefit, the accessibility device is necessary.
Also, if you're so worried about people being "lazy" by using accessibility devices, MORE worried than you are about disabled (visibly or not) people not having access to them, you have unchecked ableism you need to work through.
rest is part of the process, not a prize you get when you’ve finished everything. you don’t have to earn it first
no offence but I dont give two shits how big a carbon footprint inhalers and other medical equipment have when theyre keeping someone alive. like sorry you shouldnt feel guilty over the medical device that allows you to breathe when shell can guzzle oil directly into a birds mouth and nothing happens
EDIT: yes this post is about plastic but its not just that. I'm talking about any waste, any environmental impact. MDIs release greenhouse gases but its worth it to keep even one person alive. we cant live in a future where lines are drawn over what is "too much". carbon footprints will be the death of us
I know the chronic pain is chronic and all but ow damn augh fuck ouchie
