seizures can suck it

I hope this can be a safe space for people with epilepsy, raise awareness, and all that jazz

[epilepsysucksass]

Not to jinx anything, but I haven't had any seizures at school so far this year 🥳 then again I've been getting SO much more sleep, so maybe that has something to do with it?

[epilepsysucksass]

Turns out my new favorite hobby is sewing! Never would have thought that, but my textiles class in school has kind of brought me out of my shell and I love it

[friendlyhostile]

hey reminder to not touch people or move people who are seizing unless you are supporting their head or body to keep them from falling/putting something under their head to prevent injury.

touching or moving seizing people can result in injury and worse seizure activity, or cause more seizures after the one they are currently having.

i had a seizure at my highschool today that lasted 10 minutes give or take. it was very bad. the nurses there, after sending away my friends, kept jostling me around, resulting in a worse seizure to the point my leg and jaw would not stop shaking even after the seizure ‘finished.’ one nurse kept roughly rubbing my sternum and shoulder, and she also moved me to my side and kept moving my legs and arms around into different side resting positions, and at one point threw my hand and it hit me in the face. another nurse had taken my head and put it in her lap, which was weird to me and made me uncomfortable since i am hyperaware of my body during seizures since i am conscious. she also kept saying my deadname over and over again trying to get a response out of me while.. i was seizing… hm. anyways.

those are all things you should not do. let me tell you what my friends did.

one of my friends timed the seizure like i had asked him to before it started, and he stood there watching and timing it. my other friends didnt touch me and they moved around me when the bell rang to go to classes (this was early in the morning, which was an hour ago for me, and it was in the cafeteria). the other friend who stayed hung around and tried to give good information to the nurses who ended up being called over by an assistant principle who came over. they did the right thing. the nurses did not.

my seizure could have been only a couple of minutes, maybe just 6 minutes (5+ minutes being Bad ofc), but no! what those nurses did made it 100x worse, and now i am suffering because of it.

gotta love medical professionals who dont know shit!

[epilepsysucksass]

favorite word?

Probably shenanigans

[epilepsysucksass]

hey are you ok you disappeared for like 4 months??

Yeah I'm good, summer break had started not too long after my last post so I was just wrapped up with vacation stuff. I'll try to post more often again though

[stay-chill-vibes]

REBLOG IF YOU ARE HELLA BORED AND WOULDN’T MIND SOME CURIOUS ANONS.

[writtenroses1813]

There is no worse feeling than knowing that your entire life is depended upon medication. A list of medications that you know, without a doubt, would render your life meaningless or simply gone if not taken

[fibro-memes]

[chronicillnesshumor-deactivated]

[kipskiptrip]

Fun game of "Is this a dissociative episode or an absence seizure"

[justabunny]

I'm so tired of the expectation for disabled people to be positive. no I'm angry, I'm allowed to be upset about my progressing illnesses. let disabled people be fucking angry.

[epilepsyculture-is]

Epilepsy culture is trying to figure out if im hallucinationing from a seizure or psychosis

.

[epilepsysucksass]

Out of curiosity, does anyone know anything about Epidiolex, or use it? It's a possible prescription for me, and I'd like to know as much as I can and hear other people's experiences before actually getting it prescribed.

[epilepsysucksass]

Never realized how much my health has gone downhill until I was hit with a huge wave of nostalgia from like elementary school (when I didn't have seizures yet)

[dreamdropdollop]

ALL. DISABILITIES. ARE. NOT. ALWAYS. VISIBLE.

[epilepsysucksass]

The fatigue has been hitting HARD recently no matter how much sleep I get or how much coffee I have. So sick of it.

[chronicallyuniconic]

PSA‼️ Epileptics/photosensitive/seizure fam⚡

There is a new advert from Disney+ and Hulu for 'Taylor Swifts Eras Tour', that has a lot of strobe lighting at about the 10 second mark (I can't verify cos they induce seizures maybe someone else can).

A YouTube search of the advert puts it at 31 seconds in length

Share to help your seizure friends❤️❤️❤️❤️