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Wow !!
Being disabled means having to lie on job applications about having a disability, then when you do get hired, having to hide it as well as you possibly can and try your hardest to never ask for accommodations.
You know you have a chronic illness when… you have more doctors than friends.
Your dreams don’t go away when you have chronic illnesses. They just become muted, pushed to the back of your mind to be accessed again when you are capable of achieving them. For me, they are just hazy, on the edge of my consciousness at all times- a constant reminder of what I can’t do, who I want to be.
bethelightbethechange
Chronically ill young adult problems #5
You can’t go to parties, clubs, concerts, or bars, the places where young adults like to hang out the most. The music is overstimulating, the dancing is too hard on your body, the alcohol doesn’t mix well with your meds or your symptoms, and you can’t stay out late because you’re way too fatigued for that.
One of the worst things about chronic illness is how it changes your relationships.
Because you’re so tired, it’s hard to regulate your emotions. You might snap at your loved ones, or lean on them for emotional support too heavily.
You might worry about asking your loved ones for too much help. Even if you have very supportive family and friends, internalized ableism can make you feel that you’re a burden on them.
Worst of all, chronic illness can cause the people who don’t understand it to say very hurtful things to you or even walk out of your life entirely.
It’s extremely hard to cope with the changes that chronic illness brings to your body while coping with the changes it brings to your relationships and your life.
i really like this one
It’s okay to feel jealous when you’re chronically ill and you see your friends doing things that you wish you could do. If you need to take a break from social media or stop talking to one of your friends for a little while, do it. Your feelings are important.
me: a good day to be alive my body: clickety clack, your chronic pain is back
Health is a nebulous concept that’s both idealized and devalued in our culture. Health is almost required to live up to societal ideals of productivity, but workers are expected to deprioritize it by losing sleep and leisure time to meet deadlines. This extra stress and lack of free time translates to poorer food choices and less physical activity, which further worsens health. Doctors warn about the dangers of carrying excess weight, but provide fitness and dietary advice that doesn’t fit into most people’s busy lifestyles. People may turn to the booming diet industry for a more convenient solution, eating unbalanced diets and drinking meal replacement shakes, not knowing that they’re damaging their health even further. We’re all so overworked and confused from the misinformation that we don’t even know what health is anymore.
When, as a society, are we going to value health more than we value profit? When are we going to allow people to truly take care of their mental and physical health, even if for some people that means not working at all or not meeting society’s narrow definition (thin, physically fit) of health?
Its no ones fault that im sick and that makes dealing with the anger it gives me harder. It makes dealing w my limitations harder. With having things taken from me harder. Because there is no one to blame, no apology, no perpetrator to the crime, so no way to bring justice and closure.
And its even harder not to blame yourself when theres no one else to blame.
“Everybody deals with something” isn’t an appropriate response to disability. Having a disability doesn’t preclude us from facing other obstacles in life. We still might grow up poor or in abusive households. We still might face discrimination based on our race or sexuality. We still might have to face any and all of the challenges that abled people face, but with the added limitations of our disabilities. It’s time that this reductive and problematic saying is retired.
My issue with 90%+ of doctors is they seem to “forget” that someone doesn’t have to be in danger of dying in the next 2.5 minutes to save their life
It’s more than ok to switch doctors if you feel like the care you’re getting isn’t adequate. It’s not unusual for chronically ill patients to see a dozen or more doctors over several years before they find one who can properly diagnose and treat them. Don’t let anybody make you feel like a “doctor shopper” or a difficult patient just because you want good medical care - after all, we wouldn’t have to see so many doctors if more of them did their job well.
Relatable IBS Things
Eating the same 3 meals for days or weeks or months on end because you know they won’t make you sick
Being too exhausted to even think of trying new foods, even if they’re supposedly low-FODMAP, because you feel like they still might make you sick
Being unable to take pleasure in any food at all because it’s just a chore at this point
Becoming a recluse because all social gatherings involve either food or alcohol
“Does this have onions in it?”
Everything pre-made or prepackaged has garlic and onion in it. Fucking everything.
Being offered desserts and having to go through the, “I’m gluten intolerant. Oh no I can’t have dairy either. No I can’t really eat most fruit I’m sorry. Chocolate’s a no, too. Y’know what this all probably has too much sugar anyway, forget it.”
The utter dread of travel.
Packing both laxatives and anti-diarrheals because you never know which one it’s going to be this time
The constant, gnawing anxiety that somehow you’re going to fuck it up and die, either from dehydration or sepsis, and it’ll be the most embarrassing and ignominious death of all time
“Well what CAN you eat?!”
Constant abdominal pain and discomfort
Going through four rolls of toilet paper a week
Perpetual anal fissures
Sore legs, hips, back, abs, arms, shoulders from endless hours on the toilet
Giving up on eating completely because it’s not worth it
Feeling utterly hopeless because there’s neither cure nor medication, and feeling like nobody’s working on making one because it’s not serious enough to matter
Feeling like nobody could ever love/be intimate with you because your body is broken and gross
Feeling like you can never do anything fun because your body is broken and gross
Feeling like you’re “not sick enough” to be part of the chronic illness community
Feeling alone and miserable because you can’t talk about your chronic illness with anyone, at all, because it’s gross
Feel free to add your own, and remember: there’s seventy million of us worldwide.
Omggg
You guys!!!!!
PYRRHA WAS REINCARNATED INTO THE DRAGON PRINCE!!!!!
I SO THOUGHT THIS WAS PYRRHA TOO