@fibro.bug

:)

[fibrobug]

Rest is Resistance by Tricia Hersey

[fibrobug]

i miss daily showers the most abt being disabled

if I became healthy again I would even start being a twice daily showerer

[maidslime]

You will one day become disabled. Not if. It's a when. You will one day rely on someone for help in your day to day life. Whether it be now or when you're old, it'll happen. It's not an if. It's a when. This will happen.

[chronicillnessresourcelibrary]

Post-Exertional Malaise (PEM) – What It Is and How To Avoid It

This fact sheet explains what post-exertional malaise is (including what mitochondria and ATP is) and how to avoid and/or deal with it, using fairly plain language:

(and it is archived here)

This resource has been written by a NZ-based organization (Complex Chronic Illness Support) but all the info should be applicable to everyone worldwide.

[fibromyalgicaf]

Saving this article for my bad days...

6 Lies My Chronic Pain Tells Me on the Worst Days

"Pain whispers constantly in my head until I can’t tell if the words are truth or lies."

I've heard all six of these from my inner voice but on my better days I do believe that they are all absolute lies

[wishful-seeker]

I would like to see more people talk about how jobs treat disabled employees.

I used to prep, wash dishes, and cook at mellow mushroom. I had chronic pain that wasn't NEARLY as bad as it is today, but it was still very debilitating. I told my employer "i cannot stand more than 4 to 6 hours. I CANNOT do shifts longer than this due to my illness." And even though i made my boundaries VERY clear, everyday i worked it was 8 hours at the least and 10 or 12 at the most. I would go up to my manager and say "look i really need to leave, my shift is over, my chronic pain is killing me." And he'd say "we really need to here, you HAVE to push through." And so i did, and after one, ONE month of that job my crps got incredibly worse to the point where i could no longer walk my dog around the block which was .5 miles. I quit, and that was FOUR years ago, and ever since that day I HAVE BEEN BEDRIDDEN AND HAVE TO USE A WHEELCHAIR. It is my biggest regret in life.

My best friend who has seen my whole journey has recently developed undiagnosed chronic pain, and she is in the EXACT same scenario i was 4 years ago. Busting her ass at a pizza place with extreme pain that hurts her so much she tells me "im in so much pain i don't even feel like a person." She doesn't feel LUCID. And her manager and coworkers are saying the same thing "if you don't help us you will let us down, we'll be in the shit."

That job thats hurting you isn't fucking worth it. I promise you no money is worth losing all your physical abilities and never getting them back. Your coworkers and boss do not give a shit about you, so don't you dare suffer for them. They will never understand your struggle and they will never try. They truly think being understaffed is worse than whatever pain you experience. They would rather you permanently damage yourself than inconvenience them. FUCK THEM. DON'T FUCKING DO IT!

[post-grammatic-stress]

If you've ever told a person who's had to be bedbound for a period of time that you wish you could "just stay in bed", DO IT.

Stay in bed. For days. But don't get up if someone needs you to, or you get bored, or you get antsy. Don't do anything other than rest. Just lie in your bed, whether you need to get stuff done around the house or socialize or anything else "productive". You'll have to cancel on people, you'll disappoint them, they won't understand.

And if you're thinking, "well, i CAN'T just be in bed. There's stuff that has to be done - I have plans", maybe ask yourself why you assumed a disabled person doesn't have plans or things to do or desires.

[fibrobug]

Fibrobug Blows up an AI Data Center

@finnsworlds - 2026

Oil Pastel

[boxheadpaint]

already talked about this with a friend, but rambling here also since its not very active on the site. I think the mii maker is really awesome and flexible, super fun to use, and once its really gotten down its not too hard to make accurate representations of characters and people. I like it a lot

that being said, itd be nice if it were just so slightly more in-depth to allow for certain details like portraying physical disability or more asymmetry. For example, i have strabismus (funny direction of the eye) thats near impossible to represent in the maker without disabling the facial interactions by covering an eye with the face paint feature. Miis also can only be represented as able-bodied, with no options to create one that would require a mobility aid or prosthetic.

i know this game was in development for a very long time and i understand features like this might be Exceedingly difficult to implement, especially in regards to interactions with the game world itself. I still cant help but feel a bit disappointed in this regard, and hope that maybe this is something that can be considered in the future of the game or others like it.

[daftpatience]

this is what i wanted to make! feel free 2 use this for whatever i love you

[peachdoxie]

There's a bunch of adhd advice out there that's like "people with adhd tend to work better under deadlines due to the anxiety so here are ways to artificially induce a stress response in order to get you to get work done" and it's like well what if I don't want to be stressed out all the time in order to function

[electrictopaper]

this gold shouldn't stay in the comments

[wheelie-sick]

d/Deaf/HOH people 🤝 blind/visually impaired people

wow the internet really does not give one single fuck about us and our ability to participate. we're not seen as worth the extra minute or two that it takes to include us

[wheelie-sick]

I need hearing people to understand that deaf people who gained their deafness young have a lifetime of trauma from hearing people. no matter what level of hearing loss a person has that person has been abandoned and abused for it a thousand times over

as a deaf person you are expected to take the hard route every single day. hearing people are never expected to meet you where you are at. despite this, when you struggle, you are accused of "not caring." when you do this too much you are inevitably abandoned for being inconvenient

so when you encounter a deaf person who has no interest in interacting with you remember why. remember that this person has been hurt by hearing people a thousand times.

[party-of-one0202]

I'm HoH and have APD, not deaf, but if I had a nickel for each time my hearing impairments have been used against me either to accuse me of not paying attention and thus not caring or to genuinely abuse and gaslight and manipulate me, I'd have enough nickels to buy a new set of high end hearing aids. Plus not to mention all of the extra energy that has to go into functioning and communicating in a world built for the fully hearing who expect everyone else to be fully hearing and capable of verbally communicating without issue is downright exhausting, even with properly set up hearing aids that you've had enough time to fully adjust to. Being HoH in a world built solely for the hearing is absolute shit, to put it in the most bare minimum nicest way possible.

[wheelie-sick]

I need hearing people to understand that deaf people who gained their deafness young have a lifetime of trauma from hearing people. no matter what level of hearing loss a person has that person has been abandoned and abused for it a thousand times over

as a deaf person you are expected to take the hard route every single day. hearing people are never expected to meet you where you are at. despite this, when you struggle, you are accused of "not caring." when you do this too much you are inevitably abandoned for being inconvenient

so when you encounter a deaf person who has no interest in interacting with you remember why. remember that this person has been hurt by hearing people a thousand times.

[fibrobug]

I volunteer for a local non-profit and was at a protest trying to gather more volunteers recently and one of the only people that acknowledged me was a blind woman who stopped and apologized for… not being able to volunteer…

I felt so embarrassed mostly because I had been talking to a group of people behind her but also because she seemed genuinely upset that she couldn’t do more than what she was already doing. Which was already quite enough.

This older woman must’ve coordinated with the other person there, to be able to safely make it to the protest, in the first place; She also was wearing two signs on herself! She was already volunteering her time and effort!

I hope this isn’t derailing, I know the blind and deaf community often stand hand-in-hand better than the rest of us and I just wanted to share the positive experience I was able to have (likely because I was in my wheelchair that day)

Disabled people don’t owe you shit. POC don’t owe you shit. Queer people don’t owe you shit.

You either get it or get out of the fucking way!

[fibrobug]

Privatized Primary Care

I'm located in Michigan, USA and I've heard of at least 3 "family" doctors JUST IN MY CITY switching to a private subscription based payment setting. Is this as big of a problem for anyone else?

The usual range of charge is $1k to $2k per month. That is the same as what my husband and I pay for rent. As far as I know, it isn't payable via insurance either so I am deeply confused.

[fibrobug]

I wish my doctors gave me more guidelines than “light exercise like walking” … okay how much light-exercise-like-walking? Because now I feel guilty using my wheelchair! I spent all week walking every day and pushing myself to go out and walk the local parks and it landed me unable to move or shower for days.

HOW MANY STEPS/MINUTES/HOURS PLEASE I BEG I AM AUTISTIC.

[lookmomitsmytmblr]

this is the thing that I'm really struggling with right now. People just hand out the guideline to 'exercise' and put no more thought into it...

[fibrobug]

Old post but I love shamelessly scrolling my own side blogs…

This is so true AND I wanted to let you know some things I’ve experienced that have lead me to modify my life this past year! :)

One of my symptoms is that I get hot to the touch when I’ve overexerted myself. It doesn’t always read as a fever on thermometers so it’s important to have a friend just quickly check your forehead and neck areas for a general temperature difference I suppose?

Anyways, by the time I’m warm to the touch, it’s time to get back into rest mode and take things slow for the rest of the day.

This isn’t always possible because of things like work and kids, but generally I’ve been avoiding major crashed by just slowing down and checking in with myself.

As far as my wheelchair usage goes, I’ve dropped down to only using it at long timely events where I’m unsure of seating arrangements.

It socially helps me (personally) to be in my wheelchair on site, the whole time, if I’m going somewhere with unclear accessibility information! However, sometimes this has lead to me finding out what event venues have AWFUL accessibility the hard way.

I’m looking into getting a rollator for days where I do feel especially flared up, but I’ve ditched the one handed cane, as it does me more harm than good at my current state of mobility.

[orthoscheme]

supermarkets should have benches

[orthoscheme]

everywhere should have benches