Not Broken Just Battling

Hello! I'm Alexandra, I'm 19 years old, and I'm chronically ill. Fibro, EDS, CFS/ME, CTD, Dysautonomia, Iron Deficiency.  Still alive but barely breathing

[chronic-confessions]

Confession #3,333

I finally got a diagnosis yesterday. It’s just now sinking in that this is never going away. I’m going to be in pain for the rest of my life. How am I supposed to deal with that? I don’t think I’m strong enough for this

[chronic-confessions]

Confession #3,336

I’ve noticed that if I tell someone I think I have Chronic Fatigue Syndrome I get a lot of disbelieving looks and suggestions I just need to exercise, or at the very least that I’m complaining about noting. While if I just say I have severe fatigue issues people are sympathetic and understanding of my limits.

[briarpatch-kids]

Sometimes I feel like there’s only two ways a disabled person can be viewed as by able bodied people: delicate glass sculpture that can do absolutely nothing, or lazy person who just isn’t trying hard enough.

[fighting-fibromyalgia]

Me, right after I get a new diagnosis: HA, I knew it! All those crappy doctors who told me I was faking it were WRONG! This is great news!

Me, several hours later when the news actually hits me: *sobs alone in my room*

[justhypermobilethings]

*shifts position slightly* 

*sickening crunch in 4 different body parts*

[sunflower-cane]

fire pit: *Crackles loudly*

my shitty joints: *cracks louder to assert dominance*

[adhighdefinition]

me, despite being clinically diagnosed: what if i’m just faking it

[crohnielife]

chronic illness skills:

-really good at getting blood drawn -sleeping -tv marathoning -doing everything in pain -know the best heating pads -will sit on the floor if there are no chairs -smarter than doctors sometimes tbh

[fighting-fibromyalgia]

Me: 13 pills honestly isn't that bad

Literally everyone else: what the fuck

[mychronicthoughts]

I’m astounded by the privilege of people who disdainfully look at me at say, “I don’t like relying on pills.”

Yeah, well, me either but I don’t have the luxury of being able to survive without them.

[littlestudybuddy]

GUESS WHO’S BACK!

Hello everyone! It’s been a year or so since I’ve been on here. I got busy with school, and I also had a lot of health issues. I have an autoimmune disease, along with a plethora of other conditions. I got sicker and sicker and found myself struggling to exist every day. Thankfully, treatment is working and I’m getting better! So, this is what you missed!

1. I CHANGED MY MAJOR! I am now a double major: Public Health Sciences (B.S.) and Psychology and Social Behavior (B.A.)

2. I decided to live in Irvine full time (so summers will be spent here and not home in the Bay Area)

3. I was diagnosed with primary immunodeficiency and Graves’ disease

4. boys r dumb

[rosegfs]

we are still here

[mediocrestudyblr-deactivated201]

yepp collating geography topics that aren’t gonna be tested because I can’t possibly study all of them oHMY 😭

check out my studygram!

[isabella-study]

Monday the 29th of August: 20/100 days of productivity

I spent basically the entire day making study guides for my chemistry test tomorrow.

[thesufferpuppet]

I may not be “healthy”, but I can use my own freezing cold hands as ice packs. So who’s the real winner here??

[fight-until-the-wars-done]

When I was 10, my heart rate reached 200, but I was told the monitor must not be working.

When I was 17, I was diagnosed with postural orthostatic tachycardia syndrome.

When I was 11, I was told my joint pain was just growing pains.

When I was 17, I was diagnosed with Ehlers danlos syndrome.

When I was 12, I was called lazy.

When I was 17, I was diagnosed with chronic fatigue syndrome.

Keep fighting my loves. Don’t give up.

[brian-mccann-and-jesus]

It blows my mind that most people don’t have to worry about taking medication everyday.