fckfibro

Help 4 Heather

[help4heather]

The purpose for this page. . . . . . . #depression #fibromyalgia #migraine #edswarrior #ehlersdanlossyndrome #potswarrior #potsie #posturalorthostatictachycardiasyndrome #insomnia #painsomnia #life #mindfulness #tinyviking #invisibleillness #invisibleillnessawareness #chronicpain #chronicillness #chronicallyill #chronicallyfabulous #spoonie #autoimmune #autoimmunedisease #butyoudontlooksick #fightlikeagirl #gutitout

[help4heather]

Pay no attention to the woman behind the snoring cat. Lol Spoonless today but I have no regrets! Yesterday was a good day! 🙏💜👍 . . . . #catsofinstagram #spooniepets #spoonie #fibromyalgia #chronicfatigue #iregretnothing #carpediem #onedayatatime

[help4heather]

So I am happy to say that this happened last night!!! John and I had friends over!!!! AND neither of us ran out of spoons!!!! Yaaaaaaay for good body days and good friends! . . . #fibrowarrior #ilovemyfriends #spoonie #invisibleillnessawareness #wearetoocool #industrialcancanstartedhere

[help4heather]

Stupid #fibromyalgia 😢 It is kicking my butt today. I am so damned tired... . Hang in there #spoonies you are not alone! Gentle hugs to you all! . . . #fibrowarrior #fatigued #chronicfatigue #fibrofog #invisibleillness #iamsodamnedtired

[help4heather]

Poopyface is meditating. I think he's giving me a hint that I should do the same. . . #meditation #beyourownhero #takecareofyourself #quietmind #practicethepractice

[help4heather]

#truth #spoonie #chronicpainwarrior #youarenotalone #hanginthere #invisibleillness #beyourownhero

[help4heather]

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Today is a better day. #spoonielife

[help4heather]

Feeling.

[help4heather]

Not all #beddays are bad days. . . . . #spoonie #butyoudontlooksick #invisibleillness #todayisabedday #notallhandicapsarevisible #chronicpainwarrior #fibromyalgia #spooniesupport #chronicillness #itsallamatterofperspective #painsomnia #ehlersdanlossyndrome #potswarrior #neuropathy #nevergiveup #neversurrender #onedayatatime

[help4heather]

Today is our 11th #weddinganniversary !!!♥️❤️️ 💕 I am so very lucky to be married to the man of my dreams. I love him more than words could ever hope to capture. He is the kindest, most loving, supportive, and selfless man. 💋 My #bestfriend My #soulmate My #partnerinlife My everything. 💜 Through #sickness and #health he has been by my side, loyal and loving. He has literally carried me through some very difficult times. . 😘 I love you @johnsanterineross Until the end of the world. . . . #ilovemyhusband #imarriedmybestfriend #truelove

[help4heather]

Today my baby boy is crossing the #rainbowbridge . We spent the morning together on the porch, watching birds and enjoying the sunshine. . When I rescued him 17 years ago, he was deathly ill and I was told he probably would not make it. Now, at the tender age of 19, his little body is starting to give out. I am making the hard call to let him go before he is in great pain, before he is afraid, before things get worse. It is a very hard and emotional decision for me, but I know it is what's best for him. I would want the same kindness if our positions were reversed. He will go while at peace, knowing he is safe and loved. . I love Wheezer with all my heart. He is my son, my friend, my love, my angel, my familiar. He is the most special, sweet, loving spirit I have ever known. My Life will be left with a void after today. If all people were like Cheezy Poo (his nickname), the world would be a utopia of unconditional love and happiness.

[help4heather]

Light and shadow. . Look who is up and moving before noon! THIS #spoonie ! Not sure why I feel ok today, especially since my #rls was kicking in (haha- get it? Kicking in? Lol) last night. But right now I feel awake, at peace and happy so I will take it hands down! 😃 . . . #spoonielife #blackandwhitephotography #shadows #invisibleillness #invisibleillnessawareness #butyoudontlooksick #chronicpainwarrior

[help4heather]

#today I am a #spoonie #supergirl !!! 💪🏻 For the first time in longer than I can remember, I stood up in the shower- THE WHOLE TIME!!! I washed my hair and everything!!! Wooooooo-hooooo! 👍 (For those who don't know, my shower has 3 rails and a stool for me to sit on because I usually-strike that- always need to sit because I am either too weak, in too much #pain or get terrible #vertigo ) 🤕 But today I rocked the shower!!! I feel like only other #spoonies or #chronicallyill friends or those that love and care for a #spoonie would truly understand what a HUGE #accomplishment this is! Victory is mine!!!! . . . . #beyourownhero #onedayatatime #ismsoexcited #invisibleillnessawareness #hope #butyoudontlooksick

[help4heather]

This was yesterday. I wasn't sure that I was going to have the #spoons to go pick up the groceries that I had ordered the night before. Picture 2: I had one extra spoon on the way home, so I stopped in to a #localfarmers stand and bought some fresh produce- I love supporting local #farmers and not only was the tomato huge, but so much more flavorful than the one from Kroger, of course. Picture 3: I could not WAIT to eat that tomato, so I just sliced it up with half an avocado, spinach, sesame seeds and a drizzle of balsamic reduction. Then I went back to bed. . . . . #supportlocalfarmers #spoonie #foodasmedicine #chronicpainwarrior #chronicillnesswarrior #chronicfatigue #invisibleillness #invisibleillnessawareness #butyoudontlooksick #onedayatatime

[help4heather]

Shami reminding me to never lose hope. . . #nevergiveup #neversurrender #fibrowarrior #spooniepets #unconditionallove #ilovemydogs #spoonie #hope #hanginthere #onedayatatime

[help4heather]

Last night was far from restful. First I had #rls which quickly spread to be what I call "restless body syndrome". It was maddening. 😢 Shortly after, my #neuropathy issues started in: first my #tattoos and #piercings started puffing up, my skin was so sensitive that just having my hair touch my neck was painful. (I would be lying if I said that I had not considered shaving my head at 4am to stop that pain) 😫 Then it was the needles. Imagine that, say your entire left leg fell asleep and you experienced what most people refer to as "pins and needles". Now replace that annoying sensation with the #painful sensation of ACTUAL needles were stabbing your leg in that same, frantic and unpredictable pattern. . . . I am so #fatigued , #sleepy , #antsy and ouchie. But maybe I will feel better later? . . . . #chronicillnesswarrior #painsomnia #myeverythinghurts #spoonie #bedday #bedridden #migraine #fibrowarrior #iwouldlikeavacationfrommybodynowplease

[help4heather]

I started adding #collagen #peptides to my daily routine. It is supposed to be good not only for my #ehlersdanlossyndrome but also my treatment of #leakygut I will let you know if it helps after a week or so. Hang in there #spoonie and #chronicillness friends! You are not alone!💜 . . . . #youarenotalone #spoonies #foodasmedicine #chronicpainwarrior #chronicillnesswarrior #hanginthere #supplements