Chronically an Anomaly @ickysickyjournal - Tumblr Blog

Hey y'all. I've recently been diagnosed with IBD. My doctor has me on a giant horse pill and it's made it so I don't poop a hundred times a day. But I'm definitely still miserable. What are your favorite tips and tricks for managing IBD?

#spoonie #chronic pain #ibd #inflammatory bowel disease #crohns #crohns disease #ulcerative colitis

blindedbythedarkness

chronicallytiredofeverything

You know what? I wish I didnt have a chronic illness. I wish that I was completely healthy, and able to keep up with all of my abled peers that are passing me by. But I’m not. I am not completely healthy. I am not able to keep up with abled people. I’m just now, after all these years and setbacks, beginning to accept it.

Its okay to wish that you didnt have this chronic thing.

Its okay to not be okay with the circumstances surrounding you.

But I’ve gotten myself through the last week by reminding myself that:

I will go at my own pace.

I will persist.

I will keep trying to keep myself at baseline.

I will accept my flares, and I will get through them.

Ive got nothing left in me but pain and spite, and goddamn it, I’m gonna make it carry me through as long as I need it to.

I've taken all the meds I can and I still hurt so bad. My body hates me.

unlikelykingdomphilosopher

brieflycleverspoons

I uhhh... did a thing

forbiddnsky

just diagnosed with forehead kiss deficiency:/

intersectionalism

zenkaiankoku

This is torture. Solitary confinement for kids.

striffyisme

[ID: a white person in a blue FBI t-shirt, with long blonde hair and pink eye makeup, with the TikTok handle @elysian_cosplay. They sign as they speak, throughout the video. At some points, images appear behind them, of sources for the things they are discussing.

The CCs say: “Hey, I want to cover something important. As some of y'all know, I am deeply engrained in the Deaf culture because I want to be an interpreter, and I have Deaf family. The world is slowly becoming more accessible, and I am proud of our progress.

However, I want to discuss this school. This is the Memphis Oral School for the Deaf. The school will be opening soon, but they do not let their students sign, they discourage it. And now they require masks, which means Lipreading is out the window.

This article [there is an article on screen behind them] points out that even without masks, teachers would often cover their mouths when they spoke. So they couldn’t lip read. Their reasoning? To ensure that their students were “listening with their EARS”. Read that again.

You’re taking away their [Deaf children’s] language, they are not being given Dynamic Equivalence. They have nothing. When are y'all gonna learn that Deaf kids don’t need to be fixed? Please spread for awareness.“

End ID]

katiestardoodles-deactivated202

I feel speechless, like this feels like shit autism speaks would pull trying to “fix” kids

But like are there really people who think they can “fix” deafness? Like where in the hell did that idea come from???

#i drive by this school all the time #and actually know a few people that went there #even when i was little i couldn't understand how deaf people needed an oral school

ickysickyjournal

I have my first physical therapy appointment this afternoon and I’m so excited but also terrified. My brother’s girlfriend did an internship there and highly recommended them and said one therapist has a lot of experience with EDS. I want to get better but I’m still nervous

ickysickyjournal

Update: PT went amazing. They knew all about EDS and have a huge book about it. I’m so excited to go on this journey

ickysickyjournal

9 month update: I would die for my physical therapist. She knows how to help practically all of my pains. She has helped me so much. She has listened to me and given me hope

simplynerdly

To any of my chronically ill friends who are awake right now because they feel too sick or are in too much pain to sleep; you’re not alone. I hope you get the rest you need, no matter how hard it is to get there. I see you and I’m right there with you. You’re awesome.

#reblogging from myself!#im not awake from pain #but awake from the shit ton of caffeine i used to treat my pain

silversarcasm

if you had to drop out of a class you are not a failure

if you had to take time off school you are not a failure

if you had to leave school for good you are not a failure

your worth is not determined by academia and this goes doubly so for disabled people and others for whom school is set against them

everybodyvanishes-deactivated20

“what disorder of mine does this symptom belong to?” a novel by me

the-memedaddy

meirl

bluerats

“I’ll remember” is the ADHD demon talking. You won’t remember. Write it down.

bold of you to assume i’ll remember where i wrote it, or even that i wrote it

finnglas

Visual exhaustion is another symptom of ADHD, which means that if we see something enough times (or we see enough instances of something), it fades into background noise and we fail to notice it. This is why a lot of ADHD people can stand living surrounded by mess/clutter, because it’s just visual background noise to us. We don’t even notice it anymore. So if we write something down and see the note stuck up somewhere a lot – or if we write a LOT of somethings down and have a lot of notes hanging around – then we’re even less likely to think of/remember the thing because it’s just part of the scenery now. ADHD is the Catch-22 of brains.

spoonie-living

A very good thing to know about ADHD. Don’t fall into the trap.

A lot of folks in the comments are talking about writing on themselves or setting phone/calendar reminders. Your mileage may vary on those. You may also want to consider ways to set a habit of referring back to a planner or similar every day/hour.

To get those brain juices flowing, check out this Buzzfeed article on different ways folks with ADHD stay on top of things.

Readers, let us know if you have specific advice for this situation!

allthingshyper

This is why sticky note reminders don’t work??

hesaidsidhesaid

SKLJDGBKJEDSBBV

VISUAL BACKGROUND NOISE?!

THERE’S A WORD FOR IT?

mixingpumpkins

Always reblog “THAT’S WHAT THAT IS???” posts. Chances are someone hasn’t seen it that needs to.

highlycaffeinatedhorsewriter

OMG THERE IS A WORD FOR IT?!

cinnamonscamander

Visual Background Noise

The reason I don’t notice my messy house.

progenyofworms

I have yet to misplace this to-do list

ms-demeanor

HOLY SHIT

That’s

Holy shit i want one, that’s incredible

deathdaydreamm

Mc D’s

satvrn046

@nothingbutanuglyfart I feel this may help you a bit

ily :)

adoring-suggestion

The adhd modes of food

1. You ate that burger so fast. You ate that burger so fucking fast and now the whole Red Robin is staring at you god what the fuck

2. You started eating like a normal person, but then you started talking or daydreaming and now the waitress is handing you the check but you’ve still got half a plate of cold fettuccine

3. You were going to go out to eat, but then you saw a video in your YouTube recommendation that drew you towards it like moth to a flame, and now it’s 10 pm and you’ve got an empty bag of tortilla chips in your hand and shame in your heart

4. Mac And Cheese