IIH Brains Trust

[iih-brains-trust]

250 followers! Thank you for all the support. This is amazing and we could t do it without you guys. So keep up the great work we are all doing in supporting each other and spreading our knowledge. And tba is to @amina_24fit for being follower number 250. #iihbrainstrust #iih #ptc #bih #spoonie #spoonielife #intracranialhypertension #chronicillness #chroniclife #chronicpain

[iih-brains-trust]

Which would you choose? Sleep for 8 hours a night in interrupted, or be pain free for 8 hours a day? Let us know in the comments which one you would choose and why. #iih #iihbrainstrust #iihawarenessmonth #bih #ptc #spoonie #spoonielife #soooniewarrior #choices #chronicillness #chronicpain #cantsleep #painsomnia

[iih-brains-trust]

The pain scale. Most of us at some stage have been asked what our pain is on a scale of 1 to 10. But what does that actually mean? Here is a good indication of what the 1 to 10 pain scale could mean to you and your treating medical professional. Do you think there is a need for a standardised pain scale? #pain #painscale #chronicallyill #chronicillness #chronicpain #iihbrainstrust #professionalpatient #spooniestrong #spooniewarrior #iih #bih #ptc #intracranialhypertension #mentalhealth #mentalhealthawareness

[iih-brains-trust]

Are you ok? We really want to know how you are travelling. Good, bad and ugly. We get it. #mentalhealthawareness #mentalhealth #bih #ptc #iih #intracranialhypertension #iihbrainstrust #spoonie #spoonielife #spooniestrong #spooniewarrior #chronicillness #chronicallyill #professionalpatient

[iih-brains-trust]

Fluoroscopy room. The fluoroscopy machine is like a video X-ray and is used in guided lumbar punctures. A CT machine is also used for guided LP's. #iihbrainstrust #iih #ptc #bih #spoonie #spoonielife #professionalpatient #lumbarpuncture #lp #medical

[iih-brains-trust]

Are you ok? With everything that has been going on recently we want to know, are you ok? #iih #chronicallyill #chronicillness #spooniewarrior #spooniestrong #iihbrainstrust #bih #ptc #mentalhealth #mentalhealthawareness #spoonie

[iih-brains-trust]

Are you ok? I know we ask this regularly, but it's not a throw away question. We really do want to know if you are ok. Having #iih can be isolating, and reaching out is hard, and often the bravest thing we can do. Through these posts, we hope to connect people, reach out, and make iih less isolating. So, are you ok? #intracranialhypertension #mentalhealthawareness #mentalhealth #ptc #bih #iihbrainstrust #spoonie #spoonielife #spooniestrong #spooniewarrior #chronicillness #chronicallyill

[iih-brains-trust]

Sometimes a good vent is all we need to let go of something. So go ahead. Lay it down here. Unburden yourself. See if you feel lighter. #iih #iihbrainstrust #ptc #bih #spoonie #spoonielife #spooniewarrior #spooniestrong #mentalhealth #mentalhealthawareness #depression #intracranialhypertension #instagood

[iih-brains-trust]

CT Computed tomography, or cat scan. It is a medical imaging procedure that produces 2D and 3D images of the inside of the human body using x-rays. It is common to get a CT scan before lumbar puncture and CT guided lumbar punctures. IIH Vocab 101 Learn the lingo with our series of common acronyms and abbreviations used when we talk about IIH. #iihvocab #iihbrainstrust #iihacronyms #iihabbreviations #spoonielanguage #intracranialhypertension #ptc #bih #spoonie #iihwarrior #pseudotumorcerebri #spoonietalk

[iih-brains-trust]

ONSF Optic nerve sheath fenestration, a surgical option that that reduces pressure on the optic nerve. Small slits are cut in the optic nerve sheaths allowing the CSF to drain. It is considered a sight saving procedure. IIH Vocab 101 Learn the lingo with our series of common acronyms and abbreviations used when we talk about IIH. #iihvocab #iihbrainstrust #iihacronyms #iihabbreviations #spoonielanguage #intracranialhypertension #ptc #bih #spoonie #iihwarrior #pseudotumorcerebri #spoonietalk

[iih-brains-trust]

VP shunt Ventriculoperitoneal shunt, that works by diverting cerebrospinal fluid from the shunt, placed on the skull, through tubing under the skin to the abdominal cavity. This reduces intracranial pressure. It is surgical method used to treat IIH for patients who have sudden or progressive visual loss, or intractable headache despite aggressive medical treatment IIH Vocab 101 Learn the lingo with our series of common acronyms and abbreviations used when we talk about IIH. #iihvocab #iihbrainstrust #iihacronyms #iihabbreviations #spoonielanguage #intracranialhypertension #ptc #bih #spoonie #iihwarrior #pseudotumorcerebri #spoonietalk

[iih-brains-trust]

Ophtho Ophthalmologist, a medical doctor with extra training to diagnose and manage disorders of the eyes and visual system. They are different from an optometrist who you see to check your eyes for glasses, although they can do this too. IIH Vocab 101 Learn the lingo with our series of common acronyms and abbreviations used when we talk about IIH. #iihvocab #iihbrainstrust #iihacronyms #iihabbreviations #spoonielanguage #intracranialhypertension #ptc #bih #spoonie #iihwarrior #pseudotumorcerebri #spoonietalk

[iih-brains-trust]

NO Neuro-ophthalmologist, specialist who treats visual problems that include the nervous system, like visual field vision loss and optic nerve problems associated with IIH. Neuro-ophthalmologists have medical, ophthalmology and neurological backgrounds to help their patients. IIH Vocab 101 Learn the lingo with our series of common acronyms and abbreviations used when we talk about IIH. #iihvocab #iihbrainstrust #iihacronyms #iihabbreviations #spoonielanguage #intracranialhypertension #ptc #bih #spoonie #iihwarrior #pseudotumorcerebri #spoonietalk

[iih-brains-trust]

Neuro Neurologist, a doctor who specialises is neurology, the study and treatment of the brain, spine and nerves. IIH Vocab 101 Learn the lingo with our series of common acronyms and abbreviations used when we talk about IIH. #iihvocab #iihbrainstrust #iihacronyms #iihabbreviations #spoonielanguage #intracranialhypertension #ptc #bih #spoonie #iihwarrior #pseudotumorcerebri #spoonietalk

[iih-brains-trust]

GP General Practitioner, or doctor. Often, they are your first port of call for every day issues and when you cannot get into see your specialist straight away. It is important to have a good GP who understands your needs and medical history. IIH Vocab 101 Learn the lingo with our series of common acronyms and abbreviations used when we talk about IIH. #iihvocab #iihbrainstrust #iihacronyms #iihabbreviations #spoonielanguage #intracranialhypertension #ptc #bih #spoonie #iihwarrior #pseudotumorcerebri #spoonietalk

[iih-brains-trust]

Paps Papilloedema, swelling of the optic disc, at the back of the eyes. This is caused by raised intracranial pressure. It is commonly seen in people with IIH, and can cause damage to vision. IIH Vocab 101 Learn the lingo with our series of common acronyms and abbreviations used when we talk about IIH. #iihvocab #iihbrainstrust #iihacronyms #iihabbreviations #spoonielanguage #intracranialhypertension #ptc #bih #spoonie #iihwarrior #pseudotumorcerebri #spoonietalk

[iih-brains-trust]

ICP Intracranial pressure, the pressure inside our skull. It is measured in millimetres of mercury (mmHg) with the average adult pressure measuring between 7–15 mm Hg. 20–25 mm Hg is the upper limit of normal, with a reading of above 25 mm Hg needed for an IIH diagnosis. IIH Vocab 101 Learn the lingo with our series of common acronyms and abbreviations used when we talk about IIH. #iihvocab #iihbrainstrust #iihacronyms #iihabbreviations #spoonielanguage #intracranialhypertension #ptc #bih #spoonie #iihwarrior #pseudotumorcerebri #spoonietalk