my pronouns are un/well

Courtney (They/She) - NZ - Chronically ill (ME/CFS, hEDS, POTS ☆ PTSD, OCD, OSDD) Just trying to survive

[itsmecourtney]

kinda fucked up how more conservative the world gets the more anti-drugs it gets

some of us need them

[itsmecourtney]

Upset that I don't have anything interesting to share, I'm boring at this point in time. Where did I go.

[persianmom]

my favorite hobbies include convincing myself that it’s best to not speak to anyone and withdrawing from the world in no particular order

[sapphling]

"drug seeking" as a patient label one of the most dogshit stupid concepts of all time. fuuuck everybody look out this guy came in here expecting medical treatment. better watch out in case he goes to a restaurant and starts food seeking

[joy-haver]

So many things would be better if doctors could just say “yeah that is a real problem but there isn’t much we can do to treat it so our only real recommendations are other things that raise your general health level to compensate”

instead they just say “thats normal” or “oh theres nothing wrong with you”. Because in their mind “it wont kill you and i cant fix it” means its not worth mentioning.

Affirm the problem doc, it wont kill you. Knowing that something just isnt the kind of thing doctors treat will save your patients so much time, money, and stress, all of which will improve their health.

[catmat]

Can we just take a second to acknowledge how absolutely traumatizing and terrifying it is to lose your health? Feeling yourself decline, not knowing if you'll get worse, but knowing the permanency of your new reality, is scary.

Often we don't hear about the fear that comes along with health decline. We are praised for being strong and for enduring so much. We try to keep going despite the terrifying feelings of knowing there is no going back from this. There's a lot of trauma we face, a lot of grieving, and a lot of repressed fears.

So I'm just here to say that these feelings are valid and you're not alone.

[pathologising]

I give everyone but myself so much grace it's crazy (its the trauma)

[little-miss-rasputin-pageant]

having chronic pain is just like. ur sitting perfectly still doing nothing meanwhile the space above your head keeps flashing -1hp -1hp -1hp -1hp -1hp -1hp -1hp -1hp -1hp -1hp

[wifegideonnav]

gonna be honest i don’t know how many more ‘enter the 6 digit code we sent to your phone’s i got left in me

[thornsinpudding]

Does anyone else with chronic fatigue feel like you can barely talk to people anymore?? I don't even mean like from a "I'm too exhausted to interact with people" standpoint, I mean like you can barely think of things to keep a conversation moving and end up making random sounds or going silent for super long periods of time to the point where it's unsettling and makes people distance themselves... idk, it almost feels like the worse my fatigue gets, the more lonelier I get because I can barely entertain a conversation and talk

[mysticxmoonlight]

can anyone relate 😭💔

[asexual-amanita]

Relying on a disability pension doesn’t mean you’re any less of a person btw. Your value is not determined by your ability to work full-time.

[gothredy]

[im-staying-calm-this-time]

Chronic illness sucks because you’ll catch yourself thinking shit like ‘I wish it was possible to bathe regularly’ or ‘they should invent a digestive system that doesn’t hurt’ and then realise… that’s actually the case for most people. That’s the norm. Not only do most people have that, they don’t even think about it

[memory-of-stargazing]

“It just means you have to work double as hard as most people!”

Well maybe I don’t WANT to work double as hard as abled people!! Maybe I deserve a BREAK!! Maybe I’ve been working MORE THAN double as hard for MY WHOLE LIFE and it’s led me to immense burnout & caused me to develop several MORE disabilities!! Maybe I should be ACCOMMODATED so I don’t have to KILL MY BODY AND BRAIN over trying to do what abled people can do!! Maybe I DON’T have to work double as hard!! Maybe if there’s the option to let me NOT work double as hard, I should have it, because I’m already working double as hard JUST TO SURVIVE!!

Why do you think disabled people deserve less rest than mentally & physically abled people?

[disabled-bug]

Idk what person with chronic illness needs to hear this, but you can do things to make your responsibilities nicer for yourself. You can get an ice cream after a blood draw. You can sit down for tv time after an injection. You can pick out the bandaids that have cartoon characters on them instead of the plain ones. Being an adult doesn’t stop you from benefiting from encouragement. Go for whatever fits with your routine/abilities/budget and makes life a little better. A spoonful of sugar helps the medicine go down etc etc

[fitnessadvicethatfitsinyourlife]

Drinking soda is better than drinking nothing all day. Eating ice cream for dinner is better than eating nothing for dinner. Eating salsa is better than having no produce in your diet at all.

Water is way more hydrating than soda, but soda is more hydrating than nothing. A balanced meal is way more nutritious than ice cream, but ice cream is more nutritious than nothing.

Something is better than nothing. Some hydration is better than no hydration. Some nutrients are better than no nutrients. Some produce is better than no produce.

Don't let societally imposed food guilt trick you into believing that nothing is a better choice. Nourishing your body, however you can, is always the better choice. Fed is best. Always.

[tragicburnout]

you’re absolutely feral. (compliment)