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Ashley Nicolei of LiveLoveManja shares her 10 year Diagnosis and Road to Remission Healing Journey with Rupa Health

Ashley Nicolei of LiveLoveManja shares her Lyme Disease Diagnosis and Road to Remission Journey with Rupa Health, holistic health platform and Stanford Alumni.

Her story is featured on Rupa Health’s website, blog, and social media accounts. The story features an interview exclusive in Rupa’s “Be Your Own Health Advocate “ series.

Read her story here.

Follow Rupa Health on Instagram @RupaHealth

Manja!

In sum: Ticks suck.

Self.com educating Readers on the Risks of other Tick Diseases and Infections

Thank you, Self.com. For creating more awareness in the subjects of tick bite related illnesses and insect borne related illnesses.

Education and communication is so important in empowering people to become more knowledgeable and educated in regards to their own health. Because, health is personal. Health is a case by case basis. And it helps to empower people with terminology they can bring up with their doctors, specialists, and health care providers. As well as research on their own.

Talking about it and allowing space to discuss symptoms, exposure, concerns, and terminology empowers people to be more aware of their health and helps in self-advocacy that can lead to an effective diagnosis alongside doctor, specialists, and health providers. Diagnosis and treatment can save lives. Sharing is caring. Knowledge and the willingness to discuss and question is powerful.

While we at Livelovemanja disagree that these infections and diseases are not “ not Lyme”, as several of the diseases the article lists are various strains of Lyme (others are co-infections). However, the list is still important and useful. The list still holds some truth as well as the disease and infection descriptions. The list sparks interest in readers,it generates research , self education, self advocacy, and an increase in knowledge and the willingness to research and discuss , as well as knowledge and support in the community.

So thank you for being a voice and for serving as a step in the right direction, by simply being willing to go there. To talk about it. To discuss it.

Manja!

The bill brings up some controversial questions about Lyme disease: Do some people continue to be sick after getting treatment? Do some peop

Lyme Disease bill is on a mission to help those suffering. To speak up for those who have had to turn to social media to out the discrimination and negligence, the toxic silencing in the medical community, insurance industry, and political community. Years and years of suffering, shaming, silencing, and insurmountable medical bills (for both insured and uninsured) for patients with Lyme Disease and Chronic Lyme Disease. Important Read.

#change #change.org #lyme #lyme disease #chronic lyme #chronic lyme disease #unknown autoimmune disease #autoimmune disease #chronic illness #discrimination #negligence #epedemic #lyme bites back #community #awareness #action #class action #lyme bill

GLA.Org (Global Lyme Alliance) @GlobalLymeAlliance and Lyme Awareness Month Instagram Campaign 2019

May is Lyme Awareness Month. Ashley Nicolei of @LiveLoveManja and @ashnicolei is contributing to GLA’s May 2019 Instagram and Community Awareness Campaign. She is representing the Bay Area and Silicon Valley Region, promoting Lyme Awareness during the month of May.

It used to be thought that Lyme is only in Connecticut and East Coast States, also that Lyme could only be transmitted by ticks (which is no longer correct information). Self-education, awareness, and community is everything in this battle, road to remission, and healing journey (for Lyme and Chronic Lyme).

Awareness begins with community, so Ashley will be posting these in various Bay Area/Silicon Valley locations to create more education and awareness in the area. Knowing what to look for (ticks and strange bites), the signs of a reaction, and how to properly remove a tick, as well as preventative measures (long clothing, bug repellent, washing clothes and materials immediately after being outside in ways that properly destroy the ticks etc.) are key in proper prevention, proper diagnosis, and proper treatment (should you be exposed).

Awareness begins with us.

Manja!

Everyone experiences heart related health issues differently. Sharing your story can save lives.

HealthStoriesProject.com

Saving lives through sharing stories of heart related health issues, stroke related health issues, and autoimmune disease. Share your story. Know the Signs. Save a Life (or many).

AI and Blood Clots?

Can implementing AI and Healthcare prevent Blood Clots, DVT (deep vein thrombosis), Superficial Clots? Clots that are a result of a surgery, an IV administered, regular ivs administered (chronic conditions), chemo, and more? Are clots something than can be prevented? Or something that cannot be prevented (unique to the patient, to the person) but that can be diagnosed or caught earlier?

For people who are more prone to such events due to surgery, chronic health conditions, and chronic health conditions that require regular IVs and blood tests, we wonder how AI can be implemented to improve this process. To make it safer during the process. And to prevent these scary, often misunderstood or unknown causes? Or, simply, to better understand the root and the WHY blood clots form and manifest in the way they do.

We have so much respect for the miracle work doctors and specialists do. We think that the human mind trumps all; the human mind is important and should not be replaced with tech and AI. Rather, work together alongside AI and tech and healthcare. There is room for all. And when there is room for all, even bigger miracles can happen. Miracles regarding science, miracles regarding discovery, miracles regarding data and case studies, miracles regarding saving lives, miracles in medicine.

Hemato Ozone, Leg IV’s, and Blood Clots: A Real Story from a Real Person with Real Life Experience (Managing Chronic Illness)

Hemato Ozone can do incredible and miraculous medical healing for patients. We learned through Ashley Nicolei of LiveLoveManja’s treatment protocol, that Ozone and the Blood Oxygen-Immune System connection is more important than we could have ever thought.

Low ozone in the blood (or low blood oxygen) can cause a number of problems and symptoms depending on the patient, pre-existing conditions, chronic conditions, genetic components, DNA components, age, demographic, and more. However, one thing we all share (or have in common) is the necessity for the abundance of blood oxygen. If the blood oxygen is too low, the brain and organs oxygen starve. This can manifest as chronic fatigue, dizzy spells, heart problems & blood pressure, chronic migraines, brain fog, thyroid, unexplained vertigo, sound and light sensitivity,and more. Low blood oxygen is also an ideal enviornment for cancer, Lyme disease, Mold & fungus, bacteria & virus, and toxins to thrive - they like an enviornment low in oxygen. When blood oxygen is plentiful, even if a person is exposed or carries any of these treats, they are often “unaffected” or thought as “immune” to which they are exposed to. Therefore, low blood oxygen = compromised immune system (immune system firewall down, vulnerable and susceptible to invasion). Plentiful blood oxygen = strong immune system. Hemato ozone treatments are so important for those recovering from cancer, Lyme disease, toxic mold exposure, and various autoimmune related illness.

Sometimes those with autoimmune or cancer have small veins, fragile veins. Veins that are very difficult for nurses and doctors to find. To insert an IV into and to administer medicine. Some veins like to hide, others turn into mush when the needle makes contact. Some even will take the needle, but burst (explode) or push out the fluids being administered. Sometimes these patients are given leg veins because the leg veins can be a little easier to find. However, what we want our fellow patients to know (from life experience) is that leg veins are also VERY HIGH risk for blood clots - both superficial blood clots and DVT (deep vein thrombosis). Superficial clots are painful and sometimes awful to look at, but they are usually harmless. Where as DVT is extremely dangerous, life threatening, and can kill within a matter of minutes if the clot reaches the lungs. A DVT always requires a trip to the emergency room where blood medication, a handful of lab test, and sometimes surgery are performed. Even superficial clots are often referred to the ER because it is extremely difficult to differentiate between a superficial clot and a DVT (which can be confirmed by CT scan and ultrasound). Not worth the risk to not seek medical attention should this situation present itself.

Ashley Nicolei was administered Hemato Ozone via leg IV at a clinic she went to for a few months in Los Gatos (differs from the clinic in Arizona). She is local to the Bay Area so she wanted to try a practice closer to home, to reduce travel costs. What she didn’t know, was that the leg IVs could be so dangerous and deadly. That the leg IV she got hemato ozone through got her hospitalized a few weeks later. She learned from both her medical insurance provider and Arizona Clinic Doctor that leg IVs are very dangerous given their blood clot high risk and should only be performed in life or death situations. She also learned, from the Specialist in Arizona, that Ozone is a toxin when administered directly into the vein (as shown above) - this treatment is referred to as a DIV (direct ozone). This treatment differs from the hemato ozone bags via IV, where ozone is injected into an IV bag of the patient’s own blood, and then administered via IV through a drip. The blood in the IV bag acts as a carrier (similar to how you would dilute a powerful essential oil with a carrier oil) so that the body can reap the effects and lessen the negative (sometimes toxic) effects. We share this information because often Hemato Ozone is misunderstood as a dangerous protocol - not when done properly. Administration of Ozone directly into the vein can be very useful and healing for some patients, so there is no need to eliminate it from being practiced as people are different and what helps some may not be the right treatment protocol for others. We simply write to educate the patient(s) on the risks & benefits of various Hemato Ozone administration protocols. Something Ashley would have liked to know before this experience - but all for a reason. She did get some benefits of the treatment too (faster recovery process than the treatment at Arizona Clinic) that are a noticeable difference. However, faster isn’t always better, to each their own. It’s a complicated and beautiful miraculous process, the process of recovery .The path to remission and deep healing.

We hope that through sharing her story, we brought a few of you more direction, clarity, support, and confirmation, and better understanding of the Hemato Ozone protocol. We the patients, as well as the doctors/specialists learn as we go. This is the beauty of life and of ever growing, changing, evolving science.

The search giant's push into artificial intelligence as a tool for health improvement is a natural evolution for a company that has develope

Google, Healthcare, and AI

NPR Reports: The healthcare and AI connection is an interest of ours that is growing and deepening. It looks like Google feels the same way. Click on the link to read more about how Google and its parent company (Alphabet) are looking for ways to incorporate AI and Healthcare.

Passion Project! Bring us on board with you, Google & Alphabet. You know what they say ... great minds think alike. All Googly eyed over the AI and Healthcare connection.

Manja!

Legislation to give Lyme sufferers insurance coverage for antibiotics, testing and doctor visits today unanimously passed the Illinois House

Lyme Insurance Bill passes unanimously in Illinois on March 28th 2019; a bill that will help those with antibiotic resistant Lyme Strains to get the insurance coverage they need to get well. It’s about time, as not all strains of Lyme can be treated with antibiotics and it is wrong to punish these patients with uncontrollable health costs as if they were not insured. Some are insured and billed as if they are not while others no longer have insurance because insurance terms them as “high risk chronic condition “.

Huge gains for the Lyme Community. Thank you to all who are making this change possible.

California, can we be next please?

Manja!

Instagram post today on pages @globallymealliance @whitehouse AI for Lyme Disease and Open Data Sharing. Empowering Patients with AI system, data utility, and CHOICE. AI is already incredible, but we just know that AI is going to do BIG things for Medicine, TeleMedicine, and Lyme.

Thank you for all you do, for taking this big leap.

For being persistent and for empowering patients with rights such as who they want to share their data with, how they want to share their data, and when.

How can LiveLoveManja be involved? This is a mission, a path, and a purposeful project we would love to be a part of.

AI and open data sharing for the greater good . For patient rights. For better patient diagnosis. And for better data sharing.

Manja

There are around 1,000 confirmed cases of Lyme disease in the UK every year with 75% of these sufferers too unwell to work. Sue Gilbertson w

How it feels to have Lyme, we almost cried when reading this blog post because many lymees can relate to everything she spoke about so bravely and so eloquently. Managing this illness is a full time job and mind boggling expensive. We believe in alternative medicine too; we believe in what works. If it works, keep doing it. And Alice, we believe you.

Manja

http://mylife-ts.adp.com/2019/02/3-big-misconceptions-about-health-care/

ADP & Lifemart brings up an important discussion topic for employees - healthcare. What we know, what we do not, and what we think we know.

For example, we were surprised to learn that medical costs reported to insurance and billed by insurance are not set in stone - wait what?! These rates are negotiable? For those business professionals managing a chronic illness often out of pocket costs can be large, expensive, stressful, overwhelming , and a financial burden. Not saying that all the costs will be covered as this is up to your insurance and state regulations- however, important to note that these rates are negotiable. Still overwhelmed? ADP payroll platform & hr merger suggests to hire a Health Advocate PHA to negotiate the costs and terms. So important for those battling autoimmune and chronic illness as many of these costs are not paid by insurance (billed as elective and out of pocket) while also pushing up our insurance premium rates because those with chronic health issues under the age of 56 are seen as high risk customers (age bias anyone?).

Informative and educational read at the link provided or click here to learn more.

Manja!

Recycle for Lyme with Terracycle & TickedOff Foundation ♻️

Ashley Nicolei of LiveLoveManja recently posted this great idea for lymees and other chronic illness patients who go through endless bottles of medications and packaging per the treatment protocols (some effective and some not so much) — all this waste, where does it go? The last thing a chronically ill patient wants to do is add to more waste. So reduce the carbon footprint, help out the planet, and help out those with Lyme Disease in need via this incredible program and partnership with @terracycle and @tickedofffoundation. Learn more via Foundation webpage at https://www.tickedofffoundation.org/recycle-for-lyme/

The Recycle For Lyme program is a combined effort of the Ticked Off Foundation and TerraCycle®. Participants collect specific recyclables p

See her post here:

About a year’s worth of out of pocket (not covered by paid health insurance full coverage individual plan) the big green bottles at $65 each, the yellow at $75 each, the blue at $45 each, the bigger brown bottle $300 each the smaller brown bottle $125 each and the plastic bag about $125 worth of syringes 💉 💚✒️ all this in addition to my health insurance premium of about $600 a month (not including copays for rx, labs, and appointments). No one chooses illness and no income demographic is immune to chronic illness - its a risk we take being human. These empty bottles with labels removed are being packed up and sent to @terracycle @tickedoffwithlyme a program that recycles and reuses medication packaging for Lyme patients who cannot afford medication and don’t have family or caregivers who can help out. We may not be able to change the world overnight 🌎 but we CAN help our fellow human, one life at a time. To be able to help someone else heal is an incredible gift and we would be so lucky to help save just even one. To those who have donated to my Lyme Fund - some of these packages are from your donations. Making a difference not just in my life but for others too. #lymedisease #lymediseaseawareness #lymewarrior #lymesurvivor #chroniclyme #donate #donations #medication #terracycle #tickedoff #recycle #reuse #gogreen #reducewaste #carbonfootprint #goodforhumans #goodforlymees #goodforplanet #health #healing #roadtoremission #youcanheal #yesyoucan #ibelieveyou #donateforlyme #recycleforlyme

You can make a difference. One life at a time.

Manja!

Ashley Nicolei of @LiveLoveManja at Longevity Institute Bay Area and Hemato Ozone Treatment

Ashley Nicole of LiveLoveManja is pictured above, getting her second Ozone out of ten (of 10 rounds) at the Bay Area based clinic. Ten rounds because 10 Cycles of Ozone create stem cells within the body. Stem cells can do truly amazing things for those suffering from Lyme Disease & Chronic Lyme, Toxic Mold Illness, Cancer, Hashimoto’s Thyroid Disease, Lupus, and other chronic autoimmune conditions. Instead of inserting stem cells, which can be expensive and very difficult to come across, why not invest in your body’s ability to generate stem cells through Hemato Ozone?

This photo was posted on Ashley’s Instagram account a few weeks ago @ashnicolei . She is so lucky to have a clinic in her locale now as she used to have to travel out of state every few weeks for the same treatment as that was the only clinic she could find at the time. She learned from this clinic that getting a treatment every week for a few months can be more effective and less invasive (less acute of a herx) because the “microdosing” prevents the Lyme from recovering during the time lapse of a few weeks. The consistency of one treatment, every week, is more effective in pushing the lyme into remission and less severe of a herx for the patient as the lyme dies off.

Note: A “herx” is the body’s reaction to treatment and lyme dying off, as lyme is living off of the body so the body temporarily thinks it’s dying when the lyme dies until it understands that the lyme is not part of the body and an invader (this happens with the immune system heals, no longer compromised). When Lyme is active, like Cancer, it reprogram the body /the immune system/DNA to think that Lyme is part of the body like a hand or an arm (not the dangerous invader and parasite it is). The parasite-host relationship, the immune system gets turned off (killer cells turned off) and the body is not alerted to the danger. When the immune system gets reactivated by Ozone (oxygenated hemato) it has a severe reaction to the lyme present as it is finally aware to the invasion and it hyperreacts, similar to the histamine reaction when the body has an allergic response to a medicine or food or protein (immune response).

Ashley’s experience with Round Two, Treatment Two, at Longevity Institute Clinic, Bay Area below:

I’ve got the whole 🌎 in my hands when I get this Hemato Ozone treatment. People with Lyme & Chronic Lyme often suffer from chronic migraines and vertigo or head under water sensations because their blood cells become short in oxygen- feels as if you were hiking in very high altitude but you are at sea level; or as if you were hiking up stairs but you are sitting down (oxygen starvation). Migraines and vertigo is the heart and liver communicating to the brain that there is a shortage in oxygen, the blood is oxygen starving, and trying to get the brain’s attention to FIX this dangerous shortage NOW . 10 cycles of ozone begins stem cell production within the body - your blood cells makes new cells from the hemato ozone - blood is a builder and the oxygen rich blood (healthy blood) begins to reprogram the sick cells or dna into healthy ones again. Although the treatment can be considered “alternative” it is not an elective treatment or one I (and others with Lyme) do just for kicks. This treatment has given me my life back, hope, and a second chance. It is time that we educate and encourage our health insurance and medical industry to cover such treatments (as one treatment costs about $850 out of pocket and I will have to go once a week for a few months to get back to remission). We are living in a time that BIG and positive changes are happening- take advantage of this time to make a positive difference, not just in my life and yours but for others too. Sharing is caring. #lymedisease #lyme #chronicillness #chroniclyme #chroniclymedisease #lymewarrior #lymesurvivor #livingwithlyme #hashimotosdisease #hemato #hematoozone #medicine #health #healthiswealth #healing #roadtoremission #yesyoucan #immunology #autoimmunedisease #immunetherapy

Manja!

Lyme Disease Biobank Registration

@BayAreaLymeFoundation & @NDRI Empowering Research & Discovery

Bay Area Lyme Foundation shared a wonderful resource with Ashley Nicolei of @LiveLoveManja @ashnicolei on Instagram.

For those living with Lyme Disease and Chronic Lyme Disease, your struggle is not in vain. Your data can contribute to a better diagnosis protocol, a better treatment protocol, and the case studies & data & research needed to persuade Insurance Companies to apply full coverage insurance plans to those living with Lyme & Chronic Lyme. Because, Lyme Disease (like Cancer/Diabetes/Thyroid Issue/Lupus) is not going to go away overnight. Also, it might flare up after a physical stressor on the body such as a future pregnancy, surgery, hormone changes for women later in life (menopause) etc. that may need care. Therefore, it is important for insurance companies to understand through data, case studies, research, and findings that long term care is both ethical and necessary for those living with Lyme Disease and Chronic Lyme Disease. Just as necessary as those living with diabetes, cancer, thyroid condition, lupus, etc. Why pick and choose? How is it fair to say one chronic condition deserves insurance and another does not? It’s not like these patients can choose which disease they want (or do not want) when they want it (age) etc. Through data, through evidence (tissue findings) we can be the change in this system that needs to happen in the industry.

Are you or a loved one living with Lyme or Chronic Lyme? If so, have you considered registering via the NDRI Biobank ? Your data, your contribution, could help others battling the same disease in the future. Link attached if you are interested, shared with us by the Bay Area Lyme Foundation.

Manja!

Interesting and informative Instagram thread conversation with @bayarealymefoundation on Brain Neuroquant MRI findings in patients living with Lyme Disease and Chronic Lyme Disease (pre and post treatments). Did you know that there is a program that people with Lyme can donate their tissues to for future studies and findings for those battling Lyme & Chronic Lyme? Sharing data allows for better and more informed case studies, research, and hopefully will lead to better diagnosis protocols, treatment protocols, and insurance programs for those battling Lyme and Chronic Lyme. Thank you, Bay Area Lyme Foundation, for sharing this invaluable resource.

Manja!

Hemato Ozone IV & Vitamin C Immunotherapy and Little Veins

Some patients/people have very small and delicate veins. This can be genetic, occur from dehydration or malnutrition, occur from thyroid conditions, be a side effect of medications or supplements, can be diet related, and more. Ashley of LiveLoveManja has small delicate veins that like to play games, take their sweet time, and repel needles (lab assistants and nurses compare it to a guitar string that pivots around the needle) or like rubber taht repels the needle.

We learned some valuable tips from the ND and his nurse when veins act up.

1. Drink a cup of bone broth a few hours before the treatment.

2. Drink water throughout the day liberally and make sure to pee before you get the IV.

3. Heat can help. Many labs will have heat packs that they can tape to your arm, hands, etc. where they think they may find a good vein. Wrapping a heating pad around the arm to prep it before the IV can also help, as the heat circulates the blood and brings veins to the surface.

4. Hands are good for lab tests, but not good for Ozone. The needle needs to be big enough to allow the ozone and blood cells through, too small of a needle will crush them. The arm and under the forearm (meaty part near the elbow) can be a lucky vein spot for those with small veins.

5. When absorbing vitamin C nutrient bag, hang up the IV high on the wall (or even on a hook from the ceiling if available). Hanging the bag high allows gravity to help the fluid be absorbed at a consistent flow.

The smaller mark was from the Hemato Blood Ozone treatment. This vein was small and moody so it took about an hour for the doctor to locate the vein and pull blood for the ozone. It took about 4 hours to absorb the drip, because of the vein being so small. Any faster or any bigger needle would burst the vein. But it was successful, good job little veins! The Little Veins that could ...

The larger mark was from the Vitamin C nutrient bag, Ashley was only able to absorb half the bag before her vein burst (the fluids started going into the side of her arm and bubbled up). If this happens, do not be alarmed. Remove the IV promptly and apply a heating pad. Stay with your nurse/doctor until the fluid bubble goes down (it should be absorbed by the body within a few hours). If the bubble does not go down it could be signs of a clot, which you will want to seek professional medical attention promptly (this is very rare, but possible). Thankfully, Ashley has not experienced such an event, her doctors and nurses have been taking very good care of her and are attentive and aware of the treatment protocol.

Once the bubble goes down, it will leave a nasty bruise (above). Trust, this bruise looks much worse than it feels, it is not very painful just tender. Make sure to wear loose clothing and avoid carrying anything heavy with the arm & hand until the tenderness goes away. Many clinics and offices will offer a bruise cream that can speed up the healing time & cellular turnover/regeneration. Put the cream on the mark every few hours until it begins to fade. The cream Ashley uses will be featured on the blog in our next post, stay tuned.

We will also feature a vein supplement product prescribed to those with chronic small, delicate,fragile veins. Taking one every day a few days before your scheduled IV can help.

Knowledge is powerful, community is a rich resource for those battling chronic lyme, lyme, and auto-immune as the body is incredibly complex and also a living, breathing miracle. What works for one, may not work for another. Chronic illness, especially Lyme & Autoimmune can be difficult to diagnose properly and just as difficult to treat. By people sharing and communicating, we can become better informed and self-aware about the healing journey. We can request labs, medicines, treatments, resources (medication reimbursements, insurance assistance, etc) that we may not have thought of or known about, unless we had interacted with blogs and community. LiveLoveManja SHARES because we care. Who knows, sharing can help save a life (or several) and this possibility makes sharing worth it.

Manja!

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