Spoonie In Training

I am more me then I have ever been because I met my other half, Diego. Life is what it's supposed to be with you.❤️

[varusteleka]

sitting on and touching warm rocks…………. now thats the good stuff…….

[diamondguls]

Are you….. A reptile ?

[untexting]

Does anyone else get those random rushes of motivation like, “I’m gonna be so fucking successful dammit, watch me”

[brutol]

best 20 minutes of the year

[marisatomay]

me: if youre dead you dont have to do homework or get stressed over school so it would eliminate anxiety

my therapist:

[ruinedchildhood]

💯🌈💯🌈💯🌈💯🌈

[bleed-in-ink-deactivated2017052]

Things I’m bad at doing consistently: > taking my meds > showering > brushing my teeth > eating 3 meals a day > getting up at a reasonable time > going to bed at a reasonable time > having fun > exercising > doing homework > doing homework on time > laundry > cleaning > basically everything

[defectivegembrain]

do you ever feel like you have dirty spoons? like you can do a thing, but it would be so unpleasant and unhealthy for you, it’s probably better not to. and you can’t wash the spoons, because that’s just not how it works. you’re just stuck with some dirty spoons and a bunch of tasks you can either do with the dirty spoons or not at all.

[royalmeatsuithostage]

What They Don't Tell You

When they diagnose you with a Chronic Illness they tell you the symptoms, the side effects, how it can progressively get worse, what treatment is available, hell they’ll even suggest what to eat but what they don’t tell you while you’re sitting across from them is how hard the rest of your life suddenly becomes.

They don’t tell you all your favourite hobbies that required a lot of energy might as well be tossed to the side.

They don’t tell you all your life goals and dreams get jumbled up and switched around and some even need to be put on the back burners until you’ve found a way to manage your symptoms.

They don’t tell you how every day from here on out is going to be an uphill battle with two wounded legs and the weight of the world on your back. And that there will be people telling you “You don’t look sick” or “You just have to power through it” or my personal favourite “My relative has a similar disease and she runs 8 marathons a year and eats nothing but kale”.

They don’t tell you how lonely you’re going to be. Your chronic illness gets in the way of hangouts, meetings, school, your job and the only socialisation you’ll be getting is from text messages or phone calls and that’s if your friends remember you- because they haven’t seen you in so long. Or worse they’ve stopped inviting you because you “can’t come out to play” because something hurts.

I’m learning all of this on my own. I’m learning how to live with a disease I didn’t think I would in a million years have. I was completely blindsided with how much this was going to take out of me.

I’m sitting here in tears because I miss being able to get out of bed and just do things. Because my body hurts. Because I miss my friends. Because I’m starting to think they aren’t going to be my friends in the next few days, hours, or minutes.

It sucks and it hurts. I hurt physically and mentally and I just want it to all go away.

[fitzyjm]

Spoonie problems:

Not being able to eat because of nausea, but you’re only nauseous because you haven’t eaten.

[forevrdreamingofbetterthings]

[loves3xri0t]

Me: I have a chronic illness

Person: I hope you recover soon

Me: Someone find me a dictionary STAT

[thesufferpuppet]

I may not be “healthy”, but I can use my own freezing cold hands as ice packs. So who’s the real winner here??

[magicae]

my hands were bothering me so I decided to draw on all the places it hurts. I had to draw some extra on my thumb because stretching it out made it worse.

(this was a great exercise to remind myself that I’m not exaggerating.)

[styna]

“It must be nice not having to work.”

Hey, hi, hello, “not having to work” and “not being able to work” are not the same thing.

[styna]

Things my body can’t tolerate:

- Heat - Cold - Humidity - Rain - Extreme Dryness - Over exertion - Mild exercise - No exercise - Standing up - Sitting down - Lying flat - Lying on my side - Lying on my back - Lying on my stomach - Sleep - No sleep - Eating - Not eating

[hippyelfchick]

chronic illness terminology

health-deprecating: spoonie signature style of humor, necessary to cope with a life of illness, but that makes most healthy people really uncomfortable or respond with a sad face instead of laughing along with you which is really a buzzkill.

netflix and pills: a typical day off/ hang out sesh.

illnesia: when you have an invisible chronic illness and you tell healthy people about it but a week later they develop amnesia that they were ever told. repeat x infinity.

brainfrog: when your brains are so mushy that you can no make words? spell?? think??? ribbit????

grandma candies: this is what I call my chewable antacids, but it can be applied to many medications.

Add your own!

[thischroniclife]

When I tell someone about my illness and they respond with ''You're like an old woman!''...

I’m like…

[thefaultinourstarscream-deactiv]

I’ve noticed that being chronically ill gets old for the people around you real quick

at first they show concern and send you well meaning “hope you get better” messages etc. but when it lasts longer than a few months, when it’s obvious it isn’t going away, most of them stop checking on you. I guess it’s just depressing to always hear that someone isn’t getting better, so they don’t bother. 

only a few people bother to ask how I’m feeling, which means a lot. it’s a lot better than being asked when you’re going to be better.

so, pro tip. if you have a chronically ill friend/family member etc, please refrain from saying “get better soon!” etc. try to ask how they’re feeling, if there’s anything you can do, and hope that they find some relief.