Kirsten

I just wanna cover my feelings up with tattoos ¯\_(ツ)_/¯

[catboykatebush]

Chronic pain is so exasperatingly frustrating to live with. It’s so hard to plan around, so hard to get anything done at all. Makes an already bad day much worse, and makes it incredibly hard to be present and nondissociated enough to enjoy the good things in life.

[lupusbaby]

Hey, if you have exhausted all the available treatment options for your chronic illness and you’re still not better, I’m sorry. We’ll find our joy despite our suffering. I promise we will.

[nonbeans]

Fibromyalgia is so ridiculous.

What do you mean the name just means "muscle hurt"

What do you mean the pain is worse when it rains

What do you mean its a whole body systematic thing that half of doctors think is make believe.

What do you mean my body is so tired I could sleep for ten years.

[insidestory1]

I think one of the biggest misconceptions about fatigue is that it's just a more extreme version of tiredness. Fatigue and tiredness are not the same thing. The biggest difference between them is that tiredness goes away if you rest, but fatigue doesn't. When you suffer from fatigue, your body keeps draining you even while you're lying down or sleeping. It's like a leak's been opened up somewhere and your energy keeps draining away no matter what you do. All you can do is wait and hope that at some point the flow will stop.

[asexual-amanita]

“I never let my chronic illness stop me from doing things!”

That’s nice, I do. Not listening to my body is part of what got me this bad. Sometimes you have to balance taking care of yourself and achieving your ultimate goals.

[stars-and-branches]

Chronic pain pisses me off cause I'm not even incapacitated for like a cool or badass reason instead my body is throwing the world's biggest temper tantrum because it's raining outside

[comorbid-curiosities]

sometimes I forget standing up isn’t painful and difficult for most people so I’ll be watching something like game changer and see the people standing behind their podiums the whole episode and think ‘wow don’t they need to sit down. how can they still think coherent thoughts’ and then I’m like oh. yeah. I have a disease

[goat-boots]

I copy pasted parts of this but I do hand letter everything, because while I'm trying to work easier as I'm chronically ill, I am still chronically stupid

[bpdohwhatajoy]

Being chronically ill in your 20s is stupid you have to see your peers like “started a family🥰” “got married😍” “bought a house😇” “scored a promotion😋” meanwhile you’re fighting for your life to take a shower

[evilwriter37]

They should invent a sleeping for people with chronic fatigue that actually works.

[shamebats]

"I don't want to be on meds for the rest of my life" couldn't be me. I will offer to personally suck off any team of scientists that manages to come up with a singular new medication for my condition that works and has no side effects I can't live with.

[mindflamer]

trying to get disability benefits is less like applying for aid and more like being put on trial for a crime you didn't commit

[lestatfag]

my ultimate fantasy is to have a brain and body that allows me to enjoy being alive

[stxrfiish]

body positivity can be so hard when ur chronically ill like ‘your body loves you and is doing its best to care for you ❤️’ NO THE FUCK IT IS NOT

[rimonoroni2]

there should be a such thing as a medical detective. you should be able to hire a doctor to figure out what the fuck is going on with you come hell or high water by consulting whatever specialists they can get their hands on, connecting your constellation of symptoms, etc, instead of 10000 different doctors for every distinct bone in ur body that all just kinda go "dang that sucks idk" when you present with more than one fucking symptom

[thisaliennerd]

chronic pain diagnoses are all like yeah we don't know what this is or why it happens. we also don't know how to treat it. good luck out there soldier

[goth-queen]