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@pandy1993
What is a fear of living? It's being preeminently afraid of dying. It is not doing what you came here to do, out of timidity and spinelessness. The antidote is to take full responsibility for yourself - for the time you take up and the space you occupy. If you don't know what you're here to do, then just do some good.
Maya Angelou
@0ceanstorm here are some of my daily exercises for arthritis! No the best quality though but I think you’ll get what I do ;)
Sometimes I do skip them especially when I’m in pain or did other exercises but I learned how important regular physical therapy/exercise is when it comes to treating arthritis! And make sure to search for a great physiotherapist that has experiences in treating arthritis. I have axial arthritis (you could call it Ankylosing spondylitis) so the exercises are focussed on the spine, butt and sacroiliac joint!
(Pic Sources: www.daytraining.de, www.kade.de, www.netdoktor.de, www.praxisvita.de, www.konzept-fünf.de)
Crohn’s Disease is not something you win against or something you beat. You can go into remission at times. You can make it through a flareup to the other side. You can have phases where you only have to see your doctor every few months instead of every couple of weeks. But Crohn’s is always there, hanging over you like an oppressive cloud. A cloud that you completely dread, but one that feels uncomfortably familiar at the same time.
That unsettling familiarity comes from the fact that Crohn’s is with you at all times, no matter how hard you work to control it. You can have the cleanest diet in the world and the strongest medicine possible for your body (Remicade or Prednisone or Humira or an infinite number of others), but Crohn’s doesn’t ever fully go away. You can keep it at bay. You can feel better than you have in years. But it’s still always right there, ready to pounce at any moment.
It’s especially noticeable in the big moments, even if you feel that you’re at your healthiest. The minute you plan a vacation, or get on a plane, or are offered a new job, it slinks into the room as a dark shadow that cannot be ignored. You’re imagining every possible circumstance, wondering what you could possibly do if your body decides to act up. And the answer is usually: nothing.
And even in the not-so-big moments, when you’re trying to relax on a Saturday or are just showing up at work for another ‘ordinary’ day, it can show up. And it’s isolating and exhausting and nerve-wracking. You’re out of the moment – just counting down the hours until you can go home and lay in your bed, or spending your Saturday evening wracking your brain for what you could have possibly eaten that destroyed your stomach today.
But as loud as Crohn’s is to you, it’s a fairly quiet disease to everyone else. The symptoms aren’t stereotypically visible, besides – possibly – fatigue. Even if you have scars, or a bag, from a surgery, they’re mostly hidden, seen only by the people closest to you. That makes your situation hard to explain, hard to relate to, and hard to translate to a person who has a clean bill of health.
So when these things happen (mostly regularly), it’s tempting to let Crohn’s turn you into someone ugly. It’s frustrating when doctors ask you to rate your health on a scale of 1 to 10, because you can’t really remember what ‘normal’ is supposed to feel like; your ‘normal’ is not everyone else’s normal. So it feels good to get angry, and to feel bad for yourself. It’s easy to let yourself sleep all day every day. It’s just simpler to give in to your situation and let it become who you are, rather than looking at it as just one aspect of you.
But even if you don’t believe that everything happens for a reason, even if you don’t believe in God or any sort of higher being, you can still take power from your situation. You can look at the way it’s affected your life and the perspective that it’s given you, and refuse to let it be something that’s only impacted you in a negative way.
Would you change it if you could? Of course you would. You would get rid of this thing faster than you can say ‘colon.’ But because you can’t (at least for now – come on, Science!), you can find power in other ways. The ability to control your body is out of the question, but what you can do is learn to appreciate the mindset you’ve developed from having a chronic illness.
Sure, you’re tired a lot. And angry, and worried, and jealous of those whose bodies can do what yours can’t. But you’re also probably tough. You’ve been in a lot of pain before and you’ve gotten through it. You’ve learned that if you want something, you have to be the one to make it happen, because there will be a million things trying to prevent you from getting it.
You appreciate your good health when you have it. You can see most days as beautiful even when they’re rainy or stormy or freezing, because feeling well enough to leave the house is all you need for a day to be considered lovely.
You probably find it easier to relate to others who are suffering – even if their version of suffering has nothing to do with what you yourself have been through. You have probably found a deeper sense of empathy, because nothing helped you more in your darker days than someone who made you feel less alone – even if they didn’t understand in detail what you were going through.
You don’t have to believe that you have this illness because it was ‘meant to be.’ You don’t have to believe that it happened for a reason – that it was the will of God or the universe or any other being. Regardless of your spiritual beliefs or lack thereof, you have the power in this situation – not to cure yourself, but to give your illness meaning. To take advantage of the perspective that healthy people don’t have. To appreciate the lens through which you look at the world – the one that causes you to be more tough and determined and curious and kind and awake.
When I was debating trying Remicade, a friend with Crohn’s said, “It helps a lot. You’ll look around and think ‘this is how normal people feel all of the time!‘” He was right in one sense. After a few infusions, I was feeling better than I had in a while; I felt almost as good as a normal person (though the effects have lessened since I started).
But here’s the thing. I don’t think anyone is actually ‘normal.’ We all have unique perspectives because we’ve all been through something or a lot of things. We’ve all suffered in one way or another. We’re all strong in different ways. It’s whether or not you choose to finding meaning within your suffering that sets you apart.
Crohn’s is your thing. Crohn’s is your outlook. And you can let it control you, or you can make damn sure that the pain you feel only makes your world more lovely.
Cannot reblog this any faster!
Don’t take sleep for granted...
I love sleep (like the majority of the world). However, I cannot remember the last time I had a good night’s sleep. I’m not just talking about recently, I mean it’s been over a year, at least, since I’ve had a good nights sleep! Most nights, despite being exhausted from work, lectures, or just getting on with life I still find it takes me a while to drift off to sleep. I mean, I could have run a marathon and still be lying there at 1:00AM counting sheep in the millions... And, even when I’ve drifted off, I’ll wake up after 6, 8, 10, or 12 hours and be just as exhausted as when I got into bed! I’ll have spent the night tossing and turning so much or having to get up to visit the toilet that I wont have time to recharge. This is the one thing Crohn’s has taken from me that I miss. It makes me feel crap, look crap, and act crap. People in my life don’t always get it. I try to stay happy throughout but without a goodnights sleep, trying not to snap at people when they wind me up or don’t understand why I feel so rubbish all the time is difficult. Although, have some people who may not understand, but try to sympathise, can be brilliant. Some of my lecturers understand that, if I’m late or have to miss a lecture because of my health, I don’t mean it. Some of my friends will come to my flat, or call me on Skype if I don’t feel like going out. I don’t want to miss life as is carries on around me. I want to meet and spend time with people, see the world, experience my dreams. I’m not going to let this beat me. Sometimes writing things down just helps express and order how I feel and help get my point across. Although, if you could turn a blind eye to the occasional Red Bull and dark bags under my eyes, that’d be great...
My tune that gets me energized for the day :3
So, as it’s the last day of #crohnsandcolitisawarenessweek (originally posted on the 7th) and the anniversary of my diagnosis of Crohn’s, I thought I’d tell my story as to help raise awareness. I’d been ill on off for about 10 weeks during my first teaching placement. I was having to take days off as I was in so much pain that I could barely stand. I was losing my appetite and weight. I was doped up on painkillers all day, and I struggled to concentrate on any work, an any work I did was sub-par at best. During a day trip up to Chester with my mum I started feeling off so we returned home, only to end up in A&E a few hours later. The next morning I was scheduled for emergency surgery. That was one year ago today, and it Definitely doesn’t feel that long. Since then I’ve spent over 40 days in hospital, and now have an ostomy bag. I don’t think people realize how traumatizing and exhausting it is to have IBD. I feel tired all the time, but can still find nights where I cannot sleep, I have to constantly watch what I eat, keep a lookout for a toilet and have no decent immune system, meaning I’m prone to tons of infections (which can making working with kids a total pain). However I carry on. I don’t exactly have a choice but I don’t plan on letting this horrible illness rule and ruin my life. Please help raise awareness, by sharing this post, or others! Remember, this can happen to anyone. #getyourbellyout
What helps flare up my Crohn's :
- food
- no food
- work
- laziness
- stress
- certain meds
- no meds
… Anyone else see some sick irony here?
New workout program! My lovely new gym has some amazing p-trainers and, as a free service, they create a training program for your unique needs!!! So I have 2 days of weight training and 2 days of cardio!!! Woop! Hopefully by Xmas I'll be looking FAF!
Meanwhile, in Scotland.
What cartoon is this
We all know that life with any chronic, lifelong illness sucks, when that illness is Inflammatory Bowel Disease in the form of Ulcerative Colitis or Crohn's Disease, it is shitty! (Pun definitely ...
Definitely worth a read :) Plus, being able to get a last minute appointment with any GP as number 11 ;) hahah
CHECK OUT MY DOCUMENTARY HERE: https://vimeo.com/ondemand/teamrebecca Share This Video: http://youtu.be/jV1_6Trm840 Subscribe To This Channel for all things ...
Hey all you IBD Warriors out there! Found this on youtube! Share it! Reblog it! Sing along! These guys need so much recognition for this! If I’d seen this before my surgery I’d have been a lot happier when I first woke up.
waking up and realizing you slept through your alarm
WHERE DO THESE GIFS EVEN COME FROM
The 7th circle of hell...
Was at comic con Dublin today and this guy was selling poster prints of the original 150 Pokemon... In pokerap order... The struggle is over!!
"I'm not impressed with you attempts at friendship." Well who asked you? It's literally none of your business! And maybe I have stuff in my plate too, like, I dunno, a bloody chronic illness for example?? Rather than dump your opinions on me, maybe take a moment to consider whether I need to hear them. I have my own life I am still figuring out.
This is my kitty cat. This is his kitty fat. It goes PAT-PAT-PAT.
1 million loops later…
I’m glad Yama is a cat, because if he was a person his ego would be exploding right about now.
2 million loops later!
Time for some Yama history!
Yama was a rescue! Val ( cinnieminni ) and I adopted him from a rescue event that we happened to pass by.
He and his brother were abused when they were just born, his brother sadly didn’t make it, but Yama was lucky.
His legs were so badly bruised when they found him they thought they were broken. With some rehabilitation he was able to recover well enough to be adopted.
He wobbles around a bit still, but he is now happy, healthy, and a total cuddle monster.
Val ( cinnieminni ) and I love this little dork a ton, he gets along super well with our dog Sugar (a 7 year old Jack Russell/Poodle Mix) and our other cat Ian (a 3 year old blue abyssinian).
Sometimes I feel like my sister is the only one that gets it 💚 She made this sign to let the rest of my family know how critically low I am on spoons today 😓 #spoonie #spoonies #chronic #chronicpain #100happydays #day50 for a helpful sister ✨
