Lapsed a bit on my PT care so was forced to get a new referral and a new PT. Turned out to be a blessing in disguise, though. I told my previous PT and my migraine specialist who referred me out to them that I believed I had hEDS and they both told me a formal diagnosis wouldn’t make much difference in care, which is kind of wild to say even without context. Initially I had asked if it would allow them to treat me with a broader spectrum of therapies but was told no. Turns out the spectrum of therapies wouldn’t be broader but they’d at least be correct. Today, my new PT was on board with trying spinal traction devices and teaching me to use them at home on my own because I feel as though I have a lot of compression in my spine. After I told her I suspected I had hEDS though she was like I’m going to test you for that first. I had already looked up the testing scale for it so just knew I had it but she quickly agreed with me. She followed this diagnosis by telling me traction is completely off the table and is actually counterproductive in treating me as is massage and a number of other common modalities I have utilized. Essentially just been chasing my tail with the therapies I’ve used in the past. So happy to continue to make progress in finding proper care so that I can manage symptoms myself rather than relying on all of these different specialists.
