#justspooniethings

[thementalspoonie]

Adulting wins as a spoonie looks like getting a new heating pad that covers your hips, knees, and hands all at once, for those awful flares. 👌

Just wish it covered my feet too!

[pineapplebear26]

Will someone tell my bladder to calm the fuck down

We don’t need to piss every twenty goddamn minutes

[lymeprincess]

When it’s time to take my meds

[Gif of woman from informercial opening a cupboard and after a brief pause, a mass of tupperware containers tumble out, knocking her over]

[thechronicallychill-blog]

Had a very long, very taxing weekend at the barn. I am completely out of spoons, but all my students passed their riding levels, so it was worth it. I’m taking this rainy today off work to recover and decompress. There’s definitely some things in life that are worth maxing out your energy for. It took a long time for me to accept that I can’t give all of myself to every area of life all the time. In fact, there’s still days when I get frustrated and hurt that my body has more limits than I want. On those days, I just try to remember that everyone has limits and thresholds, no matter how healthy we are. We live in a world that expects us to deliver a hundred percent on and off the clock. That’s not healthy for anyone and I actually think being a spoonie gives us an advantage in the fact that we can not compromise our self care for the sake of impressing our bosses, our families, or our friends. We have to draw the line much more aggressively than someone who’s healthy, so for as much as I hate having to take time off for my illnesses, I am grateful because they have forced me to grow up and stick up for my right to recover. #justspooniethings #spoonielife #spoonie #endometriosis #endometriosisawareness #endostrong #edslife #zebra #ehlersdanlossyndrome #ehlersdanlosgrrrls

[heatherwitch]

Good afternoon I slept in till 12:15 and am attempting to eat blended chili (cold) with a baby spoon because I have a craving but also have blisters all over my mouth and tongue...

[swimmiey]

I'm admitted in the hospital again. I was rushed in Saturday night, because of trouble breathing, tachycardia and tachypnoe. Sunday I've had a CT scan, and it came back with the news that I have multiple bilateral pulmonary embolisms. Doctors don't know how this could happen, because I'm on blood thinners and my INR was in range. Also my potassium levels were dangerously low.. so now I'm on even more blood thinners, iv potassium and oxygen. Also I'm being monitored 24/7 because my heart rate was so high and my potassium low. I'm feeling devastated knowing I can get blood clots and PE even when using blood thinners.. it makes my anxious. --------------------------------------------------- #pulmonaryembolism #justspooniethings #hospitallife #chronicillness #invisibleillness #intracranialhypertension #chronichope #totiredtofunction #totiredtosleep #thrombosis #thrombosisawareness #keeplifeflowing #spoonielife #butyoudontlooksick #spoonie #sinusthrombosis #sickandtiredofbeingsickandtired #sickbutstrong #headachefromhell #shortofbreath (bij Isala Ziekenhuis Zwolle)

[kronicallykieran]

I am an adult, I should not need diapers!

[just-spoonie-things]

I'll continue answering asks tomorrow. Sorry for the absence - I have my final exams coming up (Lord give me spoons) but I felt the inbox was in desperate need of attention. Bella x