Thinking of my old therapist who when describing what my myoclonus looks like in person said it looks like a minor epilepsy episode and a hiccup had a baby

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Thinking of my old therapist who when describing what my myoclonus looks like in person said it looks like a minor epilepsy episode and a hiccup had a baby
Wait I have not shown y'all my medical alert bracelet! So here it is:
Medical bracelet is from here:
https://www.etsy.com/listing/1791378847/custom-silicone-medical-alert-bracelet
And mine says:
Dysautonomia: frequent fainting
& Non-epileptic seizures
card in phonecase with details
Though I still need to update the card again 😅
Oh and for those interested, the heart rate smart watch is the Xiaomi Smart Band 7, which honestly I've been liking more than my previous FitBit, and it was like half the price of a new FitBit.
Shout out to folks with Myoclonus-Dystonia!
Experiencing myoclonus
"Myoclonus is a type of uncontrollable movement that includes sudden, brief involuntary twitching, jerking, or spasm of a single muscle or a group of muscles." Myoclonus is not a condition itself, but rather a sign/symptom of another condition.
I experience positive myoclonus, which is the sudden tightening of muscles. My head sometimes jerks to the side, my arms sometimes shake or even get thrown in the air, and I usually feel foggy or get a chill down my spine before it happens. I usually only get a few attacks a minute and can go hours to days without having one, and to me they are a mildly concerning nuisance.
Myoclonus can sometimes be indicative of a neurological disorder like epilepsy, however, many people have experienced benign myoclonus (you probably have too - hypnic jerks are a form of myoclonus). Physiologic myoclonus happens to otherwise healthy people and does not need any medical treatment. I consider my myoclonus physiological (or essential myoclonus) and I tend to get my attacks as a result from sleep deprivation or stress.
I've never seen people talk about getting myoclonic attacks from anxiety or insomnia, and how having muscle jerks can sometime be benign. Some people online have related to a similar experience as I have and worry that they have a severe neurological condition. I would say to get it checked out if you are really concerned, but I would like to help those fears by saying that in my case, it is definitely from stress and sleep deprivation, and perhaps a residual effect from my stimulant medication.
Hey there, do you have some cool sources on other types on involuntary movement that are not tics?
Yes, I do! Here is a list of involuntary movements, a simple description, and links to resources on them:
Akathisia -> an inability to remain still
StatPearls article
cleveland clinic article (very good)
Akinesia -> the loss of spontaneous, voluntary muscle movement
StatPearls article (free article)
healthline article
Athetosis -> slow, continuous, involuntary writhing movements commonly affecting arms and hands
healthline article
Chorea -> rapid, chaotic movements that seem to flow from one body part to another
NINDS article
StatPearls article
Dystonia -> sustained or repetitious muscular contractions; often produces abnormal posture
mayo clinic article
NINDS article
StatPearls article
Hemiballismus -> sudden, intermittent, flinging, or ballistic high amplitude movements commonly affecting proximal limb muscles
StatPearls article
Myoclonus → sudden, brief, involuntary muscle twitches
mayo clinic article
NINDS article
StatPearls article
Parkinsonism -> a clinical syndrome characterized by slowness, rigidity, tremor, and postural instability
StatPearls article
parkinson's disease vs parkinsonism
types of parkinsonism (parkinson's UK)
types of parkinsonism (parkinson's foundation)
Stereotypies -> repetitive, rhythmic movements with typical onset in early childhood
stereotypies in adults
medlink article
Tardive Dyskinesia -> uncontrollable and repetitive movements of the tongue, lips, face, trunk, and extremities
webmd article
Tics -> sudden, rapid, recurrent, and nonrhythmic movements or vocalizations
mayo clinic article on tourette syndrome
NINDS article on tourette syndrome
child mind institute article on tics and tourette
Tremor -> rhythmic back-and-forth or oscillating involuntary movements
NINDS article
classification of tremor
(at request I can find Tumblr or blog posts talking about personal experiences with some of these movements)
Basic definitions come from this article: https://www.psychiatrist.com/pcc/effects/drug-induced-abnormal-involuntary-movements-prevalence-and-treatment/
i see the neurologist today, would anyone be able to give me advice on how to get my concerns addressed properly? for context, i'm going for:
spinal nerve (mayhaps cord?) compression, causing pain, spasms, and weakness. i need medication for the pain & spasms, and nerve tests done on my limbs (mainly legs).
..myoclonic jerks and attacks? triggered by loud noise and fatigue, but sometimes the trigger is unclear. i have it on video, thankfully.
i'm nervous they won't give me medication and won't test properly, causing me to be misdiagnosed with FND, if I don't have it. like.. what tests should they be doing before they even think about diagnosing me with FND?
(im ok with this being reblogged for reach btw)
hi tumblr ur smart sometimrs can someone help me w uhhh ‘myoclonus’ spasms or whatever they’ve been consistently around n getting more frequent n now wont let me sleep bc i keep uhhh spasm n its annoying im tired thanks 👍