Writing Disability and the Idea of Cure
Heyyyy it’s me. Wanted to write about this following my post about Writing Deaf Characters.
Please note - this post is intended for people writing about disabled characters, not a nuanced, in-depth discussion of disability and the idea of cures. I’m happy to discuss that too, if anyone wants, but I’m not going to make a big long post about it because my thoughts and feelings are too complex to be summarized in that way. Anyway -
Conceptions of Disability
There are many, many ways of looking at disability. I’m going to highlight two here that are extremely common today in America. They each have upsides, and they each have downsides.
The medical model of disability treats disability as an individual medical problem to be solved. In this framework, disability is a bodily impairment that should be solved through medical means and medical interventions.
The upsides of the medical model include the fact that it acknowledges that disability or its consequences can be uncomfortable, inconvenient, and undesirable in themselves. Someone who experiences chronic pain saying they wish that they weren’t in pain is not ableist, nor is it self-hating, in the view of the medical model. This mode also prompts progress in seeking ways to medically alleviate symptoms.
The downsides of the medical model are that it does not acknowledge inaccessibility or ableism, nor does it allow for joy and identification with disability. The problems associated with disability are located firmly within the disabled individual - the problem is not with the world, but with the disabled person themselves. Disability is always something to be fixed or cured, and choosing to identify with one’s disability or feel proud of it is bizarre at best.
The social model of disability views disability as a social condition, wherein disabled people are impaired by ableism and an inaccessible world. In this framework, disabled bodyminds do not need to change, rather, it is the world and neurotypical, able-bodied people who must adjust.
The upsides of the social model of disability range from encouraging disabled pride to centering the massive harm that ableism and inaccessibility do to disabled people. It recognizes and promotes human diversity, and asks that the world adapt to the people in it, rather than adapting people to the world.
The major downside of the social model of disability is that in many cases, it ignores very real impairments that do affect people’s lives and treats bodily difference as irrelevant. Even if every set of stairs had a ramp beside it, a person in a wheelchair still cannot walk, though they will have the same access to places that people who are able to walk do. This difference matters to many disabled people, and acknowledgement or mourning of that does not mean that the disabled people in question are not liberated, or are experiencing self-directed ableism.
There are many other models of looking at disability! I may do a write up about that later if people are interested. If you want to do your own research, I would advise understanding the charity model, as it can be easy to slip into and is not a good thing. More positive models to explore are Discrit. Alison Kafer’s political relational model, and the general concepts guiding disability justice.
Adding this because I’m in the whump community, and it feels very relevant, so -
It is super tempting to inflict serious injuries on an OC for pain and suffering, and then have them recover very quickly with little to no lasting repercussions. Whump is imaginary, and people should do what they want in their writing, however, I would urge people to think about what messages they’re sending with these fast, flawless recoveries.
For instance: What fears do your whumpees have around acquiring disabilities? How does your whumper feel about their target acquiring disabilities? What are your caregiver’s goal’s in helping your whumpee, and what do they believe that “recovery” means?
What About the Idea of Cure?
The idea of cure is deeply complicated, deeply political, and ultimately, deeply personal. Everyone’s perspective on cure is different. For some people, being cured of their disability is a positive thing. For others, it constitutes an erasure of their identity and community.
For some, cures are not possible in their lifetime, or maybe ever. This can be a painful idea or a reassuring one.
Some communities more than others have a majority opinion about the idea of being cured. Most people know that Autistic people reject the idea of being cured, or even the idea that there is something to “cure.” Deaf communities tend to feel similarly. On the other hand, people with cancer, Alzheimer’s, cystic fibrosis, or degenerative muscular diseases may welcome the idea of being cured and the progress being made to cure them.
Some ideas of “cure” center on aborting fetuses that present with the disability in question. This is massively controversial, deeply painful for some, and personal to all. Some communities have public stances condemning the practice of aborting affected fetuses. Notably, this includes the Down Syndrome community and Dwarf community.
What Does This Mean For You And Your Writing?
As I have hopefully made clear, I am not in the business of telling people what to write. Many disabled people feel that it is not appropriate to ever write stories in which disabled characters are cured. My feelings are more complicated than that, but I won’t say that those people are wrong. I also won’t say that they’re right.
The following are some ways to think about disability and cure that might help deepen your characters. I am not commanding anyone to do anything; you can write whatever you want. Hopefully you find this interesting and very hopefully you find it helpful.
If you are writing a story in which a disabled person is not cured: Think about what that really means for them in terms of impact on identity, ability, and their life more broadly. How does their community react to the decision to avoid, or the lack of, medical solutions?
If you are writing a story in which a disabled person is cured: Think about your motivations for writing this particular story. How does this cure take place, and how does the character feel about it? What impact does the loss of their disability have on their life? How would a real-life person with that disability feel, reading your story?
Lastly, if you are writing about a diagnosis and the idea of cure comes up, please do some research into how that community feels about cures/medical intervention. Individuals in your writing may have different feelings about cure than their real life community, but it is worth thinking about why that would be.
If you are writing about a diagnosis and the idea of aborting affected fetuses comes up, please do some research into how that community feels about it. Please also understand that whatever your intentions, what you are writing about is a form of eugenics.
I promise you that real life opinions exist about all of these things and all of these diagnoses, and I promise you that these opinions are valuable and worth reading. Please think about what you are saying about those communities when you write.
Thank you so much for reading! If there’s something else you’re wondering about, or would like to see, please hit me up! If you want to talk about something in this post, please also hit me up! I am not infallible, nor is everything I’ve written an objective fact. I’m doing my best, and always happy to get feedback. Happy writing!
