#spoonie help

[cbspoons]

[softgritspoonie]

[firminfollowing]

Having the worst flare up ever right now :(

Tw: flare up vent, food and medical talk below the cut, possible emetophobia warning

I’m pretty sure I have some kind of delayed gastric emptying, and it’s been getting progressively worse these last few years, especially when the flare ups hit.

Water is my enemy but if I don’t drink it I’ll die so I have to choose being mega dehydrated and eating or being moderately dehydrated and not eating, and I am. So. Hungry.

I’ve found smoothies somewhat safe, but I can only have like 1/2 a cup at max and it takes upwards of an hour to finish.

I’m so nauseous and my stomach hurts so bad. I can tell like I can feel the C food and liquid in my throat/stomach, especially when I’m drinking.

This flare up has lasted nearly a week now (6 days), doesn’t seem to be going anywhere anytime soon, and I’m getting a little desperate. Have a GP appointment tomorrow, though, thank god.

Any suggestions for safe food ideas to try to eat, just something small and nutrient dense (good bit of sodium. maybe also protein?) to get down, would be great.

[headpainmigraine]

So, I've just started increasing my dosulepin to 3, after 14 days on 1 and then 14 days on 2.

I think it's had an okay effect on my migraines (I don't think my neuro will agree), but lately I've been getting these weird headaches

They're always on my left hand side, incidentally the same side I keep getting the supraorbital nerve pain

they're located like an inch above my ear, in the place between the corner of my eye and my ear

they feel like I'm getting a cramp in my brain, like a twist of really deep pain that comes out of nowhere and lasts for 15-30 seconds before releasing and then just leaves an ache

kinda feels like a toothache in my head

It's not a stabbing/piercing pain, so I don't think it's an ice pick headache (I've had those too)

and it's not like the nerve pain, so I don't think it's cluster headaches (surely they'd hurt more? unless I'm just used to it because daily migraines have mucked with my experience of pain?)

But I don't know what else it could be.

I'm still taking sertraline, just in the mornings now and the dosulepin in the evening, and that's the only med change I had before this started happening

Has anyone ever experienced anything like this, and what did it turn out to be?

I thought maybe 'brain zaps' because dosulepin is an antidepressant, but I've never had that coming off an antidepressant before, I'm not coming off any of them, and I've never felt them, so I don't know if this is what they're like?

They make my head ache, they make me feel nauseous and sometime I feel it in my neck/shoulder on the left side, but not enough that I'd think it was a muscle spasm thing

Does ANYONE know what this could be, or has anyone felt anything like it before?

I'm still waiting on an MRI appointment, but it's freaking me the math out, man

[another-suffering-artist]

Being chronically ill is lonely, painful, and one of the worst kinds of existences there is.

Dying with no death.

Living with no life.

[creativeronica]

A little help, friends?

I really need some help from people who are well-versed and/or experienced in parenting a child with ADHD (or are someone who grew up with it, so you know what works from experience).

A 9 yr old girl in my life is struggling with ADHD, having frequent meltdowns when she doesn't get everything she wants or has to do things she doesn't want to do.

Her dad is trying his best to help her understand why she needs to do certain things and not do others, and why she just can't get everything she wants.

She even sometimes pressures her friends to be immediately responsive to her texts and calls, sometimes repeatedly doing so, and making them upset or angry with her. She thinks her friends don't like her {or that they're being mean) if they don't respond right away or do what she wants (like come over to play). Her family has tried to explain priorities, how we need to give people space, how things don't always go the way we want (and that that's how life is and its not going to change because she cries and screams, and makes demands). 😢 I wish I knew how to help...

Her dad is really hurting because he doesn't know how to help her...and he freely admits that he doesn't always deal with her behavior well, and at times expresses anger with her by yelling and sometimes swearing at her. He's cried several times talking with me about the situation. I want to help them both - they're my dear friends. 💙

Therapy would be ideal, but her insurance is very high deductible, the family can't even remotely afford to pay, even with a discount or on a sliding scale basis...

Any ideas, recommendations, resources, anything that you feel would be helpful, please reblog or reply, direct message me, or send me an Ask.

[tiredoflyme]

Fellow POTSies,

Where do you get your salt tablets from? Both pharmacies near me don't carry them and I'm not sure what the best brand/supplier is online.

[cbspoons]

My body after a day of fun