Hey gang, if you’re an active follower of my blog you may have noticed I’ve been somewhat MIA and haven’t been posting outside of reblogs up until late May
Ive discussed my endometriosis here before, and how my obgyn sucks. But in February I saw an actual specialist to which everything sort of spiraled from there
(More under the cut) TLDR, I had a seizure in March due to some medication I was taking to combat complications caused by endometriosis. Fought in the trenches this semester of college because my brain was still cognitively recovering from the seizure, I thankfully passed all my classes. I’m a cane user now with balance issues and a stutter from my seizure. I’ve finally gotten enough of my energy back to continue blogging and to start drawing again!
Thank you to everyone who supported me during this rough time in my life, whether you commissioned me or just checked in on my page. Shit is still bleak, and I’m still in pain; But I’m seeing a pain specialist soon who may be able to help. Previous attempts at pain management didn’t work because I have the drug tolerance of a horse and my high estrogen production negates pain medication (which is an endo trait! I didn’t know that) Thank you again to you ride or die mutuals & followers as well as my friends on here providing emotional support during this difficult time
Fuck it, we ball
In February I went to the ER to address the pain in my leg, which I now know is nerve damage- I begged my old obgyn to send me to an endo specialist and they thankfully gave me a referral to one. The first meeting in March was really great and it was nice to have a doctor advocate for me. Her main concern (outside of my endo) was my nerve damage because it’s impairing me to such an extent I’m an ambulatory cane user- She prescribed me a an anticonvulsant medication to try to combat it.
Literally the day after I started taking said medication I was out with my friend and I ended up having a seizure. She thankfully caught me in time ans called the Fire Marshall and I didn’t sustain any major injuries, I split my chin and chipped my tooth a little bit but what’s important is that my cranium was uninjured, I had to stay in the hospital overnight for monitoring. I can’t remember much from March besides going to campus after a mandatory two week monitoring and struggling to do my work because my brain was still recovering from the seizure and I was all scatterbrained. I was juggling this injury, my nerve pain and my endometriosis all at the same time; I’m so thankful I passed this semester with all B’s considering my condition
In April I had an MRI scan scheduled by my specialist to make an attempt at imaging my endo- It unfortunately showed nothing, and my specialist said it’s likely either microscopic or the tissue is already so adapted to my lining that it’s embedded itself there. She recommended I try nexplanon (birth control implant) to see how it’ll work on me. I’ve had it for what’s gonna be two months and there is literally no difference pain wise, the implant worsened my migraines but I thankfully got my dosage upped for that medication to combat the issue. It takes a while to adjust to the implant so we’re just waiting it out. As for my nerve damage, I still haven’t found anything that soothes the pain other than vicodin; Which they obviously wont give me. It’s been a frustrating experience
All said though May has been the best month for me so far. I’m still in a lot of pain and it ranges from tolerable aches to I literally can’t walk without falling over. I’ve spent the whole month laying in bed but I’ve gotten the energy to draw and such back in the past couple weeks since I’m on summer break for uni now. Been drawing again, rewatching shows from my childhood, and honestly just napping for a third of the day
I very barely have psychologically/cognitively recovered from my seizure, I have some new tics, a stutter, and I’m a cane user now. I have my appointment with a pain specialist neurologist in June so I can hopefully find some relief. The source of the problem is my endometriosis, which is pelvic- So it’s inflaming the surrounding areas such as my sciatic. Worst case scenario I will need to remove my fallopian tubes since a full hysterectomy just increases the risk of heart disease which runs in my family anyway- But temporary relief for my nerve pain is the priority, since I can’t walk, to see if we can solve that issue without messing with my uterus; So far it’s not working. I will almost definitely been getting my tubes out. Doesn’t help that juvenile arthritis is also hereditary and I’m already developing it in my lower extremities in addition to all the inflammation. God let me live but he gave me a debuff in every possible avenue
Unsure if I’ll keep my ovaries but I’ll honestly take the early menopause over what I’m doing now. I can’t do much anymore because the pain sucks the life out of me and it makes me depressed asf. My mom and her side of the family are very supportive and we figured out that endometriosis is genetic on that side too, so I’ve been getting an extensive history lesson through some digging with my great aunt on who may have had it undiagnosed
Thank you to everyone who has commissioned me during this time and I thank you especially for your patience on both those projects and my slow return to blogging. Endometriosis is kicking my ass, but I’m still thugging it out
Changing my blog name as well to Bay Harbor Cripple. A friend called me that out of nowhere a couple months ago and I haven’t stopped laughing about it. Bay Harbor Butcher + Dr House = Bay Harbor Cripple… If I don’t laugh till cry about my newfound disability LMAOO taking the opportunity while it’s fresh, plus that’s the funniest fucking thing I’ve ever been called in my entire life. Fuck it, we ball ✌️
Been a difficult year since my last one. Hopefully this time it’ll be better, really excited about the criminology courses I’m gonna be taking this semester so I’m looking forward to that - A lot of new books for me to read on campus too hype
Wtf else can you do at age 21 I don’t smoke and I don’t drink and my luck is terrible for gambling 😭 ??? What else is there I’m cryin
This disability pride month, methinks physically disabled people should be allowed to hit one [1] person with their mobility aid(s) whenever someone excludes them from the disability community
Yes you have depression yes you have a neurodevelopmental disorder and yes it’s disabling. But acting like those are the only disabilities that deserve a voice is so disrespectful to those with physical disabilities who risked their health to advocate for everybody to live an accessible life! We do not need to play oppression or suffering Olympics or compare our suffering to someone else’s. Disability rights include everybody who is disabled. Period. Sit down be humble because we wouldn’t have any sort of federal or state or even CITY legislation without the strength and courage of those with physical disabilities
So yeah if you’re a physically disabled person with any sort of aid, you deserve to run atleast one person over with your wheelchair or wack one person in the knees with your cane/crutches for all the bullshittery people have the audacity to say about us
realizing that the online sphere and especially tumblr is NOT a good sample for ‘what everyone thinks’ is so, so, so good for your mental health and moral OCD. i swear to god. realizing that you don’t have to live your actual life like you’re being hunted for sport because the average tumblr user will hunt you for sport for wording something slightly weird or engaging in the wrong stuff or whatever is so incredible. like no you’re actually not fucked up and evil for not donating or for watching that one indie cartoon or questioning a post that everybody is agreeing with. that’s just tumblrs georg making you feel that way
The Bay Harbor Cripple @theserlingbucket - Tumblr Blog | Tumgag
