this blog is a place for disabled people to speak their minds. feel free to send in thoughts from your real life, community worries, or ask for advice. all disabled people are welcome. this blogs avatar is the disability flag, masked over a thought bubble shape, with a transparent background. this blog has no header image
this blog is meant to be a place for disabled people to speak their mind. wether your words are negative or positive, you can share them here.
people with any disability are welcome here. i do not want to exclude any members of this community.
i will try my best to word things plainly for accessibility. while i am doing my best to ensure this blog is as accessible as possible, i may not be able to notice everything on my own.
please dont be scared to reach out if you spot any issues with accessibility. i am just one person, and mistakes might happen.
this blog is not queue run right now, and asks will be answered as they are gotten, usually between 12 pm and 12 am pst. timezone conversion chart [link] for convenience.
i will try to not add to posts unless asked for advice or thoughts. most asks will be answered with a thought bubble emoji [💭]
blog rules, tagging system, and mod info below
tagging system
asks will be tagged as "#asks"
posts made by me will be tagged as "#mod posts"
swearing will be tagged as "#swearing"
slurs will be tagged as both "#slur" and "#[x] slur", with [x] replacing the first letter of the slur [for example, "#c slur" for a post with the word cripple in it]
rules
ableism is not welcome here. please do not use ableist insults in asks. while this blog accepts positive and negative thoughts, insults are not needed.
please be kind and patient to people that interact with this blog.
while swearing and slurs are allowed, only use slurs that you can reclaim. if a post has no swearing please avoid swearing in the replies/tags.
do not send in any overly sexual asks. this means any description of sexual encounters or activities. off handed mentions of sex are allowed, nothing explicit please. this blog is for all ages
mod info
you can just call me mod. i use it/its pronouns, but they/them is okay if you cant use it/its. i am a physically disabled adult, and struggle with a number of physical and mental issues.
i am often confused and have issues understanding or sorting things correctly. please bear with me, i do not do it on purpose.
i will do my best to keep up this blog on my own, though hiccups may happen because of my own disabilities.
your ask button saying "you are disabled enough" is awesome, thank you. ive just decided that i am going to buy crutches for myself, since while my cane is good for shorter distances or better pain days, i know that i need more support. this also makes me very nervous, since i do have a ton of thoughts about "not being disabled enough". my pain isn't excruciating, it hasn't been since i started using my cane, and i could get by with just my cane, but i know that just getting by isnt what i should be aiming for. its hard when my pain genuinely is at worst a 6 when using my cane, even though i know thats still not normal.
I HATE my disability. It gives me back arthritis and it hurts and I have to lie down all the time and I’m tired all the time and have to take daily naps and I get ulcers that hurt really bad and almost killed me and it is scary. I’m getting worse and I’m worried about my future. And I don’t know if I’ll be able to take my cat (she’s wonky like me) to collage and my whole family laughed at me and wouldn’t let me explain when I said the collage allows emotional support animals and that I could find a way to get her registered.
I’m so so scared and my rheumatologist told me that I just needed to ‘want to get better’ even though I have been trying so so hard for five years to get help. She said the pain was ‘just fibromyalgia’ even though I have a positive SED test and a ANA of 1:160 and already got diagnosed with Beçhet’s, which causes arthritis. She forgot to send in a mri order to make sure I don’t have meningitis and then never gave me a new one. Insurance refused to run a gene test.
I am scared but I don’t feel like I’m disabled enough and that since I can walk I don’t need help even though I probably need crutches.
I don’t love my disability their people on the internet do and I feel bad. A feel bad for thinking that I don’t want to be like ‘those’ disabled teenagers who don’t really need a cane but do it for fashion and cover it in stickers, even though I know that’s not how that works and those kids do actually need a cane. I feel evil for judging people like and I know I shouldn’t and I try not to. And the kids around me keep saying that’s I’m obviously autistic and I don’t know how to say that that makes me uncomfortable because I’m not developlyed delayed except for a stutter and that they are stereotyping and call me ‘quirky.’ But I feel bad for thinking that too.
I’m so upset over everything but my family will just tell me that I need to go to bed and I stopped going to therapy because she kept telling me to stop taking medicine and try turmeric or essential oils for my arthritis whenever brung it up and then she turned out to be antivax and took horse dewormer for covid.
I’m sorry for venting. I don’t have any other place to say this. Thank you
hi so I have cerebral palsy specifically spastic left hemoplegia and I’m an adult, but I just wanted to say that the immense pain I’ve been in for since I’ve remembered is so overwhelming like no matter how much I try to fix it it just doesn’t go away and it’s irritating I hate being in so much pain- 🍎🧃 (is this anon taken?)
Got a cane, and when I came home with it my mom had the absolute worst angry rant I ever had from her. I thought I was getting better at managing the storm, and I was gonna just, walk out on her. She threatened to kick me out if i did that.
I'm not ready to move out yet, I don't have income and I don't have a place I can crash at if she decides this wasn't just a hyperbolic statement in the heat of the moment.
So now I don't use the cane while the DNA donors are around the house. And she works at home a lot. It sucks. I dunno how I'm gonna get out of there.
Why does being disabled have to make leaving harder 🙃
i use a wheelchair and i spent all of today having to do stressful and painful things. i've had incontinence issues in the past but they had been better lately. i just realized i pissed myself at some point today and i have no idea when it happened. i didn't even realize the smell was me; i thought something got on my chair at the hospital. i would feel ashamed but i'm too exhausted. i can't stop crying. i really wish there was anyone i could talk to, but i have alienated everyone i know. i can't help feeling like i deserve this.
i have some sorr of chronic pain condition, but have seen all sorts of doctors for at least 2 years with no diagnosis. im at the point where im genuinely thinking this is some form of placebo and im not actually in pain. went to physical therapy for 6 months and nothing improved. do other people experience this?
i know many other disabled people with the same experiences. especially if you are young, doctors are not always good at their jobs. some treatments do not work the same for everybody
I sort of want to get a mobility aid like a cane or something to help me walk because it causes a ton of strain on my legs (I have hEDS and walking takes a huge toll on my legs), but I'm not sure how to go about asking for one. I mean, I'm really young (in my teens), and I guess my pain isn't as bad as my older sister's or my mom's for example, so I kinda feel like I don't deserve it, or I wouldn't be allowed to. It would help a lot, I know that for sure, but I'm afraid I will be denied one for being too young and not in enough pain for one. I've been thinking extra hard about it for the past two days because I think I pulled something in my thigh from running inside during a downpour and then when getting something I dropped on my other thigh. My back also tends to have a lot of strain placed on it as well whenever I walk or do physical activity for a little while. Do you have any advice on how I could potentially ask? And am I deserving of having a cane despite my condition not being that bad and my young age?
nothing makes you more or less deserving of a mobility aid. if a mobility aid would help you, that is reason enough.
i dont have much advice that i can give, because i havent been in a situation like this before. if your family already accepts you as disabled it may make it easier though. if anyone else can give advice it would be appreciated
This is actually a question so feel free not to post it but I don’t know where to ask it. Does anyone know why a lot of people type image descriptions in the post body instead of using Tumblr’s image description feature?
Not talking about when the OP doesn’t do an image description so someone does in a reblog, I get that of course. Is there a problem with the image description feature? Asking because I use it and if there is I’d definitely want to know so I can start doing it in the post body
I don't have a diagnosis, but I've been using a wheelchair the past couple of days. Even when I barely have the muscle to wheel up a hill and I make so little progress per minute, it still feels easier than walking. The muscle strain in my arms from wheeling up a 50m in 30mins is less draining than walking for 5 minutes. And yet I still feel like I don't "deserve" or "need" a wheelchair.
I have some mental disabilities (some diagnosed but I also have some stuff that's definitely not normal that's not diagnosed) and it makes it hard for me to understand a lot of deeper stuff in media and that makes it so hard for me to enjoy stuff made for anyone who's not a child because I just don't get it. Honestly I've just given up on enjoying stuff for older audiences there's like three different pieces of media I've actually understood not targeted for children and I read a LOT of stuff not targeted for children (but also a lot of stuff targeted for children as well.)
So often I'll hear praise for a certain piece of media and I check it out and then I just don't get it at all because uh oh there's stuff being Implied! And metaphors that aren't extremely common! So I don't get it at all and I just have to see people praise this thing that I will never be able to view the same as them just because I turned out a bit differently than everyone else.
My dog may be ableist but at least shes not as bad as my parents :v
(The dog doesn't know what a cane is and has a habit of trying to snatch anything that registers as a toy. I suspect canes fall under this parameter but I lack a cane to test the theory. I could really use one right now.)
I think I may have headmates, but I'm unsure and afraid of facing mistreatment if I get it on my medical record. I know this comes off as saneist, but it's genuinely from a point of distrusting the system itself rather than any feelings about plurality.
Is there ways I can learn more about this to make sure it's safe to discuss with doctors?
i would reccomend checking pluralpedia [link] for info. the main page has what i consider to be helpful information. seeking out more plural specific spaces may help as well, as this blog is far less focused on plurality. ive found many plural communities to be welcoming to those seeking information or unsure about their plurality
let it be known that a cdd [complex dissociative disorder] [link] diagnosis is not a requirement to experience anything that falls under the label of plurality, and seeking a diagnosis can be rather scary. i wish you luck in figuring yourself out
I really love my spoke guards and I love my wheelchair, I wouldn't be able to go anywhere without it. I wish other people saw my wheelchair in a positive way, I mean, it looks so cool!
i dont feel like im actually disabled. i have fibromyalgia, but so does my mom (and much worse), and she's somehow able to power through it. i have autism and anxiety, but other people like me have gotten a job and made a life, while ive been a NEET for years. i just feel like im making excuses and exaggerating because i like not having to do things or be independent. everyone around me has it worse. why am i being such a baby?
its important to remember that disability is not the same for everybody and while there is relatability between people with the same diagnoses, disability is not the same for everyone. the mental and physical strain of symptoms are vastly different for everybody, especially if you never learned how to cope with that. its important to give yourself grace. its okay to struggle in your own way
my best advice to learn to handle it is to try and push yourself just a bit beyond what you usually do. dont overexert yourself, but just push a bit. what helped us was going outside for a few minutes everyday just to get us out, and then we would go inside and do chores, and call our doctor to set up appointments. it is daunting, but its alright to ask for help if you dont know how to do something or what to do
Ive been dreaming of getting a rollator or wheelchair for so long and I might be able to get a rollator depending on how my next hospital appointment goes
I have hEDS and pots so it'd make a massive difference and stop me from being stuck inside 70% of the time and majority of summer
