POTS and what not

Sideblog about POTS, spoonie things, depression, anxiety and more. Feel free to contact me if you want to ask a question, advice or just talk.

[byjove]

nobody is faking POTS, fibromyalgia or ME/CFS for attention because nobody gives a fuck if you have POTS, fibromyalgia or ME/CFS. these are three conditions people are always accused of faking online (largely because they’re common chronic illnesses and young women are disproportionately effected by them 😃) and it’s like…..look around bitch. when was the last time you saw a fund for a cure CFS walkathon? you ever see a Google banner for fibromyalgia? these are illnesses that suck to have and that you are often treated like absolute dogshit by the medical community and pop culture at large if you do have them. you don’t get positive attention, or any attention at all, if you’re at home laying down 85% of your life.

[mindfulness-with-mo]

@danidonovan has signed her name at the bottom right of her artwork. Please give her blog a follow for more information on ADHD. 👏🏼👏🏼👏🏼

I also pull a lot of my information from additudemag.com. Thankfully, we’re learning more about ADHD every day!

Also, remember, that people without this diagnosis can experience these symptoms, as well. ADHD is more chronic and a daily struggle.

Happy ADHD awareness month all 🤗

[fibro-memes]

[tooies]

adhd making you unable to do something unless it's enjoyable and depression making you unable to enjoy things make for a particulaly tasty combination and by tasty i mean its ruining my life

[spooniestrong]

A Weird Trick to Get Doctors to Listen to You — Pain News Network

By Crystal Lindell, PNN Columnist There’s a lot of advice out there on how to get a doctor to take you seriously. Most of it is wrong. Lu

This ABSOLUTELY works.

I have used this for many years. Definitely b do it.

[genderqueerpond]

This article was super long-winded so I screenshat the important part

[spacelazarwolf]

the fact we’re responsible for getting doctors to “lower their defenses” in order to literally just do their jobs is ✨INFURIATING✨

[thelupuslady]

Whoops

[antichrister]

fucked that abled people in your life legitimately will get sick of you being disabled. "no offense but you're always tired" - oh im sorry! i completely didn't realise that MY body being chronically fucked and in pain was such a drag for you, really, ill make sure to keep that in mind like oh my god the fucking balls on people to say shit like that to us.

i will beat the abledness right out of you and make you go through the shit i do and im not joking

[beezlebutch]

"Pride month is over"

WRONG! Your pride month is over! Me and all the other disabled queers are having pride month two: disability edition

[teaboot]

Some rando: You should think about stopping your prescription

Me: My pills make me not want to die tho

They: You shouldn’t want to die, that’s not normal

Me: Yeah that’s why I’m taking my pills

[teaboot]

Again: But you aren’t the *real* you when you’re on your pills

Me: I’m the alive version of me

[teaboot]

An actual doctor, once: “Relying On A Chemical Crutch For A Hormonal Imbalance Denies The Fortitude Of The Human Soul”

Me: Cool so like I’m agnostic

[inner-muse]

They: “But you might be on pills the rest of your life!”

Me: “So?”

[illnessisnteasy]

Good! That means that I have a “rest of” my life to continue living!

Thanks to the pills.

[erinptah-admin]

Meanwhile, no person ever: “You should think about giving up your insulin/antiretrovirals/beta blockers/anti-rejection drugs/prosthetic legs/daily multivitamin, because using those your whole life is bad for some reason”

[teaboot]

Oh no, they do that too.

[living-deciduously]

I have a kidney transplant. A woman once told me she didn’t believe in organ transplants and that people should just die when they’re meant to. 

[teaboot]

Sounds like a great set-up for a murder

[teaboot]

People who are fully healthy, fit and neurotypical seem to think they are that way because they’re doing something right that the rest of us haven’t thought of, and not just because they got lucky

[gehayi]

Speaking of the luck of the non-disabled…I once terrorized a Karen who was using me to teach her entitled kid that disabled people are Other and should not be treated with respect. I told her (truthfully) that until I was twenty-eight, I wasn’t visibly disabled. Then a defective chromosome that I hadn’t known about kicked in. So my luck ran out. But until then, I had been normal–just…like…her. 

The sheer terror on her face as the concept of “You mean I’ve just been lucky so far?” seeped into her brain was a thing of beauty.

[missjudge-me]

People who are fully healthy, fit and neurotypical seem to think they are that way because they’re doing something right that the rest of us haven’t thought of, and not just because they got lucky

[deeksspeaksandsneaks-deactivate]

^^^^^^^^^^^^^^^^^^^

[feministism]

[wholeheartedsuggestions]

eventually you realize you don’t want to die. you just don’t want to live the life you’re living. and slowly you try to create a life you want to live. just gotta start there.

[wholeheartedsuggestions]

no one needs to add “sounds fake but ok”, “no”, “well, not me”, “impossible”, etc. to this post. and i’d rather you not.

[chaotic-diabetic]

Just because someone has a chronic illness doesn’t mean they are always required to be advocates, educators and spokespeople. Sometimes we just want to live our lives.

[inber]

Say you break your ankle. You could know everything there is to know intellectually about the injury. Even with this vast knowledge, you will still experience physical pain.

Now take this logic and apply it to things like ADHD, autism, clinical depression, and other less visible/divergent disabilities. You cannot think your way out of feeling.

That is to say: you are not a bad, lazy, or selfish person for struggling, even if you know why you are struggling.

[avocadomin]

hey guys!! back at it again with another survey for my thesis project. if you take any types of prescription medication and have 10-20 min please fill it out if you can!! it would be a HUGE help in the long run:

https://docs.google.com/forms/d/e/1FAIpQLScxCrGvFr5VJn5Whg_I10spp2DNQkg5hT7uM6ozXsiGFnSP0A/viewform?usp=sf_link

also this isn’t just for people that live in the US!! it won’t skew any data if you’re outside of the US.

[foreverscarredteen]

can we talk about how fucking exhausting it is constantly trying to distract yourself from your own mind? not being able to have any real time to relax yourself because you’re so terrified of your own head is so mentally and physically draining and if it’s something you’re going through i’m so sorry and i love you. this is a very real and common side effect of depression/anxiety/other mental health issues and more people need to talk about it.

[theprideful-deactivated20251201]

if you’re abled, please watch this

Transcript:

A tiktok reply to a comment that says, “an ambulatory wheelchair user? 😂😂😂”

The girl says, “I wasn’t gonna reply to this comment at first, but I decided I should make a video on it, because recently, I’ve gotten so many ableist comments about being an ambulatory wheelchair user, and I really wanted to address it. There are quite literally hundreds of reasons why someone could use a wheelchair. And actually, the majority of wheelchair users are not paralyzed. Over 60 % of wheelchair users are not paralyzed. They use it for some other disability. So just because you see someone who uses a wheelchair get up and walk for a few steps does not mean that they don’t need their wheelchair.

I use a wheelchair for like, ten different reasons. First of all, I have a condition called hypermobility spectrum disorder, which is very similar to Ehlers-Danlos Syndrome, for people who know about that, which basically means that all the connective tissue in my body is extremely stretchy and loose. This means that all of my joints are extremely hyper-mobile and they dislocate very easily. My hips sublux, or partially dislocate, almost every single time I try to take a step. It’s extremely painful, and it literally causes damage to my hip joints. My connective tissue disorder also caused me to develop a condition called POTS, or postural orthostatic tachycardia syndrome. This makes me pass out basically any time I stand up for more than, like, 20 seconds. So it’s not really safe, because I’ve gotten concussions from it before from passing out and hitting my head.

POTS and hyper-mobility spectrum disorder also come with extreme fatigue, and I don’t mean being tired, I mean fatigue. My muscles physically get exhausted much easier than other people’s. And, to top it off, I have a neurological condition called functional neurological disorder. Basically, it makes my legs go numb, it causes me to have extreme muscle weakness in my calves and thighs, and some days I can’t really move them that well.

Disabled people and ambulatory wheelchair users do not owe you an explanation, and you need to understand that. I am sharing this because I feel comfortable with it and because I want to, I want to educate this person. But you have to understand that not every person is like that, and quite frankly, it’s none of your business. Thank you.”

End transcript.

[the-curl-almighty-squad]

Friendly reminder that:

Young people can have arthritis too.

There are hundreds of life long conditions and diseases out there that are typically diagnosed between 12 and 30.

There is a vast difference between being tired and having chronic fatigue.

Just because you can’t tell that someone is unwell from looking at them, doesn’t mean that you should assume that they are ok.

Many chronic illnesses are life long, and incurable. Many of them are potentially fatal.

If you have a disease like Lupus, on good days you still feel like you have a bad flu, 24/7.

Many of the medications used to treat chronic conditions have side effects that can really affect someone’s self esteem - like extreme weight gain, skin changes and hair loss.

Most chronic illnesses have very little awareness - its unlikely that you’ve heard of Sjogren’s Syndrome, Scleroderma, Ehlers-Danlos Syndrome or Fibromyalgia.

However these diseases can cause symptoms as varied as joint pain, fatigue, constant nausea, kidney failure, pneumonia, photo sensitivity, full body rashes, paralysis, strokes etc.

So please remember that invisible illnesses exist too :)