#extradirty
official daine visual archive
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Game of Thrones Daily
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The Bowery Presents
izzy's playlists!
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let's talk about Bridgerton tea, my ask is open
ellievsbear
pixel skylines
titsay
Sweet Seals For You, Always
ojovivo
Andulka
tumblr dot com
if i look back, i am lost
@theartofmadeline
Cosimo Galluzzi
EXPECTATIONS
seen from United States
seen from Brazil
seen from United States
seen from Bangladesh
seen from Spain
seen from Malaysia
seen from United States
seen from Maldives
seen from United States
seen from United States
seen from Italy
seen from United States
seen from United States
seen from Malaysia
seen from India
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seen from United States
seen from Ukraine
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seen from Netherlands
@prettykittyash-blog
It's a fight... Every day.
My boyfriend and I have been together for a year but it's fighting, every single day. I'm so tired, and fed up, and I feel so unloved, but I have no where else to go, and no one to help take care of me. Welcome to America.
“dont let your disability change who you are!!1 youre still the same you!! uwu”
lmao no im not. see, being disabled isnt this cute little trend people think it is, its not like you can just choose to “be above it and not conform”, it isnt a temporary feeling thatll go away in a while like a broken arm or a sprained ankle, its agonizing and scary thing that has changed my life in so many ways.
what people dont understand is, in order for me to live with the changes that were forced upon me, i HAVE to change too. I have to learn and adjust to the life ive been given, I cant be the same person i was before, i wouldnt be able to survive if i was.
dont tell me not to change, because I dont get the choice in that, and neither do you. dont tell me “oh… youre different now” yeah bitch i am, its almost like my life has become dramatically different, dont come @ me for changing, for finding a way to live with my illness.
dont tell me not to change, dont guilt me up because im not the same person as before.
you dont have my illness, you dont have to deal with the changes, you dont have to change. so you dont get to talk to me about this shit.
you dont get to choose how i live my life, you dont get to choose how i change, when i change, and how different ill be, because i had to change to live with my illness. hell, I didnt even get to choose that.
and you dont get to tell me whether my change was for better or worse.
This is the money pentacle. Reblog and unexpected money will come to you!
Shiiiiit. I reblogged, and I got $750 in two days for basically nothing! The first day this client/POT asked my agent to invite some girls and I to his end. We basically sipped wine and left with $500 each. He called me yesterday and we took a ride on my highway and gave me $250😂😂😂. Money blogs everyday any day!
Won’t chance it.
Yo this shit works not even gonna front like I didn’t just get money
Let me reblog this 2x then 😂
Do the thing pls
im screaming it worked lmfao
Not to be a “tumblr witch” but I’ll try anything twice
Guys…. I didn’t think it would work but wtf….I just checked my email…
I have an extra $600 I didn’t have before ;____;
Lets go!
So I posted this on facebook and long story short 50 shades of shade happened in the comments.
link 1 | link 2
I never usually reblog informational stuff. But in this case it is something I feel very strongly about.
This, because more people need to see that 50 shades is nothing more then gloryfied abuse.
God I hate how hugely incorrect 50 shades of gray is about bdsm and it promotes abuse so much.
Say it louder
Hate?
I follow a YouTuber that is very opinionated. I agree with his opinions 90℅ of the time and enjoy watching his content. Lately I have tried using social media more (A.K.A Twitter) so I respond to most post. He happens to post around 10-4 at night which is usually when I’m up sick. Lately I’ve been getting a lot of hate, and people harassing me. Why can we not like who we like and comment what we want? I just think it is a little ridiculous.
What It’s Really Like To Be Chronically Ill Lauren Anne Society’s recent obsession with cancer stories and movies like The Fault in Our Stars made me realize that the average person doesn’t know what it’s really like to be sick. Chronically sick. What it’s like to wake up every morning and know you’re never going to get better. No amount of medicine, doctors, surgeries, and procedures can fix you. I think the reason why people today love to hear about cancer stories is because they are just that. They are stories. They have a beginning, middle, and an end. While that end may not be a happy one, people are satisfied with closure. But my story doesn’t have an end. And people don’t seem to like stories without an ending. Being sick isn’t as glamorous as they make it out to be in the movies. And unlike cancer perks, there are no “chronic illness perks.” Except maybe those really good lollipops at the doctor’s office. Those are definitely a perk. The worst part about being chronically sick isn’t the physical pain, it’s the emotional pain that goes along with it. You reach a point where you can’t hold back the tears any longer and suddenly you’re breaking down in the middle of a doctor’s office. You think you can escape the emotional torture; your disease is purely physical, right? The worst part is that there is no escape. There is no light at the end of the tunnel. There is no happy ending. There is no way to make the incurable go away. We learn to tolerate the physical pain. You have to. But it’s the overwhelming emotional burden that makes you feel like someone is holding your head down in the water. You can fight it, but you can never overcome that crushing feeling. How are you supposed to get rid of an emotional suffocation when the source of it is never going to go away? Being sick is being stuck in the eternal clutch of the unknown. Any day anything could go wrong, or at least more wrong than it already has. It’s so hard not to feel anxious or depressed or completely lost when all that lies ahead is a giant question mark. You rarely seem to get answers when you are sick. And when you do, they’re often the answers you wish you hadn’t heard any way. There’s one thing every single sick person wishes for, but rarely gets. Hope. Hope that one day things will get better. Hope that there will finally be a day when your pain is a zero on that silly little scale. Hope that one day you’ll get a glimpse of normal. I know technically being sick means my genes suck or my body just plain hates me, but somehow being sick has made me better. I may be biased, but I think that sick people — especially young sick people — are some of the best people you will ever meet. Now don’t get me wrong, healthy people are great too. But when you’re sick, you understand things that other people might take for granted. You learn to love every good second, every good minute, of any of those few good days you might have. You don’t fear death because you’ve already stared it straight in the face quite a few times. You know it’s not important to dwell on the little things. You have more important things to worry about. So as many times as I’ve wished to be normal for even just a day, I’ve appreciated my life, both the good and the bad, so much more as a chronically ill young person that I ever could have as a regular teenager. Being sick makes you strong. Being sick makes you weak. Being sick gives you insight and knowledge about life as it eats away at your own. Being sick is the greatest blessing in disguise. It is so much more than just having an illness. It’s having your entire life be taken out of your control, and fighting to get it back. And that fight will never end.
“what it’s really like to be chronically ill” by Lauren Anne (via cinensis)
Mayo Clinic
Has anyone been to the mayo clinic for their dysautonomia (allergies, heart, liver, ovaries, stomach, etc...)? If you have can you tell me what happened, and if it's worth it.
Birthday
Yay! I have survived another year!!!!
Dream
I had this wonderful dream that I went on a trip to see a friend of mine. We had a great time, with lots of silly adventures.
I am no longer friends with this man, but I miss him a lot. I don’t think I realized how much before my dream, but my whole day has been excusing under the weight of missing him. Had we not left off so terribly I would write him just to see how he was but he made it clear he was no longer interested in talking to me.
When you dream something so sweet, that your life turns into the nightmare it’s hard.
Update: I sought out my old friend, and we made some amends. Feeling much better now.
Sweet Text
My friend has wrote me a sweet text, which is great. However it was so sweet that I'm worried about him liking me. Then I have to figure out my feelings for him. And it is such a silly thing to worry over I know, but with my illnesses flaring up it seems overwhelming.
Spoonie Care Package Project
WHAT IS THE SPOONIE CARE PACKAGE PROJECT?
SCPP was created with the goal of giving those with chronic illnesses and financial issues a little pick-me-up by sending them a care package filled with items tailored to their liking. These packages will be funded by donors who are in a good place financially and want to help those who are not currently in a place to help themselves.
WHO CAN RECEIVE A SPOONIE CARE PACKAGE?
To receive a care package, you must meet all of the following criteria: - Must be someone with a chronic illness - Must be at least eighteen (18) years of age, or have parental permission to participate - Must have some sort of financial need, whether it’s being unemployed or in too much medical debt to be able to buy yourself small goodies - Must live in the United States at this point in time
WHO CAN GIVE A SPOONIE CARE PACKAGE?
Anyone can be a donor, regardless of your age, health, and location!
WHAT’S IN A CARE PACKAGE?
Each care package will be put together with the receiver in mind. Things that you may see in a care package include: bath bombs, candles, snacks, stickers, socks, stuffed animals, and coloring books.
I WANT TO BE A DONOR. HOW MUCH DO I HAVE TO PAY?
One care package is $25. You can donate for as many care packages as you would like. To become a donor, message this account for more info.
I WANT TO RECEIVE A CARE PACKAGE. HOW DO I GET ON THE WAITING LIST?
All you have to do is message this blog with the following information: - Your name - Your age - Your address - Why you would like a care package
WHO THE HECK IS EVEN RUNNING THIS?
The Spoonie Care Package Project is ran by @bendyandbroken and @flimsywrists
I HAVE ANOTHER QUESTION.
Feel free to come to us with any questions you may have!
This is amazing <3
Glasses
After a semi painful visit with an eye doctor, we concluded that I have an astigmatism in both eyes, more severe in my left, and I finally got glasses!
Success
So my blog is usually post of all the bad medical carp, but not today!
4 weeks ago I found out I would be babysitting my little siblings on Saturday mornings from 9-12 while they were bowling. I asked the people who worked at the bowling center, who run the bowling leagues if I could also play, and they made an exception, and decided to let me bowl despite me being an adult!
I had only bowled a hand full of times in my life, I could only stand and throw the ball, and on a good day I may have hit 50 pins, it was embarrassing. So I recruited my 13 year old sister to teach me what she knew.
I learned how to walk-bowl! I wasn’t good and it was embarrassing to be on a team with 10 year olds hitting 80-90. But in the last 4 weeks my learning curve is amazing!
I play 3 games back to back, no practice, 13lb ball, scores in order left to right games ending on the average, and vertically is weeks.
76, 80, 56- 70.6 42, 72, 91- 68.3 68, 67, 74- 69.6 89, 168, 90- 115.7 Average: 81.1
I bowled a 168! From my week 1-4 I went from lows of 42 to a high of 168!!!
Learned to bowl went from 42 pins to 168. If I can set my mind to something, and accomplish it you can too!
And yes I did mean carp >( >^) That is supposed to be a fish oh well :3.
I’m actually going to reblog a thing just because this is really important.
As someone who has epilepsy and used to have several grand mal seizures a day, I’d also like to add that “offer help” can range anywhere from keeping the person calm to explaining to them where they are and what they were doing to even just telling them they should sit and rest for a while longer (lack or coordination is common, and it can be hard to walk straight or see clearly).
It’s okay for them to take up to a half hour to fully regain their bearings and sort out what they were doing prior to the seizure. Just answer any questions calmly and be there for support.
If they come around and you start to panic or shake them or ask them what the heck is wrong with them they are going to freak out and panic too.
I cannot stress it enough that this is bad.
If someone has a seizure and they come out of it, please. please stay calm. They are likely disoriented and confused, even if it’s only for a minute or two, and you don’t want them panicking on top of that because they can have another seizure as a result.
IMPORTANT
IMPORTANT because last year a kid in my class had a seizure, none of us even knew he was at risk for them either so just cause you don’t think you know anyone doesn’t mean you don’t
stay safe
I have to stress how important it is to time a seizure. If it lasts more than a few minutes, call an ambulance.
DO NOT CALL THE POLICE. I’m dead fucking serious. I had a grand mal in public once and the POLICE were called and imagine coming out of the seizure, feeling like you got smacked in the head with a sack full of bricks, confused, dazed, in desperate need of some sugar to boost low blood pressure and some DIPSHIT has called the police and I was being threatened with being ‘drunk and disorderly’. It took a phone call to my doctors office to get them to back off. The police cannot properly deal with sick people.
Offer help can be:
assuring person where they are/what time it is
getting them something to drink if they can; seizure burns so much energy and does cause a blood pressure drop
getting them safely to transport or a carer
getting them some dignity like a blanket/towel [loosing control of your bladder and bowels is fucking horrifying]
ensuring they have a way to get home. Someone who has just had a seizure should NEVER DRIVE straight after
calling emergency services if you notice any of these symptoms because they may have stroked out.
Why you shouldn’t put anything in someone’s mouth: they will choke. Yes, they may bite their tongue but I can assure you it’s less traumatic than cracking your jaw on someone’s greasy wallet or choking on a spoon.
DO NOT HOLD ANYONE DOWN. Example: someone pinned my right shoulder mid-seizure a few years back and how I have a permanently displaced and clicking shoulder. Let the person flail around, those muscles are out of control and restraining them does cause more damage to the patient and you.
ALSO QUICK LEGALITY: YOU HAVE TO RECEIVE CONSENT TO HELP THE INDIVIDUAL BY LAW. I recently got trained with First Aid and Red Cross now makes it so you know how to help with seizures too, and the first thing you do when you’re trained is say “hi. My name is (name) and I am able to help, is that all right?” Do not leave the persons side until further help is received in the clear.
My brother is epileptic and this is IMPORTANT. Please give this a read!!
Cool body tricks
So my whole life I've been able to breath in through my nose causing enough negative pressure for my nostrils to collapse. Only 1/5 of my siblings can do it, other then me, and 2 people I found on youtube after doing hours of research can do it. If you can do this, or something else cool/ rare then let me know.
sometimes I wanna reply “bitch me too” to my mutuals posts but I’ve never talked 2 them so they might not see it as friendly joking so i just dont
reblog if it’s okay to say “bitch me too” to you if you’re mutuals
Food
So after vigorous research for recipes that I can have that I'm not allergic to, I have come to the realization there is very few things I can have. What I an have taste terrible, so really my only hope now is fresh vegetables, the few fruits I can have and mushrooms.
