Chronicles Of A Chronically Ill Girl

Not how I pictured my life at all

[inflamed-and-untamed]

When you’re on prednisone…

[chronicallyillblonde]

So sorry!

I’m so sorry I’ve been so MIA, life has been a little crazy and I’ve been learning how to cope with it all.

[slightlyaggressiveaffirmations]

TWO THINGS THAT ARE NOT YOUR FAULT:

1. YOUR DEPRESSION!!!

2. THE RESULTING LACK OF MOTIVATION!!!

(take care of yourself, and ask for help if you need it. this isn’t your fault and you don’t deserve to feel ashamed of it)

[painkillersandicecream]

Me when I finally show up after I’ve been asleep for 3 months, 4 days and 6 hours.

[thefibrodiaries]

Having both physical and mental heath problems can be so annoying especially when doctors play them off against each other.

 If I try to get help for a physical health issue and the doctor finds out I have mental health issues they will tell me my mental health is to blame and that I need to go away and get treatment for those issues if I want my physical health to improve and vice versa. 

 Maybe if they actually worked together to treat both the physical and mental health problems at the same time things may actually improve for their patients but nah it’s easier to just shift the responsibility onto someone else and let the patient suffer in the mean time.

[ihavehadnocourage-deactivated20]

I am learning to accept that not all “good days” involve feeling happy and achieving everything on the to do list. Sometimes a good day is getting out of bed when it was the last thing in the world that I wanted to do.

[likeafieldmouse-deactivated2015]

[stephaknee]

The Spoonie Life ^

[morespoonspls]

Every. Single. Day.

[whatshouldwecallchronicillness]

Sometimes after a doctor's appointment...

[september-raven]

When your body begins to fail you

There is nothing left to do but embrace it.

To wrap your broken arms

Around a skeleton that has become more cage

Than body

[creativeronica]

Don’t say stuff about my looks as a comment on my health.

Please don’t. If you like my hair/jewelry/makeup  then fine, you can say so (I don’t really style my hair or wear these things often, but that’s beside the point). But don’t tell me I “look like I feel better.” Maybe I do, maybe I don’t, but either way, how I look is not something you should use to judge my health.

Example:

sometimes rosy cheeks = healthy, well-oxygenated blood

sometimes = hot, painful flushing.

Also, I don’t want to have to be put in a position where I want to lie and say I feel better/I’m having a good day when I’m not…I’m just hiding it well.

[brittany-murphy]

[star-temeraire]

Its really fucking concerning that heaps of disabled/chronically ill folks are scared of doctors and nurses not believing or listening to them/giving them the wrong treatment/giving the wrong diagnosis

[noping-out-deactivated20241117]

Yeah but it’s not exactly an unfounded fear. We’ve all been abused, dismissed and misdiagnosed way more than we’ve been accurately diagnosed and appropriately treated.

Find me a seriously chronically ill person without medical PTSD and I’ll find you a unicorn.

[confessionsofadiabetic]

You know what absolutely boggles my mind? That healthy people exist. Genuinely healthy people. No mental illness, no physical illness, no chronic illness. Just healthy. What a life that must be. 

[geekandmisandry]

This fucks with my head though. There are people who get up and feel… Awake, and then they go and just… Do their adult responsibilities without feeling anxious or upset? They just return phonecalls? Answer calls from unknown numbers? Don’t procrastinate doing important things until is a huge problem that makes you cry??

That sounds fake.

[chronicallyillblonde]

Me everyday:

[365daysofbarbie]

me composing myself after having an anxiety attack

[youngchronicpain]

tfw some random stranger in public says “just wait till you get older!” when they overhear you talking about your chronic pain and you wish there was a camera to look at pointedly like you’re on The Office. 

[exigencelost]

Spoonies do you ever get into that zone where you’ve been an exhausted trance for hours forcing yourself to stay awake, and now you can finally go to bed except you *cant* because your body doesn’t know how to turn off the “stay awake your life depends on it” switch?

[nealedenaro]

I mean…this is literally my life.