#tegretol

[a-dull-aching-pain]

When doctors try to convince me to stop taking the medications that are keeping me functional, due to them not being safe 'if' I become pregnant.

*A gif of House from House M.D. saying "What's the opposite of thank you?"*

[justasensitivesoul]

Carbamazepine (Tegretol) crew.

[axe-boi]

since i started taking meds my mental health only got worse, i don’t know where i belong and i feel guilt because so many people are trying to help me and i’m not getting better :,) i was on antidepressants for like four days and now doctor suggested canceling them..... i feel apathetic and broken

[chronic-confessions]

Confession #4,691

This is more of an outcry because I have no clue what to do so I am eager to read the notes on this post and see what others think about my situation.

I am 21 years old and I have been experiencing chronic migraines since I was 8. In October 2018 I started experiencing all the symptoms of Trigeminal Neuralgia - but at the time I had absolutely no clue what that disorder was or what to call my pain.

After two weeks of being in agony every single day for hours on end, my mom took me to the ER to see if I could get treatment and they sent me home telling me there was nothing wrong with me and that I should take Advil for the pain. I was being driven insane - thinking that it was all in my head and not even having a name for my pain. I thought that it may have even been nerve damage from years of chronic migraine and nobody thought to mention that to me.

So I did some googling (which they always tell you not to, but I was desperate) and found the disorder called Trigeminal Neuralgia. It fit all my symptoms perfectly and I actually cried because I was so relieved to have a name for my pain. I managed to get an appointment with my neurologist - in January of 2019, and he have me Tegretol (Carbamazepine) for the pain, but it didn’t work.

It didn’t make the pain go away, it just made the pain transfer completely to the other side of my face, and carry on just as fiercely. And because of this transferance, he hesitated to call it TN and wanted to take me off the medication instantly

I’ve been off it for maybe about 3 weeks now and the pain has been - virtually completely gone since I stopped the medication. And it’s the absolute strangest thing ever. BUT when I was transitioning off the medication I noticed some other strange symptoms:

Numbness in my hands that persisted into pain - and I’ve had numbness in my hands before, which I was told can be a migraine symptom. But it has never gone on for this long and it has never been painful before. And I have also been having pain and numbness in my arm, and my legs. And I have had a lot of pain in my leg before, but I attributed it so a fall I had as a kid. And I’ve also been having numbness and tingly in my face

But the thing that worries me most is that my hands are so tender now and it feels like the slightest touch sends them into aching pain and this has never happened before. And I am worried 1) to mention it to my doctor because he’ll think that because the pain in my face (the “TN”) is gone and now this pain has come, that I am just making things up for attention and 2) I am worried that this looks like MS. I have an aunt who has it and I have no clue if MS is genetic, but if there is a possibility I have it, I want to speak to my doctor about it

But I don’t want to bring up these symptoms to my doctor if they are nothing

If anybody with MS or similar symptoms can reply to this post and tell me what this might be, that would be incredibly helpful. Thank you

[pharmaldape-blog]

carbamazepine

Generic Name: carbamazepine

Trade Name: Tegretol

Therapeutic Class: Anticonvulsants

Pharmacologic Class: Iminostilbene Derivatives

Indicated Uses: Partial seizures and tonic-clonic (generalized) seizures.

Adverse Effects: Nausea, headache, dizziness, unusual eye movements, visual change, behavioral changes, rash, abdominal pain, abnormal gait, GI upset

Black Box Warning: Screen Asian patients with blood tests for genetic risks of skin reactions. Aplastic Anemia and agranulocytosis have been reported in association with carbamazepine therapy. Obtain complete pretreatment hematologic testing as a baseline. If patient exhibits low or decreased WBC or platelet counts, monitor patient closely.

Pregnancy Considerations: Drug may cause fetal harm. Drug may affect lactation so breastfeeding not recommended.

Nursing Considerations: Watch for worsening of seizures or changes in mood.

Drug Interactions: Anticoagulants, Seizure medications, MAO Inhibitors

Patient Teaching: Avoid drinking grapefruit juice while taking carbamazepine. Take with food and shake suspension well. Keep away from moisture. Periodic eye exams are recommended.

[snarp]

I don't know what the hell I did to my right hand that it feels like I tried to use my thumb as a screwdriver! But I do feel better today! Thanks 2nd day of Tegretol and/or sleeping ~36 of the past 48 hours!

[snarp]

Cut for me talking about an uneventful medical appointment.

I had a “follow-up” with my GP this morning, the last time I saw him having been before any of the neurology stuff or the Depakote crisis or etc etc. I spent ~20 minutes explaining the current situation.

Dr. Zoom: …So, I have no idea what to do here?

Me: Yeah -

Dr. Zoom: I get why you’re waiting until you feel more stable to start the Tegretol, that makes sense, I’m not going to try to - I don’t know, convince you to rush it - but trying that does seem like a good next step from my understanding of the situation… I’m just, uh, trying to think of anything I could do that might be helpful to you right now…

Me: - Okay, so, I’m taking Prilosec for acid reflux, and recently it’s not really helping all that much, but I’m on the lowest dose -

Dr. Zoom, very relieved: Oh! Yeah, okay, I can totally write you a prescription for a higher dose of Prilosec, hang on just a second and let me do that!

My skills: make competent doctors sad and bad doctors pissy.

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