Living That Chronic Pain Life

[noping-out-deactivated20241117]

Me: “This thing is ableist.”

Ableds everywhere: “I have done that and therefore it’s NOT Ableist how DARE you say that.”

[spoonieofmayo]

Spoonie life

When you think you’re much better because you don’t feel like death all the time and feel like you’re able to do stuff again, but then once you do one thing realise that your energy levels aren’t actually improved, it’s just that you’ve cut down your energy usage so much so that you’re no longer suffering daily, but Doing Things immediately brings that suffering right back

[spoonie-isms]

"as long as I'm asleep, everything is fiiiiiiine"

[theconcealedweapon]

If someone says they can’t do something, the correct response is “Let’s find something you can do that can achieve a similar desired result.” not “Yes you can.”

“Yes you can” is not motivating someone. It’s denying their personal experiences.

[spongebob-autisticquestions]

To other autistic people, are you sensitive to sunlight?

[autistickeely]

Yes very!

[gotautism]

Yes, especially on white concrete & reflective surfaces, like cars and windows.

[teainapot29]

Extremely! It’s also a migraine trigger for me.

[chronicpainshitposts]

Bad news: your body feels like shit

Good news: it isn’t as bad as it was during that one week back in December

[big-gay-bird]

Would be willing to reblog this if you deal with Chronic pain and/or identify as Spoonie?

I’m really struggling right now  and I just want to find folks like me to follow so I feel like less alone.  

[thankyouforstaying]

me: chronically ill

someone: have you tried-

me: still chronically ill

[spooniestrong]

MIGRAINE:

- 36 million sufferers in the US

- hormones

- light sensitivity

- throbbing pain

- visual disturbance

- 4 to 72 hours

- no cure

- 10% of school age children affected

[autisticjoy]

straddling that thin line between needing time alone because literally all human interaction drains you but not isolating yourself because that makes you spiral

[cripplepunk-suggestions]

Disabled characters can get a happy ending without being “cured”.

[wilwheaton]

[teainapot29]

[spoonielols]

[teainapot29]

It can be really frustrating and upsetting as an autistic person, to be constantly misunderstood and talked down to. I don’t want to think in a manner that’s more neurotypical though. I just want the neurotypicals to take the tiny bit of time needed to consider what it is that I’m saying. To use their privilege to try to understand me, instead of expecting me to do the work.

[endangered-justice-seeker]

It’s easier to think of someone as “lazy” than to face the fact that school costs too much, that better jobs are inaccessible, that childcare is unaffordable, that people are forced to work so hard for so little that there’s no way they could have enough energy to attempt schooling or finding better work, and that what we give to people who can’t work is insufficient to the point of being shameful. I could say that calling people lazy is, in itself, lazy, but it’s not just an intellectual shortcut. It’s a defense mechanism.

[teainapot29]

So clearly written. ‘Lazy’ is a social construct used to undermine our value.

[nekobakaz]

Instead of Light It Up Blue for Autism Awareness, Red Instead for Autism Acceptance Month. 

[lesbianbettyboop]

yo being black and depressed is hard as fuck. being black with anxiety is hard as fuck. being black with a chronic illness or disability is hard a fuck. everybody expects you to be ‘strong’ at all times and no one sees black people as complex or nuanced enough to be capable of suffering. no one ever thinks we could possibly need help. and if you’re a black woman, the moment you stop thinking about others and try to tend to yourself you’re a selfish lazy ungrateful bitch.

support black people, esp women, who need help. don’t just call us strong or tell us we’ll get through it, help us. protect us. uplift us. allow us to be beings capable of suffering. give us the same space you’d give white women to express our pain and be there for us like you would for anyone else. 

[lesbianbettyboop]

don’t just like this, reblog it!