Practically Bedridden and Proud

I have to have a new outlook on life as my entire life has been changed since being disgnosed with Fibromyalgia, Chronic fatigue syndrome/ME, Adrenal Fatigue, TMJ, IBS, and chronic pain(myalgia, arthalgia). My tumblr feed will now focus on chronic diseases (yes disease) and how to live with them. Also just great positive things to make everyone happy, especially me. Also there will be venting so feel free to do the same!

[spooniewarrior]

Life with Chronic Fatigue Sydrom

[twistypie]

This. Happens. Every. Morning.

[twistypie]

Spoonie problems

Friends and family: I have to shower everyday, it's so disgusting when people don't shower everyday, sometimes I shower twice a day.

Me sitting there quietly thinking to myself: well I'm lucky to shower every 3-4 days but I guess I'll keep that to myself...

[thischroniclife]

The best advice I ever received on how to deal with unsupportive people...

In the immortal words of Albus Dumbledore…

[melia162]

You know you’re chronically ill when the nicest thing someone can say to you is “I looked up your condition on the Internet…” Im always amazed and touched when someone cares enough to do that :)

[all-the-other-urls-are-taken]

"I’d love to not have to go to school like you!"

No. You’d love to not have to go to school but still be 100% healthy and able to function, and not worry about schoolwork or exams or qualifications or your future, and be able to go out and do fun things with your friends instead, and still having the physical capabilities to be able to go back to school if you wanted.

They are NOT the same thing.

[personallyyoursrobyn]

Dear non spoonies

There’s a difference between giving up and acceptance.

[twistypie]

I've been trying to explain this to my parents

[emilysscribblenotes]

I think people don’t understand how frustrating and hurtful it can be when they say “I know how that feels”.

No, you don’t.

Please don’t invalidate my months of suffering, pain and disbelief because you’re tired due to a common cold. It is not the same.

[disorderdconduct]

When I was a kid and adults would ask me,”What do you want to be when you’re all grown up?” I never thought to reply with, “healthy.”

[thischroniclife]

What every person with a chronic or mental illness needs to hear...

And…

Remember, take care of yourselves.

Love and spoons,

Xx

[personallyyoursrobyn]

Just to make it clear

You can be able to walk & still need a wheelchair.

[twistypie]

And use a moterized cart in stores! Power to #invisibleillness

[cfs-anonymous]

Whenever someone starts a sentence with 'when you get better...'

I’m like:

[twistypie]

She a very sick girl. Shes very sick. Healthy people don't have results like this.

My Dr

[fragmented-fate]

Kill me.

[twistypie]

Muder suicide let's go lol...

[neecygrace]

Today’s picture for invisible illness is a personal one. This is one of about 30 notes that my friend has received since using her handicapped placard. I’m going to say this to you, have you ever seen someone get out of a car parked in a handicapped space and said to yourself “they look too young or they don’t look disabled.” I’m going to go with yes you have, because we all have at one time. I can’t remember doing it, but before I understood the difficulties of invisible illness when I was younger I probably did. Let me ask you this though, when you had that thought was it because you knew with 100% certainty that they weren’t handicapped or did you assume that because of their age and/or not seeing a cane, walker or wheelchair? All I’m asking is that we stop and think when we someone need a mobility aid, park in a handicapped space or say they are disabled that we remember this “DISABILITY HAS NOTHING TO DO WITH AGE OR APPEARNACE.” #spoonie #invisibleillness #disability #chronicillness #rheumatoidarthritis #lupus #fibromyalgia #myofascialpainsyndrome

[crohns-sucks]

If nothing else, this post needs to be seen around the internet more. This harassment is not okay and no one should have to deal with it on top of having an invisible illness. This is just another form of anonymous bullying to add to the internet bullying these TROLLS are capable of.

If you are healthy, please reblog. If you are sick, please reblog. If you have a disability, please reblog. If you have an invisible illness, please reblog. If you know someone with a disability, please reblog. If you are a human being, please reblog. Let’s spread the word and help those of us that may not look like it. 

Ignorance isn’t bliss, ignorance is ignorance. 

[twistypie]

Horrible... people need to learn to handle their own business.

[twistypie]

I'm going through the stages of #chronicillness acceptance again. I'm definately back in the anger stage.. I mean I'm 24 years old I had to come home so my parents could take care of me I FEEL LIKE A FUCKING CHILD I CANT GET OUT OF BED my boyfriend is 1.5 hrs away My 2 cats are 1.5 hrs away My intolerance list is HUGE I HATE THIS I HATE ALL OF THIS SO MUCH Fibromyalgia, chronic pain, chronic illnesses IN ALL JUST SUCK!!!!!!!!

[anditslove]

You are important. You are important. You are important. Every single minute of every single day, you are important.

[streetstyleplatform]