kaz

20 | cripple punk | the scary disabled person the media warned you about

[loser-kaz]

Welcome to my page!

About me:

Name: Kaz

Age: 20

Pronouns: They/them + neos

White

I made this account to connect with others in the disabled community!

I have POTS, gastroparesis, EOE, chilblains, HSD, and MGUS

I am a singlet

I also have generalized anxiety, major depressive disorder, ADHD, OCD, and i believe i have autism!

On this account i will post stuff about my disabilities as well as the occasional posts about my hyperfixations or special interests!

please do interact !:

- disabled people

- chronically ill people

- queer people

- trans people

DNI:

- ableists/fake claimers

- maps/nomaps/anyone in that community in any way

- queerphobes

- those who do not believe in self diagnosis

- “trans abled” or any other harmful identities (“transx”)

- general assholes (racist, homophobic, transphobic, etc)

i currently have a special interest on the twitch streamer ranboo so i may post about them!

also feel free to ask me anything! related to disability or not!

ableism and chronic illness zine

tags:

kaz’s asks - me answering questions

kaz’s rambles - hyperfixation/special interest related stuff

i will add trigger warnings if i feel necessary but also pls lmk if you want any specific ones!

[aw-tysm]

Being inclusive to autistics as an autistic is recognising and accepting that we all have conflicting wants or needs.

You may hate bright lights but another autistic may love them.

You may hate being in crowds but another autistic might love that.

You may hate tags on your shirt but another autistic may actually like having tags on their shirt.

You may love bland foods but another autistic may love rich or extreme flavours.

You may love infodumping to people but it may be too overwhelming for another autistic.

A spectrum includes all ends of extremes. And all of it deserves to be accepted and accommodated for.

[noaccount10-deactivated20250427]

𝘐𝘧 𝘺𝘰𝘶 𝘩𝘢𝘷𝘦 𝘢 𝘥𝘪𝘴𝘢𝘣𝘪𝘭𝘪𝘵𝘺 𝘰𝘳 𝘤𝘩𝘳𝘰𝘯𝘪𝘤 𝘪𝘭𝘭𝘯𝘦𝘴𝘴 𝘢𝘯𝘥 𝘪𝘧 𝘢 𝘮𝘰𝘣𝘪𝘭𝘪𝘵𝘺 𝘢𝘪𝘥 𝘪𝘴 𝘨𝘰𝘪𝘯𝘨 𝘵𝘰 𝘪𝘮𝘱𝘳𝘰𝘷𝘦 𝘺𝘰𝘶𝘳 𝘲𝘶𝘢𝘭𝘪𝘵𝘺 𝘰𝘧 𝘭𝘪𝘧𝘦, 𝘵𝘩𝘦𝘯 𝘺𝘰𝘶 𝘴𝘩𝘰𝘶𝘭𝘥 𝘢𝘣𝘴𝘰𝘭𝘶𝘵𝘦𝘭𝘺 𝘨𝘦𝘵 𝘰𝘯𝘦.

𝘐 𝘬𝘯𝘰𝘸 𝘵𝘩𝘦𝘳𝘦 𝘢𝘳𝘦 𝘱𝘦𝘰𝘱𝘭𝘦 𝘰𝘶𝘵 𝘵𝘩𝘦𝘳𝘦 𝘵𝘩𝘪𝘯𝘬𝘪𝘯𝘨 "𝘢𝘮 𝘐 𝘥𝘪𝘴𝘢𝘣𝘭𝘦𝘥 𝘦𝘯𝘰𝘶𝘨𝘩 𝘵𝘰 𝘶𝘴𝘦 𝘢 𝘮𝘰𝘣𝘪𝘭𝘪𝘵𝘺 𝘢𝘪𝘥?", 𝘸𝘩𝘪𝘭𝘴𝘵 𝘴𝘪𝘵𝘵𝘪𝘯𝘨 𝘰𝘳 𝘭𝘢𝘺𝘪𝘯𝘨 𝘵𝘩𝘦𝘳𝘦 𝘪𝘯 𝘪𝘮𝘮𝘦𝘯𝘴𝘦 𝘤𝘩𝘳𝘰𝘯𝘪𝘤 𝘱𝘢𝘪𝘯 𝘧𝘰𝘳 𝘦𝘹𝘢𝘮𝘱𝘭𝘦.

𝘛𝘩𝘪𝘴 𝘪𝘴 𝘺𝘰𝘶𝘳 𝘴𝘪𝘨𝘯 𝘪𝘧 𝘺𝘰𝘶 𝘩𝘢𝘷𝘦 𝘣𝘦𝘦𝘯 𝘵𝘩𝘪𝘯𝘬𝘪𝘯𝘨 𝘢𝘣𝘰𝘶𝘵 𝘸𝘩𝘦𝘵𝘩𝘦𝘳 𝘺𝘰𝘶 "𝘥𝘦𝘴𝘦𝘳𝘷𝘦" 𝘵𝘰 𝘶𝘴𝘦 𝘢 𝘮𝘰𝘣𝘪𝘭𝘪𝘵𝘺 𝘢𝘪𝘥 𝘰𝘳 𝘯𝘰𝘵: 𝘺𝘰𝘶 𝘥𝘰.

𝘠𝘰𝘶 𝘥𝘦𝘴𝘦𝘳𝘷𝘦 𝘵𝘰 𝘩𝘢𝘷𝘦 𝘮𝘰𝘳𝘦 𝘦𝘯𝘦𝘳𝘨𝘺 𝘢𝘯𝘥 𝘵𝘰 𝘩𝘢𝘷𝘦 𝘮𝘰𝘳𝘦 𝘮𝘰𝘣𝘪𝘭𝘪𝘵𝘺.

𝘗𝘭𝘦𝘢𝘴𝘦 𝘥𝘰𝘯'𝘵 𝘭𝘦𝘵 𝘵𝘩𝘪𝘴 𝘢𝘣𝘭𝘦𝘪𝘴𝘵 𝘴𝘰𝘤𝘪𝘦𝘵𝘺 𝘸𝘦 𝘶𝘯𝘧𝘰𝘳𝘵𝘶𝘯𝘢𝘵𝘦𝘭𝘺 𝘭𝘪𝘷𝘦 𝘪𝘯 𝘵𝘦𝘭𝘭 𝘺𝘰𝘶 𝘰𝘵𝘩𝘦𝘳𝘸𝘪𝘴𝘦 🖤

[vro0ms-evil-twin]

I fucking hate that the general response to RFK Jr's eugenist take on autistic people is "autistic people do pay taxes, autistic people do work, autistic people do date!"

Some autistic people don't and that shouldn't make them less worthy of life. Some autistic people do need constant help and support and that shouldn't make them less worthy of life.

Once again we're falling in the right wing trap of :

They make a hateful, fascist statement

Instead of focusing on the fact that it is hateful and fascist we try to show them that they are factually wrong

We throw our own allies and the most vulnerable of us under the bus in the process

We legitimise an only slightly less hateful, fascist view as we go

They have completed their goal of making us accept the still hateful, fascist second version, hurrah. What a victory.

Right now what we're getting to with that is that autistic people who can work and pay taxes are okay, and the others aren't. Fuck this shit.

Same thing happens with the people who are being deported ("they have a visa!", "they didn't even have a criminal record!" -> even if they didn't have a visa, even if they did have a criminal record, deporting them and detaining them in what's essentially a concentration camp wouldn't be okay, you absolute tools of fascism.)

[7frogsspeaks]

In case anyone needs more clarification:

What RFK is saying: "Autistic people can't work, so it's our duty as a society to erase autism" -> This is eugenics

Harmful response: "Many autistic people do work!" -> Validates the belief that that someone being unable to work is shameful and makes them a lesser person, and implies that autistic people should not need support

Correct response: "Yes, many autistic people can't work, so it's our duty as a society to make sure they are supported, you fascist asshole" -> Accepts the realities of disability and values the lives of disabled people, names the actual problem here

[null-and-void-and-gone]

me when my disabilities disable me:

[loser-kaz]

wow been a while since i used this tumblr account, some life updates

i got diagnosed with a precancerous condition (mgus), im mostly done with my undergrad degree, and im still disabled!

that’s all that’s important for now lol

[this-teen-is-on-fireee]

Moment of silence for all the heat sensitive disabled ppl as the world actively tries to kill us this summer

[chronicallybubbly]

POTS Problem #8:

Always feeling like a freezer

(I could have eight blankets on and still feel like an icicle)

[visgrapplinghooks]

I think… there's a certain part of the human brain that craves attention when we are suffering. Deep down, we all want people to take care of us when we feel sick. Like when we're kids and our parents would feed us and and dote on us. Especially when your parents were otherwise… not good to you, being ill was the one time you got positive attention and compassion.

With chronic pain and illness, you don't tune out that desire to be doted on and loved in times of suffering. You force yourself to ignore that need because you think it'll never be fulfilled by the people around you. Where's my mom to make me soup when I'm sick or check my temperature? Where's my friends to drop by just to see how I'm doing?

And I think I'm often caught between wanting support from the people around me and not wanting to feel like a burden. Then I avoid reaching out to get support and then feel resentment towards others for not giving me the support and attention I wanted deep down.

I'm not entirely blameless in my social frustrations related to my chronic pain, but I do think there's something to be said about how devastatingly isolating it can feel to be a person with chronic pain/disability/illness and know that you will never get your needs from others fully fulfilled to the extent you want. Learning to find that balance of tempering your expectations, fulfilling your own needs, and communicating to your support system what specifically you need. At least... I hope that's something I can learn as a skill over time.

A stable and proactive social support system is one of the most important things a chronically pained person can have, I think.

[cosmiccripple]

shoutout to my chronically ill and disabled folks who, despite all their symptoms, somehow manage to have able-bodied people doubt them

i see you, i believe you and i love you!!!

[loser-kaz]

cw // tmi , bowel talk , this is a chronic illness account, you’re gonna get me talking abt weird things my body does

i’ve been more inactive lately bc i was home for summer and now i’ve been getting settled in being back at school

this past week was my first exam for one of my classes and i’ve got a lot of particularly difficult classes this semester

i’ve been very stressed this week bc of all this and something that’s interesting with chronic illness and anxiety that resides in my stomach a lot is i can tell that i’ve had a particularly stressful week if i spend friday night having diarrhea

my body and my mental state have a weird reaction together and cause that as a sign that i’m able to relax after a long week

[loser-kaz]

just met someone else with eoe irl for the first time

it’s a strange sense of understanding with each other

i love all of you with rare diseases out there, we have each other <33

[carpetpall-symphorien]

Ablebodied keep saying that cripple punk is "excluding the brain" and "creating a dualism between the brain and the rest of the body" when it is not. People with a neurological disorder can call themselves cripple if they want to because neurological disorders are a physical disability.

There is no denial some physical disabilities often come with psychiatric symptoms and vise versa, but it is not the same as a mental disability or a physical disability.

Autistic people often experience motor difficulties but it is not the same as someone with mobility issues. People with multiple sclerosis often experience cognitive symptoms like executive dysfunction, but it is not the same as someone with ADHD. It's not harmful to acknowledge the differences between mental and physical disabilities.

It's possible to acknowledge interactionism without saying the two are identical and speaking over people with a physical disability.

[loser-kaz]

head hurts :(((

[cpunkwitch]

cpunk ask game 3

just to clarify on the 2nd one when i mentioned you can talk about your mental disabilities in the answers if you'd rather instead of your physical disabilities. i mean phys disabled people can additionally talk about any mental disabilities they also have, not inviting able bodied mentally disabled folk to use my ask games.

this are for cripples only and still asks centered around physical disabilities but if the reblogger wishes to answer a question and talk about their mental disabilities too they can. that is all.

1st, 2nd

biggest inaccessible thing that angers you right now?

something no one talks about that you wish had more discussion about how it could be more accessible?

what are some good resources that help you out? any blogs or sites that really helped you out with a disability or gave you support?

if you have an aid, mobility or not, how did you get it and do you know any good places to get them at good prices?

any programs you know of that are either easily accessible or make things more accessible?

whats an aid that no one mentions being an aid? could be big or small

any recent news that really pissed you off, like an accessibility being taken away?

any good news to share with the disabled community?

what are some helpful things in your town/city for cripples?

what can your town/city improve on to help?

is there an accommodation you wish you had/could get/want more of?

whats some discourse going around right now that you wish would stop?

advice for people who are only just discovering theyre crippled?

any questions for people who've been in the community a while?

ramble about your condition?

rant about your environment?

if you have any aids, have you decorated and/or named them?

tips for maintaining mobility aids of any?

anything that motivates you to leave your house even just for fresh air and a stretch?

free space!

[ID: banner reading "This blog is protected by the De Rolo family and co." in all caps. It has an orange cloud background. On the left is the De Rolo coat of arms and on the right is the symbol of Vox Machina]

[loser-kaz]

send me a number in my inbox and i will answer that question !!!

[loser-kaz]

Hi where in the world do you find a POTS specialist?

i live really close to chicago so i’m lucky enough to see doctor barboi (he actually works out of the hospital i was born at), one of the few pots specialist i’ve heard of (and maybe in the world)

i rlly recommend him if you have the ability but pls be aware he has a waitlist of a year !! (took me over a year to get in with him after making an appointment)

[loser-kaz]

only if you’re comfy ofc — but would you explain what it was like to get diagnosed with eoe? I have a different eos disorder, but until i asked them to test me for my illness, my doctors consistently ignored my high eos counts and blamed it on allergies… lowkey just wanna know if all doctors are that shitty or if it’s just mine lol

i don’t mind at all !!!

we actually accidentally found my eoe

i’d been tested for allergies multiple times bc i get allergy-like symptoms (don’t know why exactly bc no mcas or allergy presentations other than eoe) but every test has always been negative and idk if we ever looked at my eosinophils in my blood

i was experiencing general gi symptoms that we assumed were gastroparesis but my doctor wanted me to have an upper endoscopy and colonoscopy to rule out anything else !

during that endoscopy/colonoscopy, everything was fine except my doc found the eosinophils and biopsied to confirm. he immediately gave me the diagnosis day of.

my family and i had never heard of eoe at all and my doctor was not looking for it so it came as a surprise but it was a good catch as i’ve most likely had this for years (if not my whole life) and now we can treat it before i get permanent strictures in my throat !