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@mypotsielife
Hey, unpopular opinion, apparently. But people don’t just “have pain for no reason” doctors say this all the time (especially to women and chronically ill people) and the truth is, Thats literally not possible. Even if your pains are psychosomatic (a word I hesitate to even use because of the way its used so often) there is a reason you are having those pains whether its mental illness, abuse, etc. If your doctor consistently tells you that “well some people just have pain for no reason” get a new doctor. That’s a doctor who is not going to give a shit what your actual symptoms or experiences are.
I just wanna add to clarify the psychosomatic thing.
That word DOES NOT MEAN you’re making it up. It doesn’t mean you’re imagining the symptom. What it means is that the symptom ISN’T DIRECTLY CAUSED BY ANY OF THE THINGS THAT WOULD NORMALLY CAUSE IT.
I fought to get a PCOS diagnosis for 2 and a half years. For the ENTIRE time I was fighting, I was dealing with 3 cysts that were not going away by themselves and eventually required surgery to remove. At one point close to the end of the battle, I suddenly went blind. I was visiting my parents and was standing on the veranda looking out over the tree we had planted in memory of my dog and suddenly I got one of the shooting pains that I was quite frankly used to at that point and my vision started to go dark. It was like the sun was setting while being completely hidden behind storm clouds but it was 2pm in the middle of Summer on a clear day. Within about 30 seconds I couldn’t see ANYTHING. I was 27 years old and I was screaming for my mother.
My mum raced me to her doctor (he was a 15 minute drive away as opposed to 45 minutes to the nearest hospital) and he quickly worked out that there was nothing wrong with my eyes and what had happened was totally unrelated to them. Then he said it was psychosomatic and I freaked out, yelling that I was NOT making this up and I definitely wasn’t imagining it. Very quickly he calmed me down and said he believed me and I had misunderstood. He explained that whatever was going on with my abdominal pains (he suggested PCOS which I hadn’t even heard of at that point) had been ignored for so long that my body was starting to do things other than the normal pain response to try to draw my attention to the problem. My sight going was my body basically jumping around in front of me going “HEY ARE YOU EVEN LISTENING TO ME HELLLOOOOOOO??????”
He gave me some prescription strength painkillers and my sight started to come back as soon as they started to kick in. About 45 minutes after it started I could see well enough to walk around without help and within a day and a half I was back to normal. On top of that I finally had a scan booked to figure out what the hell was causing all the pain.
Psychosomatic symptoms are NOT imagined or fabricated or happening for “no reason”. Experiencing them DOES NOT make you a liar. It makes you someone who has been battling with something serious for so long that your own body has started to get impatient with you.
I completely agree. Thank you for sharing this.
Psychosomatic symptoms are literally your body flipping random alarm switches just to get any alarm blaring because you’ve been ignoring the regular ones
Hey guys!
I made an esty shop. It's only got 2 and a half listings but but they are solid listings!
If you want more practice wirh ECGs or EKGs, I have a pdf style book with 83 different rhythm strips. They aren't "text book perfect" either, so it will help you in the real world! Unlike a lot of other study media.
I also have the "7 Steps of Rhythm Interpretation" that will guide you through identifying what your rhythm is. It also has a list of different possible rhythms. It's great for keeping in your work/school binder or even laminating and hanging on the wall! There are two different options to choose from - all on one page or separated into two.
If both of those sound great, I decided to create a combo pack. You'd even save a couple bucks!
You searched for: TravelingTeleTech! Discover the unique items that TravelingTeleTech creates. At Etsy, we pride ourselves on our global com
For many folks with disabilities, showering / bathing every single day just isn’t feasible. Sometimes, bad flares and mobility issues mean it’s quite literally impossible to get to the bath or shower.
Sometimes, we have such bad dizzy spells, or faint in the bath or shower, and need to rest for hours, days, and longer, just to recover. Sometimes bathing or showering severely exacerbates someone’s chronic pain. There’s a myriad of reasons why a daily bath or shower may not be possible for some folks.
As someone who (like most people) loves starting each day with a nice hot shower, it can be really difficult when you find yourself in a situation when you’re not always able to do that. But it’s possible to still feel clean and nice.
Here are a few of my tips: 1. Anti-bacterial wipes. The next best thing to showering. You can buy ones that are dermatologist approved, so won’t be harsh on your skin. Baby wipes are definitely useful too, but I find anti-bacterial wipes to be a bit better at giving that squeaky clean feeling. 2. No rinse shampoo. This is what the astronauts use to keep their hair clean in space. Can be purchased on Amazon for around $5, and works better than dry shampoo. Simply add to hair, comb through, and let dry. You can also add a spritz or two of water to help lather. Some brands are no rinse shampoo + no rinse body wash, so work as a two in one. 3. Spray bottles. I love getting spray bottles, and filling them with water and essential oils. Some oils, like tea tree, have anti-bacterial properties, so can be sprayed on feet or wherever you wish, to keep clean and free of odour (just be sure to dilute the oil enough, and add a carrier). Peppermint oil is also a good one to use. Rose oil is a favourite for simply smelling wonderful and ensuring the skin smells fresh and stays soft. 4. Split up tasks. If washing your hair and bathing at the same time makes you too unwell, or is simply an impossible task, delegating different days to the tasks often helps. One day, wash your hair in the sink (or, have someone help you if you can). The other day, wash your body. Also, if you are someone who likes to shave your underarms or legs, but find it too hard to do in the shower or bath, you can do so on your bed or lounge. You don’t need running water to shave. Instead, use a moisturising lotion on the skin before shaving to prevent dryness and cracking of the skin, and then shave the area as per normal. Wipe with a warm wash cloth.
5. Sink washes. Filling up the sink with nice warm water, and adding soap, can be a good way of freshening up. You can sit down next to the sink and use a washcloth to lather up and give yourself a clean. Less draining than a shower, and tends to cause less problems for people who are prone to syncope. It helps avoid the issue that hot running water can cause. 6. Get a shower hose attachment. You can buy a shower hose attachment which plugs into the tap, for around $10 online. This can be used for washing your hair in the sink, or for when sitting in the bath or on a shower stool. Many people find using these helpful. 7. Use a strong soap. Seems fairly obvious, but using a good, strong anti-bacterial soap when you do wash will mean you will remain cleaner, longer. When you do have good days, use that time to wash as best as you can.
8. Mouth wash. If you have mobility issues relating to your arms, and find it difficult to brush your teeth twice a day, sometimes just having some mouth wash to swill around your mouth really help freshen things up and remove bacteria.
9. Set out your clothes. Set out your clean clothes before you wash. This makes it so much easier. If you’re like me, and often need to rest for quite a while after washing, it really helps to have clothes all there, ready to be put on. I set them out on my bed where I know I’ll be laying down, and I get dressed from a supine (laying down) position. Also, having a nice cosy bathrobe to put on straight after a wash helps, because you can just relax and recover as much as you need to without feeling like you have to rush to get dressed.
10. Wear breathable fabrics. Not always practical, because depending on the climate, obviously sometimes we need to rug up. But wearing clothes made from cotton, for example, will mean your skin can breathe more and be less likely to accumulate bacteria and odour.
Lastly: I just want to add that I know it can be hard adjusting when you’re in a flare, or simply too unwell to shower every day. There’s so much stigma. But, remember that you’re doing the best you can, and what you’re going through is not your fault. A lot of people don’t realise how much of a luxury, and frankly a privilege, it is to be able to have a hot shower each day.
Also, if it makes you feel any better, dermatologists actually believe we only need to wash 2 - 3 times a week, and that daily showering is doing more harm than good, stripping our skins of protective oils. So, there you have it — if you’re in a situation right now due to your health that makes washing difficult, don’t feel bad about yourself, and remember that there are many ways to stay clean.
Please feel free to add any tips onto this post. I’d love to hear them.
Love 💜
Living with chronic pain be like
When I finally understood the chronic part of chronic illness...
When the world starts looking real weird cuz I’m about to pass out...
Hey yall.
Idek if anyone is still actively following me anymore, but in case you are, here's a small life update.
Ive done nothing but work 🤷♀️ up until I got sick (presumably from working too much) and my Dysautonomia decided to be a butt.
So here's me, "loving life" at work. Yay being a healthcare worker. 🙄😭😒 enjoy the photos 😂
me: *casually mentions how sick I am*
person: do you need to go to the ER?
me: no no, this is normal
person: *looks confused and horrified*
person: *tries to relate*
too real
Tumblr is so funny, cause every once in a while, someone will roll up, reblog your entire blog, and then disappear back into the void they came from without so much as a follow
Do me a favor.
Reblog this if a medical professional has ever treated you like shit or fucked up your diagnosis or was just generally wrong.
Nothing about us without us. Image description: [pale purple and yellow background with dark text] This April, don’t support an organization that harms autistic people. [crossed out logo for Autism Speaks] Support one built by autistic people, for autistic people. [logos for the Autistic Self Advocacy Network and the Autism Women’s Network]
Reblogging to spread the word, cause evidence shows that Autism $peaks are classic horror movie villains.
Reblogging because I’ve always wondered who to support instead of AS.
To every friend of mine who reblogs this, thank you. It means I can trust you. <3
I needed this.
Thank you to all the people who posted this so I ended up seeing it. I really needed this right now. Thank you!
Yeah… Not gonna lie… I cried…
We need more people like this
Goddamn it stop making me feel human
The therapist I wanna be.
Text in the image:
“I’m a therapist and keep this poster in my waiting room, apparently it’s saved a few lives.”
I don’t like the phrase “a cry for help.” I just don’t like how it sounds. When somebody says to me, “I’m thinking about suicide. I have a plan: I just need a reason not to do it,” the last thing I see is helplessness.
I think your depression has been beating you up for years. It’s called you ugly, and stupid, and pathetic, and a failure, for so long that you’ve forgotten that it’s wrong. You don’t see any good in yourself, and you don’t have any hope.
But still here you are: you’ve come over to me, banged on my door and said, “HEY! Staying alive is REALLY HARD right now! Just give me something to fight with! I don’t care if it’s a stick! Give me a stick and I can stay alive!”
How is that helpless? I think that’s incredible. You’re like a marine: trapped for years behind enemy lines. Your gun has been taken away, you’re out of ammo, you’re malnourished, and you’ve probably caught some kind of jungle virus that’s making you hallucinate giant spiders.
And you’re still just going, “GIVE ME A STICK. I’M NOT DYING OUT HERE.” “A cry for help” makes it sound like I’m supposed to take pity on you, but you don’t need my pity. This isn’t pathetic. This is the will to survive. This is how humans lived long enough to become the dominant species.
With NO hope, running on NOTHING, you’re ready to cut through a hundred miles of hostile jungle with nothing but a stick, if that’s what it takes to get to safety.
All I’m doing is handing out sticks.
You’re the one saying alive.
I legit cried at this. I’ve needed to hear it put this way. Bless this post.
Every time I see this post I stop to read the whole image. It always helps — even on the good days.
Because it wasn’t weakness. It wasn’t shameful to seek help. It wasn’t pathetic to “cry for help”. I was looking for a stick, be that from myself or from someone else. I was trying to find a way out. I was trying to heal myself.
this is fuckin incredible.
I’m sorry if I repost to many of these, but if it could be someone’s “stick” then it’s worth it
For anyone that needs to read this today.
-FemaleWarrior, She/They
They also have this one and I think quite a few others but these two I keep on my phone and pull up on my bad days.
Text in the second image:
“Why are you so lazy?”
But you’re not lazy. Lazy is when you shrug things off because you can’t summon up the give-a-damn. When you’re curled up tight on your chair, at your desk, alone and grey and desperately wishing that you had your life in order, that you did all those things that you had to do, that it didn’t feel like breaking rocks just to feed and clothe yourself and get some sleep, that’s not lazy.
People don’t understand. You tell them “It’s Hard.” They tell you, “No it isn’t. You’re just lazy.”
You start to wonder if they’re right. Is breaking those rocks easy for everyone else? Are they that much stronger than you? They don’t look like they’re struggling. “Just try harder,” they say. But you’re trying. It’s not working. Breaking boulders in your path until you’re spent isn’t lazy, and you do it day after day.
You’re not lazy. Most people don’t have those rocks to break.They don’t even know what it’s like to have to break rocks to get things done. They don’t understand how hard you have to work, and how hopeless you feel, when you try and fail to do what they do easily. Things hard harder for you, they really are. And if those people had to deal with your problems they wouldn’t be doing any better.
You’re not lazy. You’re not weak. You’re fighting hard. I guess I just want you to know that I know that.”
End image text
Hey y'all
I know you're dying for an update 🙃 even though I'm pretty sure only 2 people still follow this blog.
So the night of my spinal tap, I was uncomfortable but thats probably because a huge needle was shoved into my spine. Nothing unbearable. I woke up the next morning and decided I needed mac and cheese for breakfast (dont judge my life choices 👀). The more I moved, the more my back really started to hurt. I chalked it up to "large needle in spine. Muscles arent happy bout it". But it just kept getting worse. By about noon I couldnt walk from the pain.
My mom took me to ER. They shot me up with 2mg dilaudid, it did absolutely nothing for me. (Which is shocking bc before this the strongest pain medication I've ever had was tylenol. Not even tylenol with codeine. Just plain tylenol or ibuprofen). Then they eventually admitted me. They started giving me fentanyl. Which is 100x stronger than morphine and 50x stronger than heroin. That sucker still didnt knock the pain out. (And I'm honestly shocked it didnt snow me bc my body's not used to that kind of meds). They gave it to me every two hours just to keep the pain at a 5-6.
My MRI came back clear. The doc said they assume they damaged a nerve during the spinal tap. The way he described it was "you know when you're in a pool and you try to get a leaf out? Each time you grab for it, it moves. Because your hand causes water displacement and moves the leaf. The same happens during a spinal tap. The needle causes water displacement and normally moves the nerves out of the way. But when you felt that sharp pain and your legs go numb for a few seconds, that was ys hitting a nerve. We hopped we had just brushed it. But it seems like it was damaged. And when you finally got up and started moving around, you damaged it further".
Anyway. Long story short. I spent Thursday till Monday in the hospital. I'm now on gabapentin three times a day for nerve pain. Flexril three times a day for muscle relaxers because my back muscles keep spasming (they did ativan at first. I dont remenber the entirety of friday because of it 😂). And norco 4-6 hrs for the pain. I've been avoiding the norco since it's a narcotic and been taking 500mg naproxen three times a day. The pains still at a 5-7 depending on what I do. I can only take about 5-12 steps with a walker. it's been a fun time 🙃 #not
Anyway. That's my life update.
LIFE UPDATE:
So, I have had a headache for three weeks straight now. Always constant. Never gone. However, varying severity of pain. Sometimes it's only a 3. Other times... well. I have my new definition of "10". It makes me shake and puke from it hurting so bad.
My CT came back clear. So my primary sent me to a neurologist. Who at first thought viral meningitis. But. No fever, my white count was fine. Then during the initial examination he thought he saw papilledema, which made him think maybe it was psuedotumor cerebri/intracranial hypertension. Too much spinal fluid.
So.
He sent me to an eye specialist. Who said "well. One eye measures a 3 and the other a 3.5 so maybe that's why he thought he saw papilledema, but I wouldnt classify it as that".(also fun fact I have a hardcore phobia of eyes and eye doctors and had a panic attack and my mom had to hold me in a headlock like I was 5 just so the guy could examine me 🙃🙃).
So back to the neuro. He scheduled me for a spinal tap. I'm like okay 😎 I've got this. I work in healthcare. Ik what's gona happen. This will be fine. However, my anxiety didn't play night and I cried so much before I even got on the table 🤦♀️ the lidocaine hurt, but honestly I've had dentists cause more pain 🤷♀️ BUT WHEN THEY WENT TO ACTUALLY INSERT THE SPINAL NEEDLE my bro hit a nerve. Intense sharp pain shot down my back into my toes and then both my legs went numb 🙃 it only lasted for a bit but long enough for me to be convinced I was paralyzed. Then, my spine wouldnt release the juice 🤦♀️ my nurse said she had been doing this for 20 years and it was literally the longest tap shes ever had to do. it's only supposed to take like 20 mins. 30-45 if it drips slowly. MINE LASTED TWO HOURS. Two hours worth of spine in needle, my arms going numb from the position I was in. And finally they were like okay well we are going to have to roll you to your side to see if we can get more fluid, because you've stopped dripping.. I'm like 😅😅 kay 😭 by this time the majority of the lidocaine had worn off and I could feel a great deal of it.
Lemme tell you. Tryna roll with a huge freaking needle in your spine is not fun 🙃 however, it did the trick. Then. He was like "I'm not gona lie. The majority of your anesthetic has worn off. But I need to take this needle out. Dont tighten your muscles just relax." And my bro pulled that needle and I screamed like a baby 😅😅😅😅 I felt so bad for acting that way cause I know it was probably a bit excessive but. Fudge a fudge. It hurt like a bad word that I dont use 🙃😅 then they get me back in bed. For the whole "lay flat for 4 hours" goes fine and dandy. I sit up to go home, and my legs go numb again 🙃 at which point they told me the nerves were angry from being poked with needles. So ya know. That's cool.
Also I learned a lot because 2 hours of not being able to move, induced boredom. And I work in healthcare and find it fascinating. So I made them show me the manomometers (measures opening spinal pressure). They showed me my spine xrays and how to read it. Then the doc was like "okay so if you were the doc and trying to determine with csf sac to aim for, which would you pick?" And the one I chose was actually the one they had used. So. A+ for me. Haha anyway.
My opening pressure was only an 8? So. Probably not the psuedotumor cerebri / intracranial hypertension. But that also leaves me with???? Why the heck does my head hurt so bad???? My next neuro apt is Monday so hopefully they find something out with all the labs and csf tests they ran. Also. Enjoy my hospital selfies, a pic of my spinal fluid, and my bandage (I told them I was severely allergic to adhesive. So they were like "okay no bandaide" and instead used gauze and tape. Which is still adhesive 🤦♀️ which I realize they still had to bandage but gosh dang. Hives around the insertion sight is not fun).