Sagi | 23 | any pronouns | Late diagnosed support level 2/mid-low support needs autistic, ADHD-C and CPTSD | ME/CFS, fibromyalgia, POTS, hypermobility and more | Dedicated to disability advocacy, information and my personal journey
Hello! It's about time I make myself an introduction.
I'm Sagi, 23yo, any pronouns, multiply disabled and new yet occasional mobility aid (cane) user. English is not my first language.
This is a side blog meant to be a place for me to talk about my disabilities/chronic conditions.
Here's a little list of my current health menace:
Support level 2 autism / mid-low support needs autistic (late diagnosed)
ADHD combined presentation (late diagnosed)
CPTSD, depression and anxiety
ME/CFS
Fibromyalgia
POTS
Generalized joint hypermobility
Miofascial syndrome
I just recently decided to get myself a cane for extra painful or fatigued days in hopes I can get through them better. I dream of one day having a proper rollator or wheelchair, but I'm broke.
Last update: Jun 3rd, 2026
*Tags and more information under the cut
My interests
My special interests are rodents (but mostly rats) and monster high. However, I have those hyperfixations that come and go, such as:
Heartbreak High
Helluva Boss
The Sims 4 videos
EPIC: the musical
Hadestown
My tags on this blog
Usagi speaks - For personal matters, experiences, life updates and so
Information - For info about disability/neurodiversity, handling it, informational posts etc
Matters - For things that aren't necessarily uninformative but might be a little more discourse (about disabilities and neurodiversity) inclined
Helpful - Tips and tricks that might help with daily struggles!
Meme - For memes, fun little comics and such
Autism - On every post directly related to autism
ADHD - On every post directly related to adhd or add
Disability - On every post directly related to disabilities
Comic - Comics, mostly about autism and adhd, not necessarily funny
Medication - Regarding the meds topic
Autism Acceptance Questions - In order not to clog other tags, those posts get their own
In the beginning of disability pride month, I was fired from my job because of higher ups ableism. For the second time in a row I was fired due to ableism.
Since then, I've been looking for a job and stressing over how I'll pay for my medication, who's gonna hire a multiply disabled person when we're seen as "walking expenses" for companies and even family and friends sometimes. I keep spiraling over how the majority of employed disabled people are usually underemployed (usually position paying minimum or sub minimum wage), how my qualifications are overlooked and I feel like I have to prove my capabilities triple as much on the basis of gender and disability.
I'm seen as "naturally lazy" or "demanding" or "too much work", "too much of a headache". Companies are loud and proud about inclusion politics, but when the time comes for them to face diverse people, especially disabled, then each one of them is "just not the right match". Every company with every disabled person. We're the "too much", the "low value", the "low return", the "pain to deal with".
As much as I would love to just say the job market is highly saturated, when you're disabled, every look you get on the streets condemning that "someone allowed this person to leave the house" reflects on the employers that suddenly take a step back when talking to you.
You fill forms wondering if not disclosing your disability could prevent them from filtering you out right away, but at the same time remembering how you might be fired/rejected as soon as they clock your disability, barely any questions asked.
How many of your coworkers are disabled? How many disabled people you see in high positions with high salaries?
When July, the disability pride month, ends, please remembered we don't end with it. We don't vanish from existence, our needs are not suddenly gone. Fight for disabled people.
Edit to make something very clear: disabled people that can't work and need care are NEVER less worthy of that care than the ones that can work. And I propose the following thinking: why is it that higher positions of work are less likely to provide suitable accommodations (be it a few or a lot) for disabled people? why do we tend to have to roll with the bare minimum that is available to us? Them problem was NEVER disabled people having needs, it's the companies who feel like it's too much effort to provide.
Happy disability pride monthg . i need to stop putting off buying a wheelchair and noise cancelling earmuffs and sunglasses and a corset and a shoulder harness and chew toys and
Don't leave your friends and even acquaintances to go to the hospital alone. If they don't have someone already going with them and don't explicitly tell you they don't want you there, go to advocate for them. Outcomes for sick people change dramatically when they have someone else there to observe doctors (making them know they can't get away with negligence) and note symptoms from an outside perspective.
Going to the hospital is scary and even someone totally unprepared to be a medical advocate or physical support will be better than nothing, purely from their presence. You can grab food, be there with your phone to search if theirs dies, go in search of a doctor, distract them from pain or discomfort... go with them.
Reposting this again because I received a notification that the QR code in this flyer wasn't working! Please feel free to scan the fixed code now, it leads you to the same survey link as the TinyUrl.
Recruitment is still ongoing! Please use the link/QR code to determine eligibility! As to what online spaces, that could be, "a space that allows for meaningful interaction with people over mutual interests or topics, and may provide you a sense of belonging or support”.
Call for participants! Are you #ActuallyAutistic and/or #ADHD? You may be eligible to participate in this study exploring neurodivergent experiences of digital spaces! To determine eligibility for this study, please take this short online survey to see if you can participate in two separate in-depth interviews: https://tinyurl.com/neurodigitalstudy
About the researcher: I am a Ph.D. student in the sociology program at UCSF. I am a neurodivergent researcher, diagnosed later in life with autism and ADHD. Please note that an official diagnosis is NOT required to be part of this study! For more info/questions: contact me at [email protected] or DM me! You can also find me on my LinkTree: https://linktr.ee/pranzadia
P.S. There is an opportunity to do art in this research project! Please share the above link with others whom you think may be interested! :)
this disability pride i wanna keep in mind the disabled people who are in a difficult situation because of their disability. people who were made homeless because of their disability, people who are stuck in abusive homes and can't get out because of their disability. people whose disability was used against them to facilitate abuse, like taking away their autonomy - medical, legal, or otherwise - taking charge of their finances, taking advantage of their vulnerabilities. it's reasonable to think that a lot of disabled people, especially disabled people in difficult circumstances such of these, would struggle to connect with the idea of disability pride. but pride or otherwise, this month should also be disability solidarity month. this month and every month is for all disabled people in all sorts of circumstances
Intrusive thoughts, by definition, are unwanted, and almost always distressing. They are not
“omg I totally want to dye my hair all of a sudden!”
This is an extremely important distinction to me as someone with severe OCD. I frequently have thoughts and obsessions about murder, assault, and pedophilia. These are not wanted nor are they secret desires.
