Sagi | 23 | any pronouns | Late diagnosed support level 2/mid-low support needs autistic, ADHD-C and CPTSD | ME/CFS, fibromyalgia, POTS, hypermobility and more | Dedicated to disability advocacy, information and my personal journey
Hello! It's about time I make myself an introduction.
I'm Sagi, 23yo, any pronouns, multiply disabled and new yet occasional mobility aid (cane) user. English is not my first language.
This is a side blog meant to be a place for me to talk about my disabilities/chronic conditions.
Here's a little list of my current health menace:
Support level 2 autism / mid-low support needs autistic (late diagnosed)
ADHD combined presentation (late diagnosed)
CPTSD, depression and anxiety
ME/CFS
Fibromyalgia
POTS
Generalized joint hypermobility
Miofascial syndrome
I just recently decided to get myself a cane for extra painful or fatigued days in hopes I can get through them better. I dream of one day having a proper rollator or wheelchair, but I'm broke.
Last update: Jun 3rd, 2026
*Tags and more information under the cut
My interests
My special interests are rodents (but mostly rats) and monster high. However, I have those hyperfixations that come and go, such as:
Heartbreak High
Helluva Boss
The Sims 4 videos
EPIC: the musical
Hadestown
My tags on this blog
Usagi speaks - For personal matters, experiences, life updates and so
Information - For info about disability/neurodiversity, handling it, informational posts etc
Matters - For things that aren't necessarily uninformative but might be a little more discourse (about disabilities and neurodiversity) inclined
Helpful - Tips and tricks that might help with daily struggles!
Meme - For memes, fun little comics and such
Autism - On every post directly related to autism
ADHD - On every post directly related to adhd or add
Disability - On every post directly related to disabilities
Comic - Comics, mostly about autism and adhd, not necessarily funny
Medication - Regarding the meds topic
Autism Acceptance Questions - In order not to clog other tags, those posts get their own
this summer i recommend shower wipes or body wipes to people who struggle with hygiene due to disability, mental or physical. yes i know it produces unnecessary waste. yes there’s the argument of “if you buy the wipes then you’ll never shower,” but chances are most people who are struggling would Not Have Showered with or without access to wipes. i know it isnt a full shower but wiping yourself down can make a big difference in how you feel!!
along these lines you can think about buying mouthwash and getting any kind of friction at all on your teeth when it’s too hard to brush fully, dry shampoo if it’ll help keep your hair less oily when washing your hair is overwhelming, etc. you deserve easier ways to care for yourself and feel clean. also remember you are not a failure for struggling with hygiene even if society tells you otherwise!
auto immune disorders happen when the immune system ignores regulatory factors and begins attacking healthy bodily tissues, due to what scientists refer to as "sheer love of the game"
When you tell someone about being mistreated because of your disability, there is a common response that goes something along the lines of, "But did you explain to them properly why you can't do x thing?" "Did you make sure they understood why you need x accomodation?" "Maybe they just didn't understand?"
For example: "Did you properly explain that the reason you don't do hugs is because of your autism?" or "Maybe they don't really understand how bad fibro fatigue is and that's why they got upset at you for concelling plans."
I hate these kind of responses. They give me the same vibe as being asked, "Yeah, but what were you wearing when you got catcalled?" They put the responsability for the problem onto the person who was discriminated against, instead of the one doing the discriminating. Disabled people should not be expected to go through grueling explanations or justify their needs before those needs are respected.
i can handle one (1) Event™ per day. whether it be a phone call, an appointment, trip to the grocery store, play date with a friend, etc. only one, that's it. any more than that and i am Stressed
I don't feel we talk about how difficult transitions are for many autistic people. I can't stand the feeling of going from my very warm home to the freezing cold outside. Or how coming out of a hot shower to a cold bathroom. Not to mention the major problem with drying off from the shower and getting into dry clothes which will always turn a bit damp from how hard it is to completely dry off. It's one of the uncomfortable parts of my day.
when you're disabled people also just assume you have no preferences. if you do have preferences then you're expected to put them aside for everyone else and keep them to yourself. because all disability assistance is being treated as a favour that is granted to you by the kind abled person. even if it's their job to help you. if you have to have a follow up appointment with your GP and the only available day is when you wanted to do something else, tough luck. if the appointment is at 7am and you wanted to sleep in? set an alarm. you're lucky to get an appointment anyway. if you need to have someone with you to go outside or go to events, their schedule always comes first. if they cancel you both have to cancel. if you can't go you have to make it up to them and to anyone else if there was an event you organised. if the only food available that caters to your dietary requirements are chips then you should be glad they have anything. asking for something that doesn't have all those ingredients is an imposition and you should be glad they had anything. it doesn't matter what cuisine you were feeling or if you actually like the offered food. like if you show up to an event and everyone else is having fresh cream cake from the bakery and you have some cake bar from the supermarket because that's the first free-from food they had you have to appreciate it. and like you can appreciate the fact that people go to the effort to get you food you can eat or go places with you that you can't go yourself. even if there are accommodations for you, the feasibility of those accommodations always always comes before your wants and preferences. and a disabled person has the same capacity to like and dislike things and want or not want certain things as anyone else. they just have to suck it up in order to have basic needs met, and that does get pretty exhausting
Non-disabled people are expected to have tastes, preferences, and opinions. Disabled people are expected to simply be grateful to be allowed to participate.
Perfect, remember paper trails (always email your boss or HR about important stuff!! And keep copies!)
And phrase it exactly as it is, using "approaching customers to discuss sex" is perfect because it is an Accurate description but worded in a way that most normal people would be now turned off from the idea.
I've forgotten *my own birthday* before. There are several years of my life just straight up missing. In the past I've forgotten silly little frivolous things like NAMES OF LOVED ONES or WHERE MY HOUSE IS. But obviously none of that was important. Fucking awful, ableist thing to say.
☆.｡:Night Bunny:｡.☆ @nightbunnyusagi - Tumblr Blog | Tumgag
