chronically silly & chronically illy

cassie / 29 / they/them

[sillychronically]

hiiii i’m cassie & i am disabled!

i was diagnosed in feb ‘23 and am just trying to find as much joy as i can every day. thanks for being here with me!

this is a sideblog so i’ll follow from my main: @glowcowboy

[glowcowboy]

they should invent a way to have chronic pain that is neither chronic nor painful

[asexual-amanita]

“I never let my chronic illness stop me from doing things!”

That’s nice, I do. Not listening to my body is part of what got me this bad. Sometimes you have to balance taking care of yourself and achieving your ultimate goals.

[sillychronically]

i just want to be loved and believed. why is that too much to ask

[fibromyalgicaf]

Hey if you have chronic pain, you gotta remember that the cognitive load of dealing with that is exhausting. Just that alone. Never mind what else you've got going on.

You're not lazy or being dramatic; you're overloaded.

[stella-and-the-pinks]

if you're disabled and/or chronically ill, i cannot stress enough how much you deserve friendship.

if your conditions make it hard for you to follow through with plans, you deserve friendship anyways.

if you use equipment like mobility aids, aac, ventilators and oxygen, feeding tubes, insulin pumps, etc, you deserve friendship anyways.

if your conditions make you have to cancel last minute a lot, you deserve friendship anyways. if your conditions make you have to leave early a lot, you deserve friendship anyways.

if you're housebound/bedbound, you deserve friendship anyways.

if you need caregiver support to hang out with friends, you deserve friendship anyways AND you deserve the caregiver support you need to enjoy time with them.

if you have a service dog, you deserve friendship anyways.

if your conditions cause "scary" medical episodes like seizures, fainting, meltdowns and shutdowns, etc, you deserve friendship anyways.

if you're disabled and/or chronically ill, i cannot stress enough how much you deserve friendship.

[perequiste]

i think that whenever you sleep you should wake up with a full health bar

[glowcowboy]

they should invent cold weather that doesn’t make my joints feel like they’re going to explode

[insidestory1]

I think one of the biggest misconceptions about fatigue is that it's just a more extreme version of tiredness. Fatigue and tiredness are not the same thing. The biggest difference between them is that tiredness goes away if you rest, but fatigue doesn't. When you suffer from fatigue, your body keeps draining you even while you're lying down or sleeping. It's like a leak's been opened up somewhere and your energy keeps draining away no matter what you do. All you can do is wait and hope that at some point the flow will stop.

[mountaincripple]

you have got to kill the abled version of you that lives inside your head and makes you feel like dogshit and i’m not joking.

[sillychronically]

i just want to be loved and believed. why is that too much to ask

[sillychronically]

“you need to live. this illness is keeping you from living. you’re in the same place you were a year ago.”

i am chronically ill. my chronic illnesses do not have a cure. this is my life. i am doing the best i can. it is so profoundly unhelpful for people who claim to love me to tell me that i’m suffering bc i’m not trying hard enough or i dont want it badly enough or because i somehow want to be sick. and it makes me so miserable, bc its not that i don’t WANT to do things. i miss traveling. i miss going for runs. i miss spontaneity. but the stakes are so much higher now. if i overdo it now, i won’t just be a little tired the next day. if i overdo it now, i risk being bedridden for weeks. but people don’t see that. they just think i’m hiding away at home, as if this is something anyone would choose.

why is it too much to ask for people to just believe me?

[sillychronically]

“you need to live. this illness is keeping you from living. you’re in the same place you were a year ago.”

i am chronically ill. my chronic illnesses do not have a cure. this is my life. i am doing the best i can. it is so profoundly unhelpful for people who claim to love me to tell me that i’m suffering bc i’m not trying hard enough or i dont want it badly enough or because i somehow want to be sick. and it makes me so miserable, bc its not that i don’t WANT to do things. i miss traveling. i miss going for runs. i miss spontaneity. but the stakes are so much higher now. if i overdo it now, i won’t just be a little tired the next day. if i overdo it now, i risk being bedridden for weeks. but people don’t see that. they just think i’m hiding away at home, as if this is something anyone would choose.

why is it too much to ask for people to just believe me?

[scribefindegil]

so much of chronic fatigue is going "Technically I can do this task I'm just going to feel like Frodo Baggins crawling up Mt. Doom the entire time" and then trying to decide if it's worth it

[byjove]

I wish they could invent a medical device that temporarily transfers your symptoms and pain to the doctor treating you and it worked like a shock collar. “I think light exercise would-.” and then bam they’re rolling around the floor clutching their stomach in agony and dry heaving.

[sillychronically]

i used to love rainy days but now all they do is make my pain so much worse :(

[sillychronically]

being chronically ill rly will just have you like damn. i constantly disappoint and let down the people i love most in the world. and then i just have to go on with my day like that knowledge isn’t clawing me apart inside