#edszebra

[bendybitchesanonymous]

"How are you doing now? Any better?"

"I'm chronically ill Ciaran, I'm as sick, if not more sick than the last 16 time you asked. It doesn't go away, it's chronic, that's the point of the name CHRONIC ILLNESS."

"Yeah but it's been ages, you can't be sick forever. You must be a bit better by now with all those tablets. If you're not, you should just stop taking them. They just want you addicted to painkillers so you keep coming back."

"They make my pain bearable, but thanks for your input. I shall treasure it always. 🙃"

[bendybitchesanonymous]

Really important guys!

https://www.ehlers-danlos.com/ednf-fraudulent-website-impersonation/?fbclid=IwAR02pR8Pbfuxx1Dj-97xy82pJsAboBgkPXeSofEHybfJqKBCmUCYd1GXHBg

EDNF Fraudulent website impersonation | The Ehlers Danlos Society

After becoming The Ehlers-Danlos Society we launched the website www.ehlers-danlos.com  – the EDNF website was closed down. The old website

[bendybitchesanonymous]

Me: "Oww! Fuck! My wrist!"

Then: "Oh no, what did you do?"

Me: "???"

Then: "How did you hurt it? You're just sitting there."

Me: "I'm sorry I don't understand the question. Do? I'm supposed to DO things to get pain???"

[sarahhuntthrives]

So many comorbid conditions it can seriously become overwhelming! Also, brain surgery DOES NOT cure it. In many cases it makes no improvement at all, but you never know until you try... #chiariwarriorprincess #edszebra #dontbeafraidtobeaunicorn https://www.instagram.com/p/Bngmg4en7a6/?utm_source=ig_tumblr_share&igshid=461c2zxdppva

[thechronicallychill-blog]

Forever recycling photos from Cali 💁‍♀️ So today was a way better day both symptom-wise and life-wise. Day two of Lupron is always less brain foggy for me than day one. I had a very physical day at work today and actually got through it okay. My joints are all a little loose today, but I managed to move 13000 dollars of 25lb dog food bags without straining anything so that’s pretty dope. Most importantly, I met with a local non-profit today. They train service dogs almost exclusively for EDS patients and as a dog person who works in the industry and who is also an EDS patient, I’ve been following them for awhile and knew I needed to get involved. We had a super chill and productive meeting tonight and I’m excited to get to learn a new side of dog training and chronic illness. Not entirely sure what my role yet will be with this group, but I’m pumped to be with likeminded people who share some of my own struggles 🐕 #spoonie #servicedog #edszebra #edswarrior #ehlersdanlossyndrome #spooniestrong #spoonielife #dogs #dogstagram #endostrong #endometriosis #lupron

[benditliketoni]

Surgery went well. My nerve block ran out st 2am so I woke up in absolute agony and was sobbing from then till I managed to get adequate pain relief at 12pm - thank god for liquid morphine. I slept from then till 3pm, which was great. Just got to stay on top of it now!

[bendybitchesanonymous]

Did I just sublux a vertebrae. A haiku.

What the fuck was that?

My spine perhaps escaping

Damn you genetics