#factorvleiden

[isaree1102]

We aren't addicts, we just want what everyone else does... To not be in pain.

[isaree1102]

Who else can relate?

[nanalolacouture]

Thank you so much City to Country magazine! Blessed! Wonderful magazine, amazing article! @citytocountrymag @jasminesingletarymodel @a_touch_of_gems_wirral @hicksmestry #whynotme #factorvleiden #fibromyalgia #sjrogenssyndrome #sicknotweak #teammonica #publisheddesigner #rarediseaseadvocate #beauty #blackgowns #styles #magazinecover #beauty #fashionmingle2018 #fashionispower #liveinthemoment #willsmith #michellewilliams #styleblogger (at Appomattox County, Virginia) https://www.instagram.com/p/By6igoWFz4h/?igshid=1npg70kzygzmi

[nanalolacouture]

Pick up your copy of @britishvogue . You might just see me there! Ok it’s in the advertisement section, but hey, you can’t beat that!!!!! I love that I have a change to do this and that Vogue loves my work enough to offer me this opportunity. Check out @vogueretail to purchase this silk Grecian Gown. Thank you again to my team! You guys are Fantastic! Model @mistylockheart Jewelry @a_touch_of_gems_wirral Photographer @hicksmestry Videographer @desijohn1976 Honored to be in Vogues Designer Profiles one more time! #sjrogenssyndrome #fibromyalgia #factorvleiden #myasthenic #mgadvocate #rarediseaseadvocate #eaglessyndrome #blondehair #modelling #vogue #vogueisland #voguerunaway #thickandcurvy #curvygirlsrock #faceof #spotlighteye #greeneyes #renaissance #greciangoddess #beautifulinsideandout #modelagent #actress #singer #mua #photographer #tripleshot #designer #designerdresses #topdesigner #awardwinningdesigner #publisheddesigner #hautue (at Hyde Park, London) https://www.instagram.com/p/Byj6AvXFGu7/?igshid=pbo612ogq6mk

[nanalolacouture]

Blessed to be me #rarediseaseadvocate #factorvleiden #sjrogenssyndrome #fibromyalgia #whynotme #sicknotweak #mgwarrior #everydayblessings #mgadvocate #musicsoothesthesoul #mylife #teammonica #vogue #vanityfair #vogueisland #trendprivemag #ciefashionmagazine #copastyle #omegafashionmagazine #londonrunwaymagazine #embracebeautymagazine #citytocountrymagazine #sfnews #thefashionconversation #fashionweekonline #fashionmingle2018 #styleupfw2018 #bostonvoyagermagazine #flossmagazine #theinscribermagazine #ifwamsterdam2019 #nationalfilmawardsuk (at Appomattox, Virginia) https://www.instagram.com/p/ByRBn5hFY9z/?igshid=4detr6jglwf4

[theglittergirlnikki]

"But you don't look sick." How many times have you heard this phrase?  If you fight and invisible illness you've heard it way to often. Many if the issues we deal with do not have any outward signs but we aren't crazy. We have legitimate, diagnosed illnesses that can sometimes be debilatating. The stigma and bullying needs to stop. Educating yourself is the best way to understand these rare invisible illnesses. We aren't hypochondriacs we are warriors. Take a look at the illnesses that are dear to us: @sandy_b._--Hemophila @age_and_makeup-- Alzheimer's @missing46--Rare Disease Day @theglittergirl.nikki--Type I Diabetes and PTSD/TBI @emilythubbron--Factor V Leiden @ramirezfinezmakeup--Fibromyalgia @gailmarie_mua--Fibromyalgia @amberillo213--Hydrocephalus @nikkola_elise--Rheumatoid Athritis @brennamae931--DDD @nativebombshellmua---Chiari @art_by_ariana--Gastroparesis @shannonssmile--Lewy Body Dementia Thank you for participating to make this collab a success. If you would like to be part of this amazing group, please DM @emilythubbron #invisibleillnesses #raredisorders #hemophila #factorvleiden #hydrocephalus #alzheimers #rhematoidarthritis #degenerativediscdisease #gastroparesis #chiari #lewybodydementia #fibromyalgia #ptsd #tbi #type1diabetes #collabs #emscollabs #collabsnotcompetition https://www.instagram.com/p/BubvYLEhTEC/?utm_source=ig_tumblr_share&igshid=iox7hicwodqx

[isaree1102]

#helpfullifehacks #spoonie #dysautonomia #posturalorthostatictachycardiasyndrome #FactorVLeiden #chiarimalformation #fibromialgia #spinalstenosis

[isaree1102]

#spoonie #dysautonomia #posturalorthostatictachycardiasyndrome #FactorVLeiden #chiarimalformation #fibromialgia #spinalstenosis