#muscle weakness

[damnwhattaman]

Submit to my muscles 💪🏼

[rimonoroni2]

i’m not disabled. i just can’t feed myself the way i need to in order to stay healthy and i want to sleep all the time and can’t get myself to do simple tasks like take care of myself and i can’t walk for more than a few seconds without pain and i can’t stand for long without pain and am thus not able to do all kinds of shit most people can. dang, there should be a word for that. like an inability. an un-ability. a dis. a disabi

[m-e-isannoying]

I have a muscle ache from lying in bed.

[shyyycatsblog]

Does anyone else get random bouts of weakness in their legs? Like I'll just be sitting or standing somewhere vibing and then it'll suddenly feel like my hip and less muscles just go weak and don't want to support me anymore? When I'm standing I always need to hurry up and sit down and when I'm sitting I can still feel it happen? It's just a strange sensation I don't know how exactly to describe it 🫠

[vampfire1]

people suck so psa time i guess!!!!!

hEDS genuinely hurts.

i am in pain CONSTANTLY.

my hypermobility is not a party trick i can turn off whenever.

it causes debilitating pain and fatigue and fainting and constant doctor visits.

people look at me with DISGUST in their eyes when i dislocate my joints.

people tell me i am disgusting for my knees that go in rather than sit in place, for the pain i am in, for the amount of energy it takes to get out of bed, for popping my joints back into place.

i'm told i'm faking it when i use my mobility aids because i don't LOOK like i'm in pain.

i cannot turn it off.

even when i want to.

because it doesn't work like that.

i can't change it if people are uncomfortable with the way my body works.

braces do not fix everything. standing differently doesn't not fix everything (i also have a knee injury so idk why people think i can stand differently????????)

my hypermobility is not because i do gymnastics. it is because i have hEDS. and hEDS is a horrible and disabling condition to have.

"pretty much everyone is hypermobile to some degree though!!!!!" but their bodies don't decide to not work whenever it damn pleases. but their bodies don't hurt everywhere whenever they do anything. but they don't dislocate their joints when they're sleeping. but they don't go to the hospital and have surgery to fix their bodies.

anyway. hEDS (and all other types of EDS) sucks absolute balls. and if you think i can just turn it off whenever i damn please you are wrong in every way possible.

[wheelie-sick]

muscle weakness in my biceps is making showering substantially more difficult, especially because my muscles get weaker with heat

(open to advice that isn't cold showers)

[obsessive-procrastinator]

Rant/Vent incoming about my disabilities

My disabilities have gotten worse yet again. I spend about 75% of my day in bed. Yet, I am still pressured into doing things way outside of my abilities, like go grocery shopping with only my cane and without a rollator like I need, or run around outside to help with errands (I can barely walk for longer than 5 mins unassisted, and even that is in pain.) I am being told to still do exercise, like that will help me, even though the whole reason I'm this sick is because of graded exercise therapy that I was yet again pressured into because of my POTS.

My family has asked why I act like I'm so sick, when I was "perfectly fine" on vacation, when the truth is, I felt terrible the whole time. Yes, I swam and walked around, but I was suffering the whole time. I've given up on telling them this because it makes them angry or annoyed.

I cannot work, and therefore am fairly reliant on family, which sucks. Yet I am still trying to get a job anyway, even though I know it will be torture.

I have two major appointments this week for an endoscopy and an MRI, which will drain my very limited energy even more. This terrifies me, as I cannot afford to let my baseline decline even more.

My brain fog is terrible. I have struggled to write this whole post, I cannot follow my own train of thought. My muscles have weakened. Holding up my phone to write this kills me.

However I cannot get a diagnosis for Myalgic Encephalomyelitis. It's "all in my head" and I'm "too anxious". My doctors tell me that "psychosomatic conditions are really common in type a girls like you". I'm not fucking type a, and I'M NOT A GIRL!. I've told them this before, do they care? No.

If anyone actually ends up reading this, thanks. I usually don't even think anyone really notices my disability related posts on here.

[melisssg99]

It's always so awkward when older folks will comment things like;

"oh come on, you're young and healthy!"

"why are you sitting, you're young and healthy?!

When in fact , I am not healthy at all.

But thanks for reminding me.😅

I'm sure they mostl likely mean well but it's always so awkward when I have to tell them

"looks don't say everything" or "Oh,I wish"

Just because I don't have a wheelchair or another mobility aid on me, doesn't mean I can stand 24/7 or 'insert other thing that I wish I could do'

It's so awkward and unfortunate.

I never know how to react and it saddens me

Yes I could have it a lot worse but this does happen a bit too often.