Reactions I get to my disabilities being disabling:
Update: more came to mind


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Reactions I get to my disabilities being disabling:
Update: more came to mind
When will the people in my life realize being chronically ill means I am sick forever.
I will always be sick to some degree, there is no ‘curing’ it.
[ID: A 2-panel comic. The first panel shows two buttons directly next to each other, with a hand tentatively hovering between them. The first button reads, "Getting diagnosed to receive necessary accommodations and treatments to improve my QOL." (QOL meaning Quality of Life). The second button reads, "Remaining undiagnosed and deteriorating to avoid risking the loss of my rights at any moment under 47." The second panel shows the man to whom the hand is attached, sweating and dabbing at his head nervously with a cloth. He is labeled "Disabled person who knows what they have and just needs it put on paper." End ID]
The worst part about having so many diagnoses is that people paradoxically assume that means you actually have less issues. It’s as if the list turns into a word salad for people that they stop comprehending halfway through.
It makes me reluctant to seek further help for unaddressed issues I have in case I get even more acronyms for people to judge me by. Even though that by virtue of having several issues, I’m at higher risk of getting more as a direct result of those.
But people don’t see that. They only see what they believe to be learned helplessness, as if you have proven yourself undeserved of support and compassion.
Like this post if you currently have or do deal with brain fog
GP: "You need an x-ray. Go to the orthopedist."
Orthopedist: "We don't do x-rays. Go to the radiologist."
Me @ my GP: "Can you refer me to a radiologist?"
GP: "We changed our mind. You don't need an x-ray. Go to the orthopedist.
Orthopedist: "We don't know how to help you. Go to the radiologist." *refers me to a radiologist.*
Radiologist: "We don't do that either. Go to a different radiologist."
Different radiologist: "Come immediately."
So now I got an appointment on Monday and then I gotta take the results back to the orthopedist to talk about it.
Another gem is the fact that I asked my GP to check my heart a while ago, she refused, and now my orthopedist is telling me to get my heart and stomach checked by my GP. That's gonna be fun to convince her...
How much snot can one person produce? There should be a limit, because I have to admit, this feels like highly inappropriate amounts. Biologically impossible amounts. Where is my body storing it? Is my nose like Mary Poppin's bag? Or is it stuffed in your brain, exactly as it feels.
There should be laws about this. Divine decrees out to be declared. Somebody needs to make a decision. Some proportionality, at least.
Instead of just me and a handkerchief and endless blowing.