Bobbing in the ebb & flow. @toryloser - Tumblr Blog

Posts

taurzza

oh to be loved by the sun

swagvo1d

doomed

criminalmindsverse

CRIMINAL MINDS 2.21 — "Open Season"

knitmeapony

Yes yes yes this scene thank you for the tag, heehehehe

kalindashepard

It’s funny because this scene must be based on the memoir Special Agent by Candis DeLong. In it she describes being out looking at clothes at a department store on lunch break with another female agent and overhearing a conversation between a man and a woman in which he says he’s an FBI agent. They peer around some clothes racks thinking that they’re going to see one of their fellow agents trying to get a date, and when they don’t recognize the guy they go over and pretend to be interested in the big strong FBI agent themselves and ask to see his badge. The guy actually pulled out a fake badge, whereupon they said “Huh, that doesn’t look anything like ours…”, produced their own badges and arrested him for impersonating an FBI agent. (I remember this bit from a 25 year old book because I actually stole it myself for a fic)

knitmeapony

Exquisite. Glorious. 10/10 thank you for sharing.

himynameisemail

men-iss-vess-ull-deactivated202

so called "free thinkers" when there's a bug on the ceiling

mugetsupipefox

Me trying to leave a comment on a fic I love but not knowing what to say

gemwing88

Writing positive comments for a fanfic you enjoy and love, especially when written by an online friend takes a lot of thought of what to say and it most especially comes from the heart.

rimonoroni2

i think we should be talking about the semi-recent advancements in cystic fibrosis treatment like all the time every day. there hasn’t been a drug like this since AZT medications for HIV infection it is truly fucking miraculous and very important

rimonoroni2

basically: cystic fibrosis is a genetic disease which makes the mucous a person generates extra sticky. it used to kill people in infancy, then with advancements in medical tech it killed people in young childhood, and until very recently cystic fibrosis patients could expect to live until about thirty years old with consistent painful lung infections and complications.

in 2019 the FDA approved a drug called trikafta (which is really three drugs in one) for cystic fibrosis treatment. what it essentially does is patch up the malfunctioning proteins that cause the extra sticky mucus. trikafta is effective on about 90% of cystic fibrosis patients.

people who had spent their entire lives in and out of hospitals, on and off of ventilators, suffering from pneumonia and sometimes treated through painful procedures like intubation took this drug, got out of bed, coughed up an entire lifetimes worth of mucus out of their lungs over the course of a few hours, breathed clearly for perhaps the first time in their lives, and now go on to live well into their seventies.

like isn’t that insane. isn’t that amazing. doesn’t that give you hope for the future of medical advancements and treatment. fuck. i think about it all the time……

kittydesade

There’s a WHAT.

For WHAT.

sweetdreamspootypie

It's been amazing!

My ward is the respiratory ward - CF is one of the things we specialize in.

Since this med came out we haven't had a SINGLE CF admission to the ward

There used to always be a CF patient spending a couple of months with us at a time

There's a man who is 23 years old who I was sure would not survive his next admission (aim saturations 85% is end stage lung disease)

There's a set of the local frequent flyers that we all know so well

Except

No we don't

On the CF specialist ward (with reasonable staff turnover)

Half the staff have probably never even seen a CF patient

They are going to live

anartificialsatellite

For the people asking "well how do we know people are living that long if it's so new????" Here's a page from the CF foundation about life expectancy.

Additionally, it should be noted that metrics like life expectancy are in no way a guarantee of... Anything. There are significant outlier CF patients who are at an advanced age now despite the odds due to a variety of different factors, having lived the majority of their lives before the development of modulators.

But the fact remains that the odds are better now than they have ever ever been before, by leaps and bounds. It isn't cured, and many patients still need significant treatment in addition to Trikafta, but it is so much better than anyone could have dreamed of twenty years ago, and that is a triumph.

kittyoverlord

Yes! My sister has a serious form of cf and finally is living a more comfortable and active life. She was also part of many of the clinical trials leading to these breakthroughs due to the nature of her cf. It's been very exciting to see.

naamahdarling

That's absolutely incredible. Don't get me wrong. It's miraculous from a clinical standpoint. But, uhh. Not to be a downer but I need people to see this so they stay angry and stay real about what medical breakthroughs actually mean for patients. When I call something "survival gatekeeping", this is what I mean:

That is per month with the most common coupon people are likely to use.

But don't worry, there's grants and patient assistance programs you can apply for. 🤞🫠 Most people in high income countries like the USA can get it "covered" through insurance for fewer thousands of dollars. Or even less if your insurance is good or the manufacturer likes how poor and/or on Medicaid you are! A good social worker will help you with the process, and make sure your yearly reapplications and PAs are done a little early so they have time to think about it before you run out. Jesus Christ.

NEVER look at something like this and navigate away feeling better about things without asking how much it costs and who can get it. NEVER. It isn't revolutionary until poor people can access it without a struggle.

h0lyshift

The older i get the more i understand why some people become obsessed with privacy, not because they’re hiding something, but because being constantly perceived starts to feel spiritually exhausting.

melyzard

Did you know that soda machines at restaurants and movie theaters spy on you? That most common new cars now record your sexual preferences and send it to the manufacturer (and also data about anyone who also gets in your car, walks by your car, and maybe happens to be within visual range of your car)? That grocery stores are trying to force customers to download an app to scan barcodes on shelves instead of putting up prices, so the app can scan the phone, decide how much that customer should be squeezed for, and adjust the price? That more and more innocent people are being sent to jail for crimes committed hundreds of miles away because an AI facial recognition algorithm spit their faces out and the cops didn't bother to do the most basic of checks?

I am not uptight about privacy because I'm hiding something. I'm uptight about it because the people who dismiss my right to privacy are dangerous to you and me and our families, personally, all the time.

And often, they are assholes, too.

iiumz

whotookmygender

this fandom is a prison

#bbc merlin

happybunnykat

It's never not funny to me that Leon, the most by the books Knight in all of Camelot, hears Merlin say "I need a crossbow to kill the king right now." And his first thought is "Damn Merlin is being funny as hell today" and hands him the best crossbow in the armory.

#bbc merlin

shadowgremlin

My wife’s idea of decompressing after the busy holiday was to rearrange every piece of furniture in our home is this an ADHD thing or just a her thing

I’m not complaining the way she’s done it is much better than it was it’s just like how is this your idea of a relaxing weekend

kaity--did

Listen I don't get to decide when the drunk elf that is my executive actually does the functioning but when he does we have a SMALL WINDOW OF TIME before he finds the schnapps again and we're done